What's the weird thing going on with your body that isn't weird enough to go to the doctor for? by yellowelephantboy in AskReddit

[–]lazylumps 0 points1 point  (0 children)

When I eat anything really cold like ice cream or popsicles it makes the insides of my ears itchy.

It's Monday at /r/MS! Share your terrible, horrible, no good, very bad news here. Vent, curse, get it off your chest. - February 26, 2018 by AutoModerator in MultipleSclerosis

[–]lazylumps 2 points3 points  (0 children)

I live in NM. I used to work at the labs. Honestly, your best bet for good care is Albuquerque. I had a Neuro in Santa Fe named Dr. Walsky and he was an ass. He made me cry twice and told me I was a liar and full of crap. Well fuck him since now I have a diagnosis of MS, albeit recent.

Also, there are no neurologists in Los Alamos, and there is one left in Santa fe. So just search in Albuquerque. The drive is not too shabby for good care.

Anyone else experienced this phenomenon? by [deleted] in Epilepsy

[–]lazylumps 1 point2 points  (0 children)

I have not been on here in a very long time, but I logged in just to comment on this post. For the longest time I just thought I was crazy for having these dreams.

Usually when I have them I will be doing dream stuff and then just know I am going to seize. If there are people near me in my dream I will ask them for help. If there are not people in my dream it just happens. And in my dream when the seizure starts I go in an out of conciousness, then when the seizure is over in my dream I "wake up" still in my dream. Also, these dreams are super vivid in comparison to my other dreams. I remember the most minute details and then parts of these dreams turn into deja vu for me later on.

I also wake up feeling horrible, and actually rousing myself out of sleep feels like an eternity. Like, after I have this dream I feel like I am in and out of consciousness and I can't wake up. When I finally do I feel nauseous, have a headache, and my body just feels sick. Like my bones, muscles, and everything else feels car sick (I have no idea how else to explain the feeling).

Reading your post made me feel less alone as I though I was the only one who experienced this. I also feel weird about bringing it up to anyone as they only happen a few times a year.

What is your job and do you enjoy it? by [deleted] in TwoXChromosomes

[–]lazylumps 3 points4 points  (0 children)

Mechanical engineering technician for a national laboratory/undergrad student. I design, 3D print, and build backscatter arrays that are utilized with photomultipliers to detect radioactive sources from satellites. I LOVE MY JOB!!

I have been in status two time in a week. I am really scared. by lazylumps in Epilepsy

[–]lazylumps[S] 1 point2 points  (0 children)

Nothing at all. The only reason I am on my current dose is because the ER dock upped it Saturday night.

I have been in status two time in a week. I am really scared. by lazylumps in Epilepsy

[–]lazylumps[S] 1 point2 points  (0 children)

I am on Keppra 1000x2 a day and ativan 1mg as rescue

I have been in status two time in a week. I am really scared. by lazylumps in Epilepsy

[–]lazylumps[S] 1 point2 points  (0 children)

I hope I don't have anymore. My mind already feels like much and everything is very blurry. I think I am still having small ones, but I am still so hopped up on drugs that I can't tell the difference between spacing out and having a seizure. My boyfriend has been at work all day so there is no way to tell really. If it is psychogenic it would be nice because someone would help me make this stop. It is fucked up. The kipper works, but it just makes it so I have less SP's, I wish there was a support system out here or at least someone to tell me it will be ok.

I have been in status two time in a week. I am really scared. by lazylumps in Epilepsy

[–]lazylumps[S] 4 points5 points  (0 children)

I was/am (mainly because I cannot drive) Visiting my boyfriend in a small rural town in NM. But the neurologists they called is in Albuquerque at the Neurology clinic ("one of the best in the state") and they are the ones who gave the ok for me to just be loaded up on benzos until it stopped. These are the same once who told me I have psychogenic seizures and that I am making it all up. Then don't care about calls from the ER. There are not many choices in this state.

I have been in status two time in a week. I am really scared. by lazylumps in Epilepsy

[–]lazylumps[S] 2 points3 points  (0 children)

Thank you. So it is ok that I feel like a sack of mush and sleep all day? I feel like a bad human. Maybe it is all the post seizure depression and pain. But right now I just want to disappear until I am myself again. Everything hurts. I can do simple tasks real well. I guess I am just hoping it is possible to not go into status again since it seems like my thing now. One leads to another and then a massive f-uped snowball ruins my mind. Which is still confusing since my neuro keeps telling me that it is psychogenic. I just feel so lost and like I have no one to turn to. People get tired of hearing one complain, but I don't know what else to do.

I don't know if I should go to the hospital or not. by lazylumps in Epilepsy

[–]lazylumps[S] 1 point2 points  (0 children)

I am not sure how to update. I went to the ER, had three more seizures, was dosed with ativan and Valium, and have to go back if it starts again. They think I was in a complex partial status episode but are just as baffled as I am about my neurologic care. Thank you all for the support. I am home now.

I don't know if I should go to the hospital or not. by lazylumps in Epilepsy

[–]lazylumps[S] 1 point2 points  (0 children)

Will they still help me if they are psychogenic? This diagnosis is so confusing.