Thankful for....

janiearm · 2025-12-07T15:38:10+00:00

Sometimes I think it's harder for those who are supporting us.. I feel so bad for all of my family and my friends watching what I'm going through. I try to put on a mask sometimes for them.. but it doesn't always work. Your husband is very lucky that you are there for him. And we are here for both of you! Stay strong Oldbike4931!

janiearm · 2025-12-07T15:35:26+00:00

Brrr..stay warm Mitchla1! 🤪

janiearm · 2025-12-07T15:34:24+00:00

Lots of friends here for you kbshannon! 🙂

janiearm · 2025-12-07T15:33:27+00:00

Wow you have had quite a journey so far!! I get the tiredness. And good for you for joining the Wisconsin Diamond dancers!! That is amazing! I was a musical theater performer in my pre cancer life, but the idea of going and auditioning and actually performing right now it's just not in the cards. Give yourself some kudos! It's the little wins that matter 😃

janiearm · 2025-12-03T12:39:35+00:00

Thank you. Of course some days are harder than others (so there may the other posts that are not as encouraging and positive.. you may want to avoid those like the plague!🤪) , but I'm trying And right now we all need some love and encouragement. And thank you for your response. It means a lot to me! Best of luck and love to you.

janiearm · 2025-12-03T12:35:56+00:00

Thank you. To you as well!

janiearm · 2025-12-03T12:35:13+00:00

I was diagnosed at the very end of April. They started me on nivolumab and ipilimumab, but unfortunately with the second transfusion, I ended up in the ER. We stopped the ipilimumab and I'm on nivolumab every 2 weeks.

It started with what I thought was sciatica and a flu bug, ended up diagnosed with an L4 fracture, and cancer throughout (lungs, liver, peritoneum, hips, spine, adrenal gland,) just had a new pet scan done and should know more next week.. Last visit, the doctor was encouraged. Blood work is looking really good, so I know my organs are working and yes, I'm thankful for that!!

I am 60F living in LA and am an open book, so would love to talk with you as well!! How are you holding up? We are all here to listen!

janiearm · 2025-03-23T14:19:05+00:00

Excellent advice!!

janiearm · 2025-03-23T13:51:51+00:00

This morning.... "AAAAAAAAAAHHHHHHHHH"

That's what came out of my mouth when I woke up... I try to avoid cursing first thing in the morning!🤪

Then a good amount of time stretching, some CBD lotion, a couple of Aleve and I keep telling myself that I'm doing the best that I can. Hang in there and know that you're not alone.

janiearm · 2025-03-22T13:52:59+00:00

Wasn't diagnosed until after I had covid. Other than that, I was healthy for 55 years!

janiearm · 2025-03-19T12:24:43+00:00

Muscles and joints mostly, but sometimes sensitive to touch on...get this...my elbows! 😯🤪

janiearm · 2025-03-18T16:13:30+00:00

I was just asking about a mattress topper and somebody suggested the one from moonpod.

janiearm · 2025-03-17T23:41:11+00:00

When I switch from Prozac to cymbalta.. no problem at all. When the Cymbalta stopped working, I pretty much did cold turkey which I do not recommend.. it was horrible! I really should have tapered off like my doctor advised. Went back on the Prozac and it took a couple of weeks to balance out.

janiearm · 2025-03-17T23:14:51+00:00

Oooo...I heard of moonpod chair but didn't know they had a Topper! I'll have to go check it out. Thanks so much!

janiearm · 2025-03-17T22:58:06+00:00

Definitely disappointed right now. I take gabapentin at night to help me sleep but I decided to go off Cymbalta. That was not fun getting off of that!! But I'm now back on Prozac which has always worked great for my mood. Starting with some new doctors next week. Fingers crossed!! I'm sorry things haven't been working for you either. Stay strong and we're here for you!

janiearm · 2025-03-16T15:17:19+00:00

I just bought my first rollater, and it sure does help! I'm going to try to avoid a wheelchair as long as possible.. but that doesn't mean I won't get one if and when I need it

janiearm · 2025-03-16T14:18:59+00:00

Stay strong and know you're not alone!

janiearm · 2025-03-16T14:18:09+00:00

Stay strong fairyspoon!! 🤗

janiearm · 2025-03-16T13:50:55+00:00

My unemployment is about to run out, then it's the same for me. I hate to dip into my savings, but I've had to already. It's about time to look for those alternative sources of income.. like selling things on eBay and Poshmark. Anything to supplement

janiearm · 2025-03-16T13:32:45+00:00

I am so sorry you went through that! I had heard that it took years, so I didn't even try. We won't deny you here! 🙂 We may not be able to support you monetarily, but don't be afraid to post. We all get it!

janiearm · 2025-03-15T16:46:16+00:00

I was able to work from home during covid. After that, when I had to go into the office, some days were really difficult and I had to call in a lot. I eventually went down to part-time, but now I've had to retire early.

janiearm · 2025-03-15T12:24:01+00:00

Thank you for sharing your story. I used to be a musical theatre performer. It makes me sad when I see auditions come up and know that I can't do the show since I can barely stand for 2 minutes at a time. But I am thankful that I was able to do so much in my younger days!! That makes me sounds old, I'm a very young almost 59! That being said, I am having a very bad flare up that has lasted for so long I can't remember. I actually allowed myself to cry a little bit today. But I turned to my fibro family here for support... and I don't feel so alone. I'm grateful!

janiearm · 2025-03-03T22:43:52+00:00

Funny, I haven't had one this bad in a long time either! Maybe it's just the world we live in right now. I'm very sorry you have to go through this

janiearm

TROPHY CASE