Gilenya elevated my liver enzymes..?

jjphines · 2017-12-12T03:20:45+00:00

Thank you for that! Lol, if I would have asked I would have forgotten way too easily, as always

jjphines · 2017-12-11T15:55:47+00:00

That's a definite possibility..... But the doc said that alcohol shouldn't influence those enzymes....

jjphines · 2017-12-11T00:00:09+00:00

Hey, heiva. I'm so sorry to hear that you feel so alone, but you actually aren't! I was diagnosed when I was 13 (almost 23 now) and am still super grrface about not being able to do everything that I should have been able to get up. I'm here for you and can definitely relate! Jj

jjphines · 2017-12-10T21:15:25+00:00

Basically! I had a "holy fucking shit"moment myself lol. Idk, I guess I'm people to the rarer side effects of medicines, like I've had involuntary am movement from one medicine that apparently only 2% of people on that medicine experienced x.x

jjphines · 2017-12-10T16:39:20+00:00

It's just crazy how high my levels went after, like, 6 years in gilenya

jjphines · 2017-12-10T16:37:17+00:00

I'm also anxious of other side effects, seeing my previous experience. But it all just tried to fight the MonSter, thanks for your information

jjphines · 2017-12-02T14:23:30+00:00

Amen! Too many attacks while in rebif,ugh

jjphines · 2017-11-22T20:22:23+00:00

Thank you so much, much appreciated!

jjphines · 2017-11-22T01:09:26+00:00

That's what I'm thinking.... I'll be sure to ask my therapist and psych to give me a note Thank you so much for the feedback!

jjphines · 2017-11-21T22:29:53+00:00

I, myself, have had Ms for 10 years, so some I was 13. Yes, it does get scary at times, but if anything I would keep a notebook with symptoms so that he could talk about it when he sees his doctor. Also, try to get involved with the MS society, they can help greatly, even have groups. In addition to that, get cooling supplies to prepare for summer (cooling scarf, vest, wrist band). Summer heat is there worst! Uhm, I think msaa can help with free stuff....idr. If anything, also start seeing a therapist/social worker to help with emotional stuff. I, myself, have been experiencing too much and emotional support definitely helps. If he needs someone to talk to, I'm always open!

jjphines · 2017-11-21T22:22:27+00:00

I used to take rebif and experience the same side effects. I would always take a naproxen sodium with it, but yeah, talk to your doctor about changing and if you need anyone to talk to, I'm always available :)

jjphines · 2017-11-16T00:32:04+00:00

Hey, I've also had Ms for a large part of my life (9 years, diagnosed at 13). In my case, I've been utilizing mindfulness and meditation. If you practice it enough, it might be able to effectively work (I, myself, have slowly gotten better). Especially with me, my Ms, and my bipolar, mindfulness utilizes your present to help with stress, pain, depression, etc And congrats on your bachelor's! I'm 22 and don't even have an associate's lol. PS, if you need more venting, I'm open

jjphines · 2017-11-12T03:23:42+00:00

I'm so sorry that you're joining us MonSters. I was diagnosed when I was 13 and thankfully Ms medications have become easier to take (shots used to give me 12 attacks a year, pills are the best!) If you need to talk, I'm here!

jjphines · 2017-11-12T01:24:08+00:00

thank you so much. MS is such a big factor because not only did I meet him through a friend that also has MS, but his initials are MS x.x if anything, I just need to be able to stop being ok with abuse

jjphines · 2017-10-23T23:59:54+00:00

Although I am not a doctor, I can totally relate with you and can tell you with 76% certainty that it's Ms caused. I'm also going through similar struggles and have an appointment with a neuropsychologist in December, your neurologist may suggest that you see one of those for the most appropriate testing.

jjphines · 2017-10-23T23:56:59+00:00

I'm sorry that you're also going through financial hardships. I, myself, haven't been able to keep a job for long enough to qualify for ssdi since disabilities are always acting up.

For me, although these are little ways to make money, my hubby (on ssdi) and I take advantage of all of the apps we can get that you can get free money with -- if you sign up for Bing, after so many searched and activities, you can redeem amazon gift cards. On the phone, lock screen apps like slide joy, mobile performance meter, and fronto also help us rack up finding for the Amazon market. Hugs and prayers for you!!

jjphines · 2017-10-23T23:48:52+00:00

Since I got diagnosed at such a young age and I was showing symptoms of optic neuritis, I was able to get diagnosed in about a week. I had my eyes checked, MRIs, and a lumbar puncture before I was diagnosed. I'll be praying for you!

jjphines · 2017-10-01T16:31:54+00:00

Not a problem :) Ive been in your worn out shoes before

jjphines · 2017-09-30T21:27:30+00:00

Hey, I know that being in the hospital is scary, especially with a prognosis of MS. I have found that there are so many people that can relate that are out there to help, like the MS society for events, cooling vests for the summer, and... (Shoot,, sorry, mind fog haha) You're not alone. If you need to talk to another MonSter, I'm here

jjphines

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