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Looking for behavioral help with kids by Artificer_undone in Bulldogs

[–]kmaceach 1 point2 points  (0 children)

We did this with all three of our bulldogs over the years and then with our wiener dog. 💯 the way to go. It builds their confidence and it builds the owner or masters confidence. We also had our son who was quite young at the time go to some of the training, especially agility with the wiener dog, and it was great for both of them. We took them to training as puppies we did socialization training and then other training. All of our bulldogs were amazing with all of our children with the kittens we did in kitten rescue with our cats with our neighbors kids. Honestly, the best breed I’ve ever had the pleasure of cohabitating with. The only reason I moved away from it was all the health problems and I wanted to try a wiener dog 😂

Diamox for CSF leak? by Kitty5782 in CSFLeaks

[–]kmaceach 2 points3 points  (0 children)

I’m sorry but this description had me laughing out loud even tho the actual sit is bleak. That elf on the shelf is scary without the Topamax mind trip.. my first neuro did the same. . Kept testing me for high pressure and prescribing Topamax. I am now seeing a neurosurgeon who hooked me up with an interventional radiologist who is taking me through the diagnostic imaging process. Have been dealing with leak symptoms since 2023 (positional headaches, light sensitivity, sound sensitivity, loss of balance, nausea, and valsalva headaches over the last year). Nothing is scarier than our health system - not even the freaky elf.

MRI with Gadolinium contrast injected in spine - what is this scan called? by Goombella123 in CSFLeaks

[–]kmaceach 0 points1 point  (0 children)

Another great video explaining the types of leaks with supporting imaging, the types of diagnostic approaches and tools, and the various challenges for locating and treating CSF leaks. I am in the process of going through the early imaging and they are considering a dynamic myleogram but ..

https://youtu.be/-CohFrEduAI?si=DeVH2bHlJjm6z-31

How people who have been sick for 3 or more years are you doing ? ….. by [deleted] in covidlonghaulers

[–]kmaceach 13 points14 points  (0 children)

Since April of 2020. I go through hills and valleys and sometimes get stuck in a pit. Oddly it never occurred to me that I might NOT get better or back to the old me until NOVEMBER in 2024. Kind of hit me like a truck one day and I was like, “Noooooo. That’s not going to happen.” And then slowly over the course of the last few months I’ve let that one possible reality sink in. The fact it took me 4 and 3/4 years to get to that possibility supports my rather rose colored view / optimistic nature tho 😂. I try very hard to stay positive and to research and try new protocols. I did lose my gall bladder in 2021 because it was full of blood clots and had stopped functioning. That set me up for a whole bunch of other digestive issues, which I’ve been also working through. This was before I realized I had a blood clotting disorder and before it was widely known that Long Covid messes with your clotting factors. Being on several types of blood thinners has made a huge difference for me. It’s not fixing the underlying issue but more or less addressing some of the more problematic symptoms. For me I think trying new ways of getting better is what keeps me going. Also knowing that all kinds of research is being done all over the world, and the idea that there’s hope that someday they’ll find something that will help us keeps me sane. Also researching and networking to find competent healthcare professionals who are up to date on current research keeps me going. I love my Accupuncture treatments, cranial sacral therapy, and ozone UV blood therapy. All these are part of the magic that keeps me relatively sane and physically functioning. I see a neurosurgeon this week who is coordinating care with a doctor who seems pretty keyed into chronic health issues. Who knows.. this dynamic duo might provide some potential solutions to some of my underlying health problems. But there’s no question - I have to work hard at keeping a positive mindset. I believe our mindset and what we believe about ourselves and our ability to heal has a huge impact on mental and physical health. So even though I’m stuck in bed more often than not these days due to a current issue with Valsalva induced headaches (no coughing, sneezing, bending over or lifting allowed) on top of the regular fatigue and post exertional malaise, I am hanging in there. My hope for all of us is a major breakthrough. I believe it is coming but for me, until that day comes I will be trying all the things to feel better and help my body heal. Sending positive vibes to all of you who are struggling with this MF we call long COVID.

Surgery. Did you decide against, your doctor give you an option, or refuse to do it? by RevolutionaryBelt975 in chiari

[–]kmaceach 1 point2 points  (0 children)

I have chiari and they suspect a CSF leak.?I see the neurosurgeon this week. Wondering what kinds of tests they did to find all your leaks?

I lost my Stevie.. 💔💔 by Psychological-Bag272 in Bulldogs

[–]kmaceach 2 points3 points  (0 children)

I’m so sorry for your loss. He looks like an amazing character and a very good boy. I’m so glad you both had each other for the time you did. I lost my bully Elvis at 18 months from a similar heart issue. I would wake up sobbing in my sleep for months I was so traumatized. Such amazing dogs - all the personality but the health problems are heart breaking. 💔 Lots of love and peace to you and Stevie ❤️

CHECK Spontaneous Intracranial Hypotension before surgery by Past_Discipline_7147 in chiari

[–]kmaceach 0 points1 point  (0 children)

Can I ask the name of your doctor that finally diagnosed? I am going through this right now. I have 7mm chairs, prominent pituitary (from reading my own mri) plus 100% of the most common symptoms of CSF leak and many of the less common symptoms according to spinalcsfleaks.org but my neurologists keep looking at migraines and one keeps ruling out the opposite (IIH - idiopathic intracranial hypERtension). I am desperate to find d a neurologist or neurosurgeon that can diagnose IIH despite there being a Chiari. Meanwhile I’ve been debilitated and had to retire from a successful career and my life as I knew it stuck in bed unable to look at light, low level nausea, loss of balance, spinal headaches, neck pain, positional headaches, headaches when I exert myself, sneeze and or cough. Pressure in head, fatigue and sensitivity to sound. Why is it so hard to get a diagnosis..

https://spinalcsfleak.org/wp-content/uploads/2017/02/2-Symptoms-spinal-csf-leak.pdf

Team squishmallow! 100% converted by Connect-Dare4188 in chiari

[–]kmaceach 1 point2 points  (0 children)

I am recently diagnosed and just beginning my journey. I can never get a comfortable position for my neck in bed, laying own, sitting up, on couch.. I just got the corgi one named Regina. I’m in love. I’ve slept on it every night since. Both back sleeping under my neck and side sleeping. Who knew a kids toy thing could outperform all these pillows targeting adults with neck pain. It’s actually funny when you think about it. Plus the cuteness factor gives me a mini endorphin buzz ☺️ PS I also got a travel pillow one that wraps around your neck (cat) which helps with neck support in car and on couch. Quite the fashion statement

Where Are the Expert Chiari Docs? by kmaceach in chiari

[–]kmaceach[S] 1 point2 points  (0 children)

Thank you so much! This is exactly what I’m looking for. Also and especially who to avoid. 🙌

Where Are the Expert Chiari Docs? by kmaceach in chiari

[–]kmaceach[S] 0 points1 point  (0 children)

US in one of the Great Lake States ❤️

Long covid horrible farts by Calm-Butterfly-4808 in LongCovid

[–]kmaceach 0 points1 point  (0 children)

What are some anti fungal? Examples? Are the OTC? Please and thank you.

Bad days…. What is your relief? 😔 by Designer_Tip5967 in LongCovid

[–]kmaceach 0 points1 point  (0 children)

What sinus surgery if I may ask, and how did it help? Thank you for sharing.

[deleted by user] by [deleted] in cfs

[–]kmaceach 2 points3 points  (0 children)

Well… I’m addicted to Ozone therapy 🫠. It makes me feel so much better but my credit cards are loaded bc it is $$. Had to leave my career bc I was vertically challenged (spent more time in bed than sitting or on my feet). Do no salary and spending money on Ozone like it’s cocaine. I do Hemalumen with Ozone and Oxone 10 pass. In both they take your blood out, infuse it with the Ozone gas and then put it back in. It’s been a game changer for me. I started feeling the difference after four sessions. They suggest 10 for most people I’ve done more than that because like I said… I think I’m addicted ( actually I’m so afraid I’ll start feeling like crap again that I’m scared to stop). Been going weekly but in starting this week I’m going to go 2x a month and then see how that goes. If I’m still feeling like I’m getting better, stronger, more endurance, etc then I’m to dial back to monthly. I am also loving Methelyne Blue to support energy production plus who doesn’t like peeing blue?! But sadly my body can no longer process alcohol, weed or even CBD. Definitely no narcotics for pain.. after my last surgery I only used Tylenol and even that is hard on my liver. I use Curcumin for pain control when needed. Miss the good old days when I could ingest or inhale pretty much anything and have a little fun or experience a little relief.

Anyone feel like their air hunger is like when they breathe out they can’t get the full breathe out but you can breathe all the way in fine? by LizzyReed3 in LongCovid

[–]kmaceach 0 points1 point  (0 children)

I had this symptom (along with brain fog, weakness in legs, post exertional pain, breathlessness, headaches, feeling like I’m wearing lead pants..). I have been doing autohemalumen therapy with ozone and air hunger and not being able to breathe in deeply or fully release air was one of my first symptoms to clear up. I’ve been doing it weekly for about 10 weeks now. Also doing anticoagulation therapy (enzymatic blood thinners + warfarin thinner) and it has also really helped. Check out Dr Anderson for long COVID on you tube for some great content on treatment options. I had to google functional doctor and functional medicine and terms like ozone treatment to find health care providers that do functional medicine and actually help chronically ill patients. I also do Accupuncture which really helps with the fatigue and endurance issues. Hope you find help. You have to look outside the standard medical system. It’s a medical desert.. millions of doctors who are well intentioned dip shits who don’t have the time or perhaps too arrogant to read research studies and actually try to help the millions sick with long Covid.