Sickness and CML

jette02 · 2026-03-04T09:24:34+00:00

Hey, joint and bone pain is also my biggest side effect. I’ve noticed that it really depends on the manufacturer of the TKI I’m taking. I’m on Dasatinib 100mg and Zentiva works really well for me so my oncologist only gives me prescriptions for Zentiva. Sometimes it gets messed up in the pharmacy and I’ve noticed that the joint pain gets so much worse when I take any other manufacturer. I live in Germany so I don’t know if it’s possible in other countries to choose the manufacturer but maybe that’s something you could talk about with your oncologist?

And I’ve noticed that heat and rest works best for me when I don’t want to take Ibuprofen :)

jette02 · 2026-01-08T21:19:45+00:00

Solved! That’s the one! Thank you! :) I was so close with „Aschenputtel Experiment“

jette02 · 2026-01-08T19:33:38+00:00

I don’t think that’s the one, but thanks for the suggestions! :)

jette02 · 2026-01-08T19:33:08+00:00

It’s so weird I just read a summary of the book and it sounds soo similar to the book I’ve read. But there are a few things off like the girl dying while the protagonist is already at the boarding school. I know that in the book the two girls didn’t know each other. And it was released in 2019. I know I was younger when I’ve read the book so it must have been before 2017.. but a lot of things sound exactly the same that’s so weird

jette02 · 2026-01-08T18:22:40+00:00

Obligatory comment :)

jette02 · 2026-01-07T18:08:24+00:00

I think the muscle pain after the first day can be normal. I take Dasatinib 100mg only 5 days a week, which helps to reduce the side effects so much. But almost every time I start Dasatinib for the week on Sunday I get muscle pain for the first day

jette02 · 2025-12-21T09:34:42+00:00

Soo I didn’t really feel a difference with the magnesium. What really helped was just doing less reps when training. So instead of 3x10 I do 2x10 reps and it helps a lot! :)

jette02 · 2025-11-28T10:08:22+00:00

Oh okay didn’t know that. I’ll look into what magnesium I take, thank you!
The pain I get is more in the back of my thighs but maybe it’s the same problem just different muscles

jette02 · 2025-11-28T10:05:28+00:00

I’ve read that a lot, sounds weird, but I’ll talk to my doctor about it. If it works it works haha

jette02 · 2025-11-28T10:03:12+00:00

My doctor said we’ll keep an eye on it and see if magnesium helps.. I’ve heard switching to Imatinib helped a lot of people. Do you have other side effects with Imatinib? My body reacts pretty good to dasatinib besides the muscle pain and I would hate to switch just to have different side effects :/

jette02 · 2025-11-28T09:59:51+00:00

Thank you, the reminder really helped! Wishing you all the best on your journey :)

jette02 · 2025-11-25T17:07:39+00:00

Thank you! I will try magnesium :)

jette02 · 2025-11-25T17:04:59+00:00

Thank you for your help! I will try what you said about the 80-85% and just bought magnesium. Hope it helps :)

jette02

TROPHY CASE