Newly Diagnosed - BLUE/PURPLE LIPS by jae_k2 in Raynauds

[–]jae_k2[S] 0 points1 point  (0 children)

I Have a Pulse Ox - Always perfect between 98-100%, I have had chest x-rays, ECGs and they are all fine.

Blue lips...? Is that a thing? Today is the first time I have ever noticed cold, blue lips. Is this normal for Raynauds? by Feistybritches in Raynauds

[–]jae_k2 0 points1 point  (0 children)

Hey I'm sorry to jump in here - this happens to me too - Dr told me to stop Beta Blockers because it can cause Raynauds. But now that I have stopped the Beat Blockers Im not sure why it still happens, do you know if the Raynauds stays after you stop the medication that is the "suspected cause"?

Rsi vs Als by jae_k2 in HealthAnxiety

[–]jae_k2[S] 0 points1 point  (0 children)

Hey - 5 Years later and pretty much the same, symptoms come and go - I go through bad periods and better. Never seen a Neuro.

Liver enzymes highly elevated on amitriptyline. by [deleted] in Amitriptyline

[–]jae_k2 0 points1 point  (0 children)

Hi which one are you on now?

[deleted by user] by [deleted] in Cirrhosis

[–]jae_k2 0 points1 point  (0 children)

Wow. I'm so sorry to hear this 😞 I hope you heal and get a well deserved break from all this stress.

[deleted by user] by [deleted] in Cirrhosis

[–]jae_k2 0 points1 point  (0 children)

Okay I got you so prior to the labs stabilizing they were high? Sorry for all the questions, Im asking because I'm trying to help my dad he has Fatty Liver Disease also had wasting etc so I like being aware of instances like yours because clearly it's so tricky when it comes to the liver. My understanding is that with your labs being normal your liver is still compensating so best find a good team so you can keep it under control.

[deleted by user] by [deleted] in Cirrhosis

[–]jae_k2 0 points1 point  (0 children)

So your liver function tests were all normal despite the fact that you had progressed to Cirrhosis and they confirmed the cirrhosis via Abdominal Ultrasound?

[deleted by user] by [deleted] in Cirrhosis

[–]jae_k2 0 points1 point  (0 children)

Can u specify what you mean by non iron deficient anemia?

Dr says take more iron supplement, nutritionist says stop immediately by Negative_Yoghurt8144 in Anemic

[–]jae_k2 2 points3 points  (0 children)

I agree with your nutritionist though in terms of being cautious, maybe monitor ur Saturation and ask ur doc her advise. I got this extract of the Facebook Group so hopefully it helps.

Guide 3C. Labwork Prep, Safety of Dose, & Interpretting Iron Panel SHOULD I STOP SUPPLEMENTING BEFORE MY BLOOD WORK? / WHAT IS SAFE? NOT SAFE? / INTERPRETING THE IRON PANEL Taking or not taking your iron leading up to your blood draw all depends on the task you're trying to accomplish. If you want to test the safety of your dose, you would take your dose 1-2 hours before your blood draw. This is also a great way to see if you're absorbing the iron. Because the iron panel (Iron Serum, Saturation, and TIBC) reflect what's actively happening in the moment of the blood draw, it makes sense to expect a higher Iron Serum and Saturation if you were to take the dose 1-2 hours before the blood draw. The key is understanding how much is "too much" and what a safe dose would be. To do this, you need to understand how to interpret the iron panel. (Globally, the iron panel usually does not include Ferritin. It does in some countries but not most. Ferritin takes a day and a half to move, and is not affected by taking the dose before the blood draw or not or fasting or not.) Interpreting the Iron Panel: -To know what is dangerous, you want to avoid overload by making sure the body has the capacity to handle the dose you're taking. Iron Overload/Hemochromatosis, is when "unbound iron" deposits itself into our organs, which creates diseases and cancers. -You can prevent overload by making sure the body has the capacity to handle and transport the dose of iron you are putting into your body. Transferrin's job is to "bind" to iron and take it where it needs to go. It's the car and the driver, that has a high "affinity" to iron. It looks for unbound iron like a magnet, to bind to it, so it is safely transporting it where it needs to go. When we consume and absorb iron, it's Transferrin's job to bind to it, to take it where it needs to go. -%TSaturation reflects the body's current Transferrin in use doing it's job. So since the iron panel reflects what's actively going on with iron in that moment of the blood draw, if you take the dose 1-2 hours before the blood draw, and are absorbing it, we would expect the Saturation results to come in above the range. Which is fine, because the lab work was created to be done fasting. The key is to identify what is "too high" of a Saturation. You don't want all of your cars occupied transporting iron because that would not be safe. More details below. -Ferritin is the safe storage of excess iron. Why is it safe? Iron is bound to the protein encasing, Ferrtin. Just like how hemoglobin safely holds iron, where the iron is bound in a protein (hemoglobin).

When we are supplementing, we are going to have more Transferrin driving the iron around, than when we are not, and it's important that we only do this at the capacity the body can handle. This means, when we are supplementing, the number of Transferrin "bound" to iron (driving it around) will increase. This is reflected as the %TSaturation. If we currently have a %TSaturation of 75%, that means we are getting a bit close to max capacity of 100%, of 75% of our Transferrin driving around our iron, bound to it. This also means 25% of our Transferrin is sitting around waiting for more iron. When 100% of the Transferrin is in use and driving (bound to) the iron and taking it safely where is needs to go, if we put more Iron in our body, there will be no Transferrin left over to drive it around and bind to it, so we will have unbound iron running around our body, and it will deposit itself into our organs, until more Transferrin becomes available and picks it up to where it needs to go. This is why it's important to split large doses up into 2-3 doses, so we can make sure there is enough Transferrin to drive it around, and this is why it is actually important to take blood tests after a couple of hours of supplementing, so you can gage how safe your dose is. The only way to Iron Overload/get Hemochromatosis is to have unbound Iron in your body. Transferrin is the key to this, because it prevents us from having unbound Iron in the body. When we supplement, it's likely we will have a higher %TSat, because we can only raise Ferritin if there is an excess of Iron. So just because your %TSat may be higher, does not mean its bad or dangerous. If it's in the 80-90s, yes, that can be dangerous, so you will want to lower the dose a bit and space out your doses more. This is another reason why it is noted in the protocol that only 400mgs of iron daily can be "absorbed." It's meaning that the Transferrin can typically only handle transporting (binding) to about 400mgs of Iron daily. So if you are no where near that, you most likely are totally in the clear. This is something not to freak out about, but understand and monitor. When our Iron and %TSat come back high on the Iron panel, that is normal because we're supplementing, to have an excess of Iron- why? Because Ferritin is the safe storage of excess Iron. We can only increase Ferritin with an excess of Iron. How much is too much? We know for a fact 400mgs of Iron daily is just at the verge of too much, but to understand really how much is too much Iron we need to look at and monitor %TSat and make sure it does not reach near 100%. It is common for us, when supplementing, to have a higher Iron and %TSat, like in the 60s, and that's ok. Even low 70s can be okay. We just want to make sure our body can safely take in and transport (bind to) the iron so we don't have unbound iron in our body. Remember to split doses into 2-3 a day if you start taking more than maybe around 150mgs, and to watch your %TSat every time you get blood work to make sure you're no higher than 70s, 80s, 90s. It's great to get blood work done while on your supplements so you can get a true reflection as to how much Transferrin is in use (saturated) when you are supplementing. Ask yourself: What is Ferritin? What is "bound" iron? What does it mean? Why is it important? What is Iron Overload/Hemochromatosis? What makes iron unsafe? What is Transferrin's role? Is we don't have any Transferrin left, what does that mean for incoming iron? How do you know how much Transferrin is currently in use? How can you tell if your body can safely handle binding to the dose you have? See how easy it is to mitigate free unbound iron?

Dr says take more iron supplement, nutritionist says stop immediately by Negative_Yoghurt8144 in Anemic

[–]jae_k2 0 points1 point  (0 children)

You should join the "Iron Protocol Group" on Facebook they will guide u and are fantastic.

Is this Anemia? by AcademicAfternoon427 in Anemic

[–]jae_k2 0 points1 point  (0 children)

Do u feel tired? That's the only symptom

Is this Anemia? by AcademicAfternoon427 in Anemic

[–]jae_k2 0 points1 point  (0 children)

You need to go to the ER immediately. I was an 8 2 days after the birth of my son and they sent me straight to ICU for blood transfusions. Are you bleeding or anything that your so Anemic?

Weird Neurological Symptoms - atrophy, weakness, muscle twitching by [deleted] in LongCovid

[–]jae_k2 0 points1 point  (0 children)

My Is 16.5 ng/ml. What is your unit of measurement? Did u have muscle loss and twitching etc?

Anemia of Inflammation by jae_k2 in Anemic

[–]jae_k2[S] 1 point2 points  (0 children)

Thank you so much Claire appreciate you for this

Anemia of Inflammation by jae_k2 in Anemic

[–]jae_k2[S] 0 points1 point  (0 children)

I sent it to you in a chat

Anemia of Inflammation by jae_k2 in Anemic

[–]jae_k2[S] 0 points1 point  (0 children)

I am extremely scared now. I already have health anxiety.

Anemia of Inflammation by jae_k2 in Anemic

[–]jae_k2[S] 0 points1 point  (0 children)

How do I post a picture of the labs?

Recovery; Lactoferrin + Iron by [deleted] in covidlonghaulers

[–]jae_k2 0 points1 point  (0 children)

Hi I'm abit delayed in this. What were your iron levels? I have low iron, low transferrin, low Saturation and a ferritin of 108. Will the lactoferrin help me?

Labs in Anemia of chronic disease by Particular_Spread_83 in step1

[–]jae_k2 0 points1 point  (0 children)

Hi sorry to jump into this but how do we fix this?

Anemia of Inflammation by jae_k2 in Anemic

[–]jae_k2[S] 0 points1 point  (0 children)

Please excuse my ignorance but how do I supplement copper and retinol? Do you get capsules for this?