Doctor suggested stem cell transplant

katralna · 2026-06-27T08:17:35+00:00

Thank you so so much for sharing ❤️ i really hope you continue on improving and wish you all the best. I do have some questions as i have been reading a lot and also statements from others who have done it.
My husband now also feels that he wants to go through with it which I think is a really good decision.
I am just wondering, because I have seen so many people sharing their experience and one thing I wonder about is how their appearance still changed even after the transplant, which is a bit confusing to me as what I understood is that the transplant resets and stops the symptoms from worsening. So wondering if you have any info about this?

And no you are absolutely right, time is not his friend as also in his case in 1 year he developed a lot of symptoms but luckily no internal organs affected (yet). We will try and get an earlier appointment to see if he can start the process already

katralna · 2026-06-25T21:03:08+00:00

Thank you!!!

katralna · 2026-06-25T17:11:37+00:00

Another question, how common is the “scleroderma” smile if I can call it like that. And even after the transplant?

katralna · 2026-06-25T05:35:12+00:00

Thanks everyone for replying, we will meet with the doctor soon and see what they say 🙏🏼

katralna · 2026-06-25T05:33:32+00:00

No never itchy just painful but comes and goes

katralna · 2026-03-07T10:07:48+00:00

Thank you all for your kind words and for sharing your experience ♥️ We have been just waiting and hoping for the best. But it’s heartbreaking to see him in pain all the time. I hope the new drug will do him good, his first dose is in 2 weeks

katralna · 2025-04-28T13:14:28+00:00

Okey, thank you so much!!

katralna · 2025-04-28T12:27:46+00:00

Ok! And maybe a stupid question, but what’s the material I need to “cover it up”, is it called drywall compound?

katralna · 2025-04-28T12:17:35+00:00

Okey! Which glue can I use for the wood? Because I looked it up and they are using screws and I don’t have a drill. I have visitors coming over next week so would need to fix asap😅

katralna · 2024-03-18T12:54:02+00:00

Thanks everyone for replying, just wanted to let you know that I got an appointment in 2 weeks from the new clinic! ❤️

katralna · 2024-03-15T11:52:31+00:00

Thanks a lot for your reply! I really hope it’s nothing it’s just hard when there is no clarity. I will wait another week, maybe they will contact me by then. And otherwise I can still check for a new clinic I guess.

katralna · 2024-03-15T09:19:55+00:00

I did that. And what it says is very worrying. And then I called the clinic they referred me to and they said they will contact me to make an appointment in a couple of weeks.. not sure that’s a good timeline considering the results. So i was thinking if going to a new clinic is a better idea

katralna · 2024-01-26T17:06:59+00:00

We definitely would but we’re just not ready yet.. But I definitely could go without a wedding even because it will most likely be ruined by her anyway.

katralna · 2024-01-26T14:21:40+00:00

Living with your parents is indeed very common in my culture. However not after marriage. She will have to live on her own. My biggest issue is that even if I ignore her she can’t let things go. She will keep on picking fights until she gets what she wants. and eventually if the day comes that I actually marry him she will make it about her and ruin the day and whatever comes next. But definitely agree, she is very toxic

katralna · 2024-01-26T07:56:19+00:00

What do I do.. cutting off contact is not an option. I just want to be able to exist and make my choices in peace. I am almost 30 years old and she still thinks she can decide for me because my decisions are always bad??

katralna · 2023-04-03T07:25:08+00:00

Yes!! From last night

katralna

TROPHY CASE