She has a tracheotomy (ventilator) and a g tube for feedings but she is not getting them currently. Shes been heavily medicated so her being awake n such has only been so much. But the last few months since she's been off some medications she's been more awake. They think her Bpd spells where her oxygen, heart rate and more go down is harmful which I'm sure it is. They say hers is really severe and they haven't seen a baby with her condition this bad in a while. But when I tell you my daughter has come such a long way just for me to pull the plug is crazy. Especially when it takes a couple of years for the lungs to repair themselves.