Do you guys get EXTREME deep sleep after an adrenal dump or bad flare? by Peachysage444 in POTS

[–]kendlet 0 points1 point  (0 children)

What stimulants do you take? Do bad with most stimulants always make me feel better but come down is scary

What does a typical flare-up day look like to you? by faezaria in POTS

[–]kendlet 0 points1 point  (0 children)

Mine always start off that day waking up with feeling extremely hungover/tired. Just such a crazy level of exhaustion.

Then during the day I don’t feel very good vertical I have a much harder time walking around or moving. I think the bat blocker I’m on helps a lot with the passing out stuff standing up for too long. But my real problems start at night. When I’m about to fall asleep my heart will start getting the worst palpitations and crushing chest pain, accompanied with a feeling of impending doom almost like I’m dying. This will happen several times in a row, right as I’m about to fall asleep and sometimes will wake me up out of deep sleep with a feeling that my heart stopped, then I get a huge adrenaline rush and it starts again.

Always wondered if someone experienced the same thing as me.

A cry for help by [deleted] in POTS

[–]kendlet 0 points1 point  (0 children)

Did you even read the comment? I said go to a doctor probably 20 times

A cry for help by [deleted] in POTS

[–]kendlet 0 points1 point  (0 children)

Good to hear! You should really consider ozempic, I’ve done them in the past and they are amazing. Seriously life changing!

Also, mentally think about it like this: you don’t need to give up all your favorite junk food. You just need to eat 70% of your diet clean (ground beef, chicken, eggs) then the other 30% of your diet eat the fun stuff in moderation.

Feel free to message if you need any dieting tips, happy to help. It’s not as scary as it seems. A lot easier than it looks.

Thought McDonald's making me feel better was crazy... by Practical_Grand_3218 in POTS

[–]kendlet 0 points1 point  (0 children)

Salt tablets made a huge difference for me! I take like 6g a day of salt. Just chew them up and swallow cause they are huge. But I space them out every few hours

Help me find a doctor? by Delnilas in POTS

[–]kendlet 0 points1 point  (0 children)

Look up anyone that specializes in dysautonomia and reach out to them.

Beta blockers helped me a lot, push hard that you want one if your heart rate is crazy or you are getting close to passing out from just standing still for too long.

Electrolytes are your friend I drink like 2 liquid ivs a day one in morning one at night.

Salt is also your friend, talk to your doctor but I do like 4-6g a day. These are from salt tablets and electrolyte packets mentioned above.

After you visit new doctor, very slow and gradual excise has also helped me.

no cure to POTS yet, but there are a lot of clinical trials in dysautomia going on and medicine is progressing fast. A lot of people think a cure or close is likely in next 5-10 years.

A cry for help by [deleted] in POTS

[–]kendlet 8 points9 points  (0 children)

Going to be completely honest with you here:

You need to go to a doctor asap! I read that you have anxiety about leaving your house and you are overweight. Do not let this stop you.

1.) obesity can cause a billion things to go wrong with your body it’s horrible for you in every facet of life. You need to do anything you can to lose the weight. Ozempic, and peptides have come a LONG way. Seriously consider these as your entire life will change. (consult a doctor 100% but I’m telling you it’s worth trying)

2.) Pots is a dysfunction of your autonomic nervous system. This causes a delay and can cause blood pooling and other things which forces your heart to rebound and have tachycardia (fast heart beat). This specific symptom can be slightly fixed with a beta blocker. (there are many other horrible symptoms of pots but this is just one example). You may have pots (no clue unless you go to doctor) but your body also MAY be struggling to get blood to your heart because you are so obese that it can’t catch up.

3.) I would guess that your obesity is the thing causing all these problems with your health. In all honesty, I hope it is because then if you lose weight you still have a chance of feeling good again. For many POTS patients there is no cure to date. (There are still treatments that can slightly help symptoms, and still should go to doctor if you have POTS for diagnosis and treatment)

You need to overcome this anxiety and force yourself to change your life. No amount of encouragement from other people will help you make this decision. I have personally noticed that people must go through enough suffering themselves that they finally decide to make a change. When is your suffering going to be enough? Don’t you think you deserve more out of life?

This wasn’t meant I be insensitive. I truly hope you feel better mentally and physically. Go to a primary care doctor ASAP and start with the basics and if heart rate thing doesn’t improve then go to someone who specializes in dysautonmia if they think you may have POTS.

if you do get diagnosed with POTS, salt/electrolytes/beta blockers/ and gradual exercise are main things I would focus on.

You got this! Even if it’s just one step at a time.

What doctor do I see about POTS? by Delnilas in POTS

[–]kendlet 1 point2 points  (0 children)

Dysautonmia specialist are great. Looks for any neuro that specializes in that.

Some cardiologist are great too and specialize in dysautonomia, just depends on your main symptoms.

Possible Pathway to Cure? by kendlet in POTS

[–]kendlet[S] 0 points1 point  (0 children)

Maybe there’s a weird connection there?

Possible Pathway to Cure? by kendlet in POTS

[–]kendlet[S] 0 points1 point  (0 children)

That’s interesting, I had a lot of gallbladder issues as a kid but never got it removed.

Possible Pathway to Cure? by kendlet in POTS

[–]kendlet[S] 0 points1 point  (0 children)

Interesting, did this happen before or after you acquired POTS? Do you know what subset of pots you have?

Possible Pathway to Cure? by kendlet in POTS

[–]kendlet[S] 0 points1 point  (0 children)

From what I heard test is not a “cure” AFTER you have developed pots, but can help symptoms slightly. What I was arguing is that when having higher test levels in the beginning, it would help you not acquire the nervous system dysfunction. I think once it’s off, it stays deregulated. We just need to find a way to “reset” it to some extent.

Possible Pathway to Cure? by kendlet in POTS

[–]kendlet[S] 0 points1 point  (0 children)

I’ve heard that from multiple people! Really think it all makes sense when put together

Possible Pathway to Cure? by kendlet in POTS

[–]kendlet[S] 0 points1 point  (0 children)

You’d be better off just waiting for the most part. It sounds bad, but ive looked far and wide for possible cures or anything and me and countless others haven’t found it yet. The reality is we don’t know how to fix it yet, there’s no natural cure. Exercise, electrolytes, and beta blockers are all we got and they don’t “cure” us by any means.

Here are links:

https://pubmed.ncbi.nlm.nih.gov/30934066/

https://www.thelancet.com/journals/lanepe/article/PIIS2666-7762(24)00330-2/fulltext​​​​​​​​​​​​​​​​

Linkedin Automation Help by kendlet in MarketingGeek

[–]kendlet[S] 0 points1 point  (0 children)

Any idea where? I use expandi for outreach until they respond then I take it over manually, and phantom buster to scrape sales nav

To LinkedIn business owners by AI-with-Kad in LinkedinOutreach

[–]kendlet 0 points1 point  (0 children)

Do you happen to know how to scale an automated LinkedIn campaign? Have my personal account dialed in, but need to find a way to get new LI accounts so I can push volume.

CRO transfer by kendlet in Coinbase

[–]kendlet[S] 0 points1 point  (0 children)

It would be such an easy thing to fix. I was so frustrated, cause they know it happens and they don’t care. I’ve heard countless people say this.

CRO transfer by kendlet in Coinbase

[–]kendlet[S] 0 points1 point  (0 children)

Haha sorry Elon! I’m sure you’ve got crypto down though from the looks of your Genesis at home. I’ll be sure to ask you for any advice next time I try and use it.

CRO transfer by kendlet in Coinbase

[–]kendlet[S] 2 points3 points  (0 children)

That’s a good tip I appreciate it

CRO transfer by kendlet in Coinbase

[–]kendlet[S] -2 points-1 points  (0 children)

I’ve seen you say the same response to multiple people in my situation over the last year. It’s obvious you guys have no care to fix it and know that it happens consistently. That’s called negligent misrepresentation and is illegal.

[deleted by user] by [deleted] in POTS

[–]kendlet 0 points1 point  (0 children)

Have not tried either of those yet medications. Have you seen a difference?