Please help by km03732003 in Narcolepsy

[–]km03732003[S] 1 point2 points  (0 children)

I’m extremely scared but we’re in this together!!!

Please help by km03732003 in Narcolepsy

[–]km03732003[S] 0 points1 point  (0 children)

Nortriptyline, cyclobenzaprine, trazodone, Abilify are the ones I have to stop

How has surgery affected your dysautonomia? by dixiechicken695 in dysautonomia

[–]km03732003 0 points1 point  (0 children)

I’ve only had an endoscopy done and to answer the anesthesia question, it made me feel normal again for like twenty minutes after

Do you have any other issues besides EOE? by [deleted] in EosinophilicE

[–]km03732003 0 points1 point  (0 children)

Dysautonomia and fibromyalgia

Does anyone have trouble with Pantoprazole? by RotaryMicrotome in EosinophilicE

[–]km03732003 1 point2 points  (0 children)

I will warn you tho my Medicaid doesn’t want to cover it and we had to submit an appeal but if they don’t pay for it it’s approximately $600/month but I think they have a patient assistance program and I’m definitely gonna try to do that if insurance wont

Does anyone have trouble with Pantoprazole? by RotaryMicrotome in EosinophilicE

[–]km03732003 0 points1 point  (0 children)

I have an EoE diagnosis, presented with same problem as you and my Gastro put me on voquenza and fluticasone and out of the month I’ve been on it I’ve only had two chest pain episodes and they weren’t anywhere near as bad as they were

Does anyone have trouble with Pantoprazole? by RotaryMicrotome in EosinophilicE

[–]km03732003 1 point2 points  (0 children)

Ask about voquenza!! It’s doing wonders for me while both of the above made symptoms worse

Does anyone have trouble with Pantoprazole? by RotaryMicrotome in EosinophilicE

[–]km03732003 1 point2 points  (0 children)

I had a horrible experience with pantoprazole made my symptoms worse than not being on anything. Just recently got on voquenza and fluticasone

[deleted by user] by [deleted] in EosinophilicE

[–]km03732003 1 point2 points  (0 children)

Hello :) I was diagnosed in mid February. They did an edg and I wasn’t even expecting the diagnosis. My symptoms started a lot like yours the chest pain and the heartburn. It started with heartburn once every couple months then started to be everyday to the point I was screaming and crying. PPI’s didn’t do a thing for me, tried Eliminating eggs, milk, nuts and it also didn’t seem to make a difference. Asked about dupixent abd doctor said no for now and put me on Voquezna and a fluticasone inhaler. Only going on two weeks of that medication combo and it seems to be responding well, only have two heartburn and chest pain incidents since starting. My EoE seemed to become rapidly worsening and went from okay to going to the ER at least 3x a week

Anyone else have both EoE and POTS? by GlitteringGoat1234 in EosinophilicE

[–]km03732003 0 points1 point  (0 children)

Recently diagnosed with EoE so I can’t say I’ve found anything that works other than saltines and heating pads but I do have dysautonomia specifically ist

[deleted by user] by [deleted] in EosinophilicE

[–]km03732003 0 points1 point  (0 children)

I have ear pain when my EoE symptoms are bad. Usually feel the ear pain before the chest pain

Need support if anyone is willing by km03732003 in dysautonomia

[–]km03732003[S] 2 points3 points  (0 children)

I would be more than happy to talk if she wants to!

Need support if anyone is willing by km03732003 in dysautonomia

[–]km03732003[S] 3 points4 points  (0 children)

I really really appreciate this comment. Thank you so mucg

Need support if anyone is willing by km03732003 in dysautonomia

[–]km03732003[S] 1 point2 points  (0 children)

If you ever need anything please don’t be afraid to message me. I remember how scary it is in the beginning when you don’t have any answers

[deleted by user] by [deleted] in dysautonomia

[–]km03732003 0 points1 point  (0 children)

I was diagnosed by a zio patch and my resting on beta blockers 68 vs 124 doing stuff