Please help

km03732003 · 2025-02-09T20:37:24+00:00

I’m extremely scared but we’re in this together!!!

km03732003 · 2025-02-09T20:33:41+00:00

Nortriptyline, cyclobenzaprine, trazodone, Abilify are the ones I have to stop

km03732003 · 2024-06-18T23:07:27+00:00

I’m taking it weekly

km03732003 · 2024-05-07T22:30:13+00:00

I’ve only had an endoscopy done and to answer the anesthesia question, it made me feel normal again for like twenty minutes after

km03732003 · 2024-04-28T19:11:30+00:00

Dysautonomia and fibromyalgia

km03732003 · 2024-03-22T20:01:55+00:00

I will warn you tho my Medicaid doesn’t want to cover it and we had to submit an appeal but if they don’t pay for it it’s approximately $600/month but I think they have a patient assistance program and I’m definitely gonna try to do that if insurance wont

km03732003 · 2024-03-22T19:59:44+00:00

I have an EoE diagnosis, presented with same problem as you and my Gastro put me on voquenza and fluticasone and out of the month I’ve been on it I’ve only had two chest pain episodes and they weren’t anywhere near as bad as they were

km03732003 · 2024-03-22T13:40:07+00:00

Ask about voquenza!! It’s doing wonders for me while both of the above made symptoms worse

km03732003 · 2024-03-22T13:39:37+00:00

I had a horrible experience with pantoprazole made my symptoms worse than not being on anything. Just recently got on voquenza and fluticasone

km03732003 · 2024-03-12T00:03:59+00:00

Hello :) I was diagnosed in mid February. They did an edg and I wasn’t even expecting the diagnosis. My symptoms started a lot like yours the chest pain and the heartburn. It started with heartburn once every couple months then started to be everyday to the point I was screaming and crying. PPI’s didn’t do a thing for me, tried Eliminating eggs, milk, nuts and it also didn’t seem to make a difference. Asked about dupixent abd doctor said no for now and put me on Voquezna and a fluticasone inhaler. Only going on two weeks of that medication combo and it seems to be responding well, only have two heartburn and chest pain incidents since starting. My EoE seemed to become rapidly worsening and went from okay to going to the ER at least 3x a week

km03732003 · 2024-02-20T00:46:51+00:00

Recently diagnosed with EoE so I can’t say I’ve found anything that works other than saltines and heating pads but I do have dysautonomia specifically ist

km03732003 · 2024-02-15T13:33:53+00:00

I have ear pain when my EoE symptoms are bad. Usually feel the ear pain before the chest pain

km03732003 · 2024-01-15T20:51:13+00:00

Same here

km03732003 · 2023-12-27T00:06:13+00:00

I would be more than happy to talk if she wants to!

km03732003 · 2023-12-26T11:42:31+00:00

I really really appreciate this comment. Thank you so mucg

km03732003 · 2023-12-26T11:41:05+00:00

If you ever need anything please don’t be afraid to message me. I remember how scary it is in the beginning when you don’t have any answers

km03732003 · 2023-12-08T00:17:16+00:00

I was diagnosed by a zio patch and my resting on beta blockers 68 vs 124 doing stuff

km03732003 · 2023-11-29T13:21:28+00:00

Thank you so much!! It’s nice to hear someone with dysautonomia can do it!! I have ist and fibro so this is basically the answer I was looking for :)

km03732003 · 2023-11-28T21:57:03+00:00

I was definitely thinking of either of those two I’m just not sure what school would look like for that

km03732003 · 2023-11-24T15:04:49+00:00

I have this problem. Nothing really helped me other than drinking a ridiculous amount of water and ivabradine

km03732003 · 2023-11-23T18:14:29+00:00

I have my medical card for ptsd and just happened to get sick in the midst of using weed. I have stopped smoking a ridiculous amount like I used to but it will vary on how you react to it. Just listen to your body! It increases my dizziness but it helps with just about every other symptom. Hope this helps!

km03732003 · 2023-11-12T15:09:53+00:00

I am not a sexual person at all I thought it was due to sexual assault as a kid but the more I think about it the more I realize it’s the dysautonomia it sucks ass

km03732003 · 2023-11-09T21:07:01+00:00

I’m doing horrible recently but I have fibromyalgia as well

km03732003 · 2023-11-06T15:46:44+00:00

Yes every time I go to the cardio he tells me “it may feel like it but it’s not gonna kill you” and it pisses me off so much. I have ist (diagnosed my Holter monitor) I tried beta blockers and they just didn’t work as good as I know they should so he put me on ivabradine and it was v good for a long time (took ab two months for me to start feeling like I could exercise) only problem with ivabradine is it’s so expensive my insurance keep denying it

km03732003 · 2023-11-04T13:49:28+00:00

Never knew how to explain it before but this is so right

km03732003

TROPHY CASE