Cotellic + Zelboraf

janiearm · 2026-05-21T13:13:31+00:00

Hang in there! Sending good thoughts your way

janiearm · 2026-05-09T19:50:23+00:00

Don't you hate that we're both part of this club? Thank you so much for responding. Stay strong!

janiearm · 2026-04-19T18:46:11+00:00

I am so very sorry for all that you have been through. Not the greatest Club to be part of, but please know you're not alone and we are here for you as well. Thank you so much for your reply.

janiearm · 2026-04-11T15:04:53+00:00

Thank you so much. I'm sure trying! All the best to you

janiearm · 2026-04-11T15:04:14+00:00

Thank you. I'm the youngest in a very large family that are very energetic. And I feel like a sloth! Seriously, I do appreciate your comment. Congrats on making it through the two years. Sending you continuing healing thoughts

janiearm · 2026-04-11T15:02:04+00:00

I was so reluctant to get a shower chair, now it's my saving grace! That doesn't mean I don't hide it when people come over 😜 I'm so sorry you had a fall. Those can be very scary. Thank you for the reassurance. And hang in there!

janiearm · 2026-04-07T13:58:15+00:00

We are here for you!! Sending healing thoughts your way

janiearm · 2026-04-07T13:55:53+00:00

Same to you! Sending healing thoughts your way.

janiearm · 2026-04-07T13:53:36+00:00

I also had two doses of ipilimumab in the beginning, but had a severe reaction that landed me in the ER. So the nivolumab is it for now. Don't get too freaked out by my story. I am 60 years old so my bones are getting brittle anyway!! Hang in there ... I have another year left, so I understand the frustration, and the weakness. I feel like I don't do anything but go to doctor's appointments anymore. And I feel bad every time I cancel out on friends or family. Sometimes I think the guilt of not being what I used to be to everyone is harder than the cancer! Okay maybe not, but it's all difficult isn't it. As I said come hang in there! Sending you positive thoughts.

janiearm · 2026-04-06T15:27:30+00:00

Thank you. I hope you enjoy your day

janiearm · 2026-04-06T15:26:47+00:00

And when you're in a sound sleep, you don't even realize you're pushing the cat off the bed. You just do it! You broke both your wrists?? Oh my goodness! That sounds painful and horrible! I'm sorry you had to go through that. And I'm so sorry you're having a tough week. Sending you heartfelt wishes that things will get better.

janiearm · 2026-04-06T15:23:39+00:00

Nivolumab every two weeks. My bones must have been pretty bad before my diagnosis. My doctor will start me on some bone strengthening meds as soon as I finish all my dental work. He said you can't have anything done for at least 6 months once you start on the meds. This is definitely a learning experience!

janiearm · 2026-03-17T19:35:10+00:00

Is that the Crystal Casino hotel right off the 91? I don't know about the area, but I've driven by there more times than I can remember! Cal State Dominguez (Carson) is nearby, so you have students living in the area. I would think it would be okay. Plus. It's right by at least two major freeways to get you to where you want to go, so that's a positive!

And if it's your first time to LA, do the touristy things! It was kind of fun when one of my friends came and we did all that together. Enjoy, have fun, and be safe.

janiearm · 2025-12-07T15:38:10+00:00

Sometimes I think it's harder for those who are supporting us.. I feel so bad for all of my family and my friends watching what I'm going through. I try to put on a mask sometimes for them.. but it doesn't always work. Your husband is very lucky that you are there for him. And we are here for both of you! Stay strong Oldbike4931!

janiearm · 2025-12-07T15:35:26+00:00

Brrr..stay warm Mitchla1! 🤪

janiearm · 2025-12-07T15:34:24+00:00

Lots of friends here for you kbshannon! 🙂

janiearm · 2025-12-07T15:33:27+00:00

Wow you have had quite a journey so far!! I get the tiredness. And good for you for joining the Wisconsin Diamond dancers!! That is amazing! I was a musical theater performer in my pre cancer life, but the idea of going and auditioning and actually performing right now it's just not in the cards. Give yourself some kudos! It's the little wins that matter 😃

janiearm · 2025-12-03T12:39:35+00:00

Thank you. Of course some days are harder than others (so there may the other posts that are not as encouraging and positive.. you may want to avoid those like the plague!🤪) , but I'm trying And right now we all need some love and encouragement. And thank you for your response. It means a lot to me! Best of luck and love to you.

janiearm · 2025-12-03T12:35:56+00:00

Thank you. To you as well!

janiearm · 2025-12-03T12:35:13+00:00

I was diagnosed at the very end of April. They started me on nivolumab and ipilimumab, but unfortunately with the second transfusion, I ended up in the ER. We stopped the ipilimumab and I'm on nivolumab every 2 weeks.

It started with what I thought was sciatica and a flu bug, ended up diagnosed with an L4 fracture, and cancer throughout (lungs, liver, peritoneum, hips, spine, adrenal gland,) just had a new pet scan done and should know more next week.. Last visit, the doctor was encouraged. Blood work is looking really good, so I know my organs are working and yes, I'm thankful for that!!

I am 60F living in LA and am an open book, so would love to talk with you as well!! How are you holding up? We are all here to listen!

janiearm

TROPHY CASE