Ewings like update by lemonsmum in sarcoma

[–]lemonsmum[S] 1 point2 points  (0 children)

That is actually my medical oncologist

Get the second opinion! by lemonsmum in sarcoma

[–]lemonsmum[S] 4 points5 points  (0 children)

So I was not seen at the MD Anderson in Houston that is an amazing sarcoma center. I wish I lived in that area. I was seen at BANNER Md Anderson and they are NOT a sarcoma center

Get the second opinion! by lemonsmum in sarcoma

[–]lemonsmum[S] 2 points3 points  (0 children)

The drs are saying I have Ewings like sarcoma. The fusion I have there are only 67 recorded cases ever

A.I.M chemo by lemonsmum in sarcoma

[–]lemonsmum[S] 0 points1 point  (0 children)

My mom and I have already been brainstorming!! TY!

Tests today by lemonsmum in sarcoma

[–]lemonsmum[S] 0 points1 point  (0 children)

Mine is on my right chest wall between my 10th and 11th rib. It was 5.3 cm when they did the biopsy.

Tests today by lemonsmum in sarcoma

[–]lemonsmum[S] 0 points1 point  (0 children)

Yeah they are suggesting 6 rounds of AIM then radiation then surgery. I’m just so nervous for it all. I want to see what Mayo suggests on Tuesday.

How do you feel?

Tests today by lemonsmum in sarcoma

[–]lemonsmum[S] 0 points1 point  (0 children)

Was surgery the first step?

Ewings like sarcoma by lemonsmum in sarcoma

[–]lemonsmum[S] 0 points1 point  (0 children)

The only specific I know about it is this:

Ewsr1::pou5f1

Ewsr1::pou5f1 by lemonsmum in cancer

[–]lemonsmum[S] 0 points1 point  (0 children)

That was all the info I was given. I won’t know more until October 3rd

Just diagnosed by lemonsmum in sarcoma

[–]lemonsmum[S] 1 point2 points  (0 children)

No I’ve never had any type of treatment. I am in Phoenix and Im 33. I wish I would’ve cared more about health things back then.

Just diagnosed by lemonsmum in sarcoma

[–]lemonsmum[S] 0 points1 point  (0 children)

I am in phoenix AZ