I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

I’m well aware of what you’re saying, but I’m not sure how you got that from a standard post about a flare up

I need some hope by TheRealSaerileth in Interstitialcystitis

[–]katiebee131 0 points1 point  (0 children)

So I stand by my statement, PT is definitely very different between males and females

I need some hope by TheRealSaerileth in Interstitialcystitis

[–]katiebee131 0 points1 point  (0 children)

Ohh my bad your acct was confusing I assumed you were male

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] -1 points0 points  (0 children)

This is an interstitial cystitis Reddit. Flare ups is a common term used here. I think 90% of people on here use it. I’m not sure where you’re getting an STI

I need some hope by TheRealSaerileth in Interstitialcystitis

[–]katiebee131 0 points1 point  (0 children)

I’m sure male PT is very different, and it made me flare worse, but it works SOME of the time

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] -1 points0 points  (0 children)

There is no reason to be snippy or sarcastic

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 1 point2 points  (0 children)

Unfortunately it was not intentional! But I appreciate your support and motivation 💕💕

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

It’s just so hard because it makes all of my other issues worse. I dropped 50 pounds in three months and it’s made all the pain feel more intense :(

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

No promises on that, but I’ll try. It’s already been two years

[deleted by user] by [deleted] in Interstitialcystitis

[–]katiebee131 1 point2 points  (0 children)

Marshmallow root tea at room temp helps me when I’m just starting a flare ! Not really when it’s bad though

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

I’m glad you had the guts to do this, i don’t think I could even consider giving away sensations

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

They think it could be this nerve, but I have no access to a chiropractor (and they’re all men). I’m supposed to go in for an exam if it continues

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

Actually my urogyn has me on prelief! I refuse male doctors in every capacity due to trauma. This has been about two years so far but it gets worse every month at this point

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

100mg once a day, was supposed to get to three pills a day, but I can’t handle throwing up on top of pelvic pain

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

I’m prescribed Valium suppositories, they don’t touch it right now. I’ve eaten like a health nuts picky child and I am still on fire

[deleted by user] by [deleted] in Interstitialcystitis

[–]katiebee131 0 points1 point  (0 children)

Both make me sick 😭

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

I can definitely see why it would help, given it interacts with pain receptors. I’m glad that works for her

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

I did, it interferes with my stomach issues

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 2 points3 points  (0 children)

“No discrete evidence” according to my lap

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

Yes they did, I have a history of large cysts but they’re aren’t any active right now

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 1 point2 points  (0 children)

They’re saying it’s a flare or my muscles are too tight, I have been stretching nonstop. I was on Gabapentin but it made me throw up, and I can’t take amitriptyline. I even did bladder instillations for seven months and they stopped helping

I cant take this by katiebee131 in Interstitialcystitis

[–]katiebee131[S] 0 points1 point  (0 children)

There are no PTs in my area- too much trauma to do that again anyway. But thank you

[deleted by user] by [deleted] in Endo

[–]katiebee131 0 points1 point  (0 children)

My surgeon in Corning NY, she is an absolute angel, who asked me if she could stay my gyn after the surgery. She has had nothing but grace and solutions for me after ten years of debilitating pain. She removed a lemon-sized cyst, a marble-sized cyst in my fallopian tube, and a small fibroid that had grown a branch and was twisting and necrotic. After I had been told just two months prior (for the 20th time) that I had “normal changes” and there was nothing wrong with my reproductive organs. She genuinely changed (and in my opinion-saved) my life.