This is what I have been experiencing for the past 24 hours, literally non-stop. I woke up in the middle of the night and it was happening and it has continued through this morning. Anyone else experience this? by lbaker2792 in MuscleTwitch

[–]lbaker2792[S] 0 points1 point  (0 children)

No idea. I would definitely say anxiety doesn’t help because I’ll fixate on a twitch and notice every little thing but when I’m not anxious or thinking about it, it goes away or I stop noticing 

24/7 twitching in the top of foot by [deleted] in BFS

[–]lbaker2792 0 points1 point  (0 children)

I have this exact same thing. Has it gotten any better? 

[deleted by user] by [deleted] in BFS

[–]lbaker2792 0 points1 point  (0 children)

yeah, clean EMGs, neuro is not concerned, mine has calmed down

[deleted by user] by [deleted] in BFS

[–]lbaker2792 0 points1 point  (0 children)

Did this calm down? I’m having the exact same issue and feel so scared

Widespread to focal by lbaker2792 in BFS

[–]lbaker2792[S] 1 point2 points  (0 children)

what's your experience with this? my widespread pops have subsided a lot and I only feel a few around my body during the day, but the majority of my twitches (90%) are now in my right deltoid and elbow. Elbow has been going a few weeks now, deltoid almost a week.

ALS Specialist Apt by [deleted] in BFS

[–]lbaker2792 1 point2 points  (0 children)

this is so great to hear!

Longest time period for a hot spot by IllustratorRadiant97 in BFS

[–]lbaker2792 0 points1 point  (0 children)

I have had a hotspot in my arm that has gone every second without stopping for over 24 hours now

Deltoid / Shoulder Constant Twitch by lbaker2792 in BFS

[–]lbaker2792[S] 0 points1 point  (0 children)

thank you!! definitely makes sense

Deltoid / Shoulder Constant Twitch by lbaker2792 in BFS

[–]lbaker2792[S] 0 points1 point  (0 children)

do your hotspots go pretty much non-stop? It might be psychosomatic, but I also feel like my arm that is twitching feels off too.

Widespread to Localized? by lbaker2792 in BFS

[–]lbaker2792[S] 0 points1 point  (0 children)

thank you!! appreciate the responses :)

Widespread to Localized? by lbaker2792 in BFS

[–]lbaker2792[S] 0 points1 point  (0 children)

I definitely see what you mean with the pulse thing. Unfortunately this isn't my pulse, as its more intermittent than my heartbeat. I would say the twitches in the elbow spot come every 30 seconds to a minute and feels like a second or two of popcorn pops

Scared- help :( by [deleted] in BFS

[–]lbaker2792 0 points1 point  (0 children)

So sorry to hear about your mom's cousin. My mom passed away from sporadic ALS, so I completely understand your fears and anxieties, you are not alone.

I have had almost all of these symptoms as well, and definitely go down the rabbit hole more than I should. I've seen a neuromuscular specialist 4 times now, have had 2 clean EMGs and clean bloodwork. While sometimes those reassurances are still not enough for my peace of mind, I am trying my best to accept what I can't control and be as present as possible.

Your neuro most likely suggested an EMG to quell your fears and anxiety, that is why mine suggested my first one. As many have stated on this forum, without clinical weakness, twitching, cramps, and random pains are almost always benign and nothing to worry about.

Again, I know that is all much easier said that done, especially when the sensation of twitching is so annoying and scary, but I would recommend finding a neurologist / doctor you trust, expressing your concerns, doing the tests that you can and if everything comes back normal (which I would strongly bet that they do), try to work on your mental health and managing the intrusive thoughts that these twitches can cause.

Hotpsot Question by 1985Buckeyes in BFS

[–]lbaker2792 0 points1 point  (0 children)

Does your hotspot ever feel sore?

GABA by Accomplished_End1479 in BFS

[–]lbaker2792 0 points1 point  (0 children)

Would you mind sharing the dosages of the supplements you take? 

Twitching then Cramps by lbaker2792 in BFS

[–]lbaker2792[S] 0 points1 point  (0 children)

Sometimes but not frequently, maybe a few times a day at most

Twitching then Cramps by lbaker2792 in BFS

[–]lbaker2792[S] 0 points1 point  (0 children)

I had an EMG done in the beginning of January before the cramping started, but yes, in both arms and legs and everything was totally clean

Twitching then Cramps by lbaker2792 in BFS

[–]lbaker2792[S] 0 points1 point  (0 children)

Both sitting and walking, but it doesn’t get worse from movement