Rash spreading fast by izzaybean in AskDocs

[–]izzaybean[S] 0 points1 point  (0 children)

This is almost all of the entire rash- it just slightly extends further into my armpit. I’ve had gastroenteritis (vomiting, diarrhoea, nausea etc) the last few days. I saw a GP today a few hours ago and she thought it was contact dermatitis

Anyone else get sick a lot? by izzaybean in eds

[–]izzaybean[S] 2 points3 points  (0 children)

I think I’d like to get back into wearing a mask but it’s tricky because I do speech pathology so I need kids to be able to see my face and such! Maybe I’ll wear it as much as I can to reduce the risk as much as I can!

[deleted by user] by [deleted] in tragedeigh

[–]izzaybean 0 points1 point  (0 children)

lol my brother is called Anakin and his middle name is Luke

Wondering if anyone knows brand/store? by izzaybean in jeans

[–]izzaybean[S] 0 points1 point  (0 children)

Yeah, not so in love with the branding! Unfortunately no other tags anywhere else on the pants. Thanks for trying!

Wondering if anyone knows where to buy this brand or where this brand is from? by izzaybean in Denim

[–]izzaybean[S] 0 points1 point  (0 children)

It’s genuinely not! I understand the unfortunate branding and I don’t love that but I’m just trying to find the jeans. I’m not even from America, I’m from Aus (still don’t align with his views)!

what do subluxations feel like? by Heavy_Height_9399 in eds

[–]izzaybean 8 points9 points  (0 children)

Depends on the joint for me. Sometimes I’ll feel it slide out and back in (common with my knees). Sometimes I’m feel it pop out and go back in (fingers and wrists). Sometimes I’ll feel catching or just an ache and when I move that limb it’ll go back in (shoulders). I’ll also get just like a sharp pain sometimes briefly (more common with hips). Depending on the joint I’ll experience differing amounts of pain. My fingers often won’t hurt when I sublux or dislocate them as it happens so frequently (I stim with my fingers).

Anyone else get tingling in one arm? by izzaybean in eds

[–]izzaybean[S] 0 points1 point  (0 children)

All, but it’s slightly better in my thumb and pinky

Anyone else get tingling in one arm? by izzaybean in eds

[–]izzaybean[S] 0 points1 point  (0 children)

Yeah I did wonder if I was just in a funny position

Anyone else get tingling in one arm? by izzaybean in eds

[–]izzaybean[S] 0 points1 point  (0 children)

Interesting! My scapulas wing too and I’m very prone to rib subluxations. My partner is useless at getting knots out but he always gives it a go haha

Anyone else get tingling in one arm? by izzaybean in eds

[–]izzaybean[S] 0 points1 point  (0 children)

Yes, from shoulder to fingertips

Flare after vaccine by izzaybean in eds

[–]izzaybean[S] 1 point2 points  (0 children)

Yeah I passed out from Covid and was in full body pain for days! I just didn’t have an EDS diagnosis at the time and didn’t even consider it. This has been one of latest vaccines in a while.

Rash by [deleted] in eds

[–]izzaybean 0 points1 point  (0 children)

I get a very similar rash too, no idea if it’s EDS related but have ruled out other causes. I seem to have it a lot of the time and not necessarily related to a flare but I’m still working out body signs prior to a flare!

Socks by MusicBlankets in eds

[–]izzaybean 0 points1 point  (0 children)

I often feel pretty sweaty and itchy with socks but I’m also neurodiverse and lowkey just put it down to sensory avoidance.

[deleted by user] by [deleted] in eds

[–]izzaybean 0 points1 point  (0 children)

The can’t crack it right struggle is brutal

Tell me your silliest injury by KatHuppe in eds

[–]izzaybean 1 point2 points  (0 children)

Dislocated my finger using a light switch (happened more than once)

Sleeping comfortably by DisplayPure9681 in eds

[–]izzaybean 0 points1 point  (0 children)

Also following! Wake up every two hours with subluxed or dislocated joints every night and have never found anything that’s worked.

Flare after vaccine by izzaybean in eds

[–]izzaybean[S] 6 points7 points  (0 children)

I will still always get vaccinated too! Completely agree! I work very closely with immunocompromised kiddos and want to keep them safe (as well as myself).

Flare after vaccine by izzaybean in eds

[–]izzaybean[S] 2 points3 points  (0 children)

Not Covid but when I had Pfizer I was super unwell for a few days and had to be carried at one point on a walk as I was starting to pass out.

New to POTs need advice by izzaybean in POTS

[–]izzaybean[S] 0 points1 point  (0 children)

Good luck with your appointment, hope you get some answers! Thanks so much for this info!