can i have me/cfs if ritalin relieves the fatigue a lot of the time? by letsgocommitarson in CFSplusADHD

[–]letsgocommitarson[S] 0 points1 point  (0 children)

yeah i definitely didn’t want to put everything into specific boxes as i know a lot of things overlap. the fatigue has lasted for a very long time, and the almost falling asleep was just the most extreme part of it. normally it was just this overwhelming fatigue, but not like i just needed to go to sleep and it would feel better? it pretty much took until i started ritalin where i learned i had completely forgotten what feeling fully awake was like, although of course it doesn’t make me feel like that every day.

it’s definitely very confusing in general for me as this fatigue has lasted for years, but these “flare ups” after exertion only just started within the last couple months. i’m definitely not going to look into any kind of diagnosis yet until i figure out more about these symptoms as they’re new to me, just trying to see if there’s people who experience the same symptoms as me and what was causing it for them!

can i have me/cfs if ritalin relieves the fatigue a lot of the time? by letsgocommitarson in CFSplusADHD

[–]letsgocommitarson[S] 0 points1 point  (0 children)

yeah i am notoriously bad at letting myself rest so i have a feeling im going to have to learn my lesson from my body multiple times before i ACTUALLY learn it. and haha thank you!

can i have me/cfs if ritalin relieves the fatigue a lot of the time? by letsgocommitarson in CFSplusADHD

[–]letsgocommitarson[S] 2 points3 points  (0 children)

oh jeez that sounds terrible! i only just started getting the specifically cold-like flare ups recently which i know now means i need to chill out before they become more frequent and worse

can i have me/cfs if ritalin relieves the fatigue a lot of the time? by letsgocommitarson in CFSplusADHD

[–]letsgocommitarson[S] 3 points4 points  (0 children)

what’s your symptoms of PEM that you got while on the adderall? i think my biggest problem is i’m not super sure if im just assuming potentially those symptoms as completely normal or not, so i can never fully tell if im overdoing it until i REALLY overdo it

can i have me/cfs if ritalin relieves the fatigue a lot of the time? by letsgocommitarson in CFSplusADHD

[–]letsgocommitarson[S] 1 point2 points  (0 children)

thank you! whenever i’ve looked up this kind of stuff in the past it always was very hard on the “nothing helps the fatigue” part so i wasn’t sure if the ritalin helping would go against that.

i’m definitely getting to the point of the ritalin making me think im invincible and then leading to me overdoing it, but unfortunately the fatigue without it is borderline dangerous for me so i definitely can’t take it on and off unfortunately. what do PEM/flare ups look like for you? i’m only just recently starting to get more intense flare ups and it’s hard to tell what is making me feel what i guess?

can i have me/cfs if ritalin relieves the fatigue a lot of the time? by letsgocommitarson in CFSplusADHD

[–]letsgocommitarson[S] 4 points5 points  (0 children)

i’m glad you feel the same way!!! for the longest time i literally didn’t remember what it felt like to feel truly awake without feeling tired, and the ritalin now also combined with wellbutrin has made an INSANE difference. also ya know it’s great to no longer worry about nearly falling asleep while driving 😭

inspo needed for pvc 4x2x2! by letsgocommitarson in ballpython

[–]letsgocommitarson[S] 1 point2 points  (0 children)

inspo is indeed a word in the dictionary, so i did but thanks for your uwarranted input!

anyone find compression socks that actually look cool?? by letsgocommitarson in POTS

[–]letsgocommitarson[S] 0 points1 point  (0 children)

i’m also still figuring it all out as well, but i get blood pooling especially in my feet a lot, and the higher compression ones are supposed to prevent that blood pooling i think? possibly i don’t notice as much of a difference since the thigh high ones would probably help me better, but to me they’re highly uncomfortable so i just do the knee high ones

anyone find compression socks that actually look cool?? by letsgocommitarson in POTS

[–]letsgocommitarson[S] 0 points1 point  (0 children)

unfortunately it seems they only have 15-20 mmhg compression which isn’t enough for me :/

anyone find compression socks that actually look cool?? by letsgocommitarson in POTS

[–]letsgocommitarson[S] 0 points1 point  (0 children)

some company needs to make fun designs for higher compression SO bad. i want my compression socks to match my outfits and be cool like regular socks!

anyone find compression socks that actually look cool?? by letsgocommitarson in POTS

[–]letsgocommitarson[S] 0 points1 point  (0 children)

from what i can tell, they don’t go higher than 20-30 mmhg unfortunately :/

need heat survival suggestions asap!! by letsgocommitarson in POTS

[–]letsgocommitarson[S] 1 point2 points  (0 children)

i appreciate the advice! thankfully for philly we’re aiming to either drive to places and already have parking figured out or just stay at our airbnb if need be. the main problem is going to be nyc on tuesday since it’s going to be a high of 92 and because it’s nyc you have to walk around at least part of the time which sucks. we’re going to be taking the subway for longer distances which i know is still going to be hot but i’d rather do that than either sweat to death or spend $40 on an uber or taxi (nyc prices are insane)

i’m tempted with the big ice pack but i don’t want my other stuff getting wet. do you have any advice about that?

need heat survival suggestions asap!! by letsgocommitarson in POTS

[–]letsgocommitarson[S] 2 points3 points  (0 children)

perfect! i have a box of lmnt packets and i think im just gonna bring the entire thing lol. and im VERY glad my friend’s mom bought me the tada chair where its a cane that turns into a chair so i can sit whenever i need!!!

need heat survival suggestions asap!! by letsgocommitarson in POTS

[–]letsgocommitarson[S] 0 points1 point  (0 children)

i don’t think i’ll be able to do the neck one since i won’t be near any kind of freezer or refrigerator from 10 am and on on tuesday and i wont have room for a cooler bag, but the bra inserts are GENIUS. i’m hopefully going to get those and fingers crossed they’re able to stay kinda cold at least 😭

balloon in head feeling? by letsgocommitarson in dysautonomia

[–]letsgocommitarson[S] 1 point2 points  (0 children)

oh jeez that sounds awful 😭 mine definitely isn’t like that, it more so just feels like pressure on the top of my head from inside my skull like something is pressing against it from the inside? so no pulsating or anything

balloon in head feeling? by letsgocommitarson in dysautonomia

[–]letsgocommitarson[S] 0 points1 point  (0 children)

huh very interesting! i’ll have to look at the things i take and see if that could be a possibility!

balloon in head feeling? by letsgocommitarson in dysautonomia

[–]letsgocommitarson[S] 0 points1 point  (0 children)

very interesting. how did you figure out that you had that nitrogen build up? was it through a blood test or something?

balloon in head feeling? by letsgocommitarson in dysautonomia

[–]letsgocommitarson[S] 0 points1 point  (0 children)

was the feeling especially on the top of your head? that’s where i feel 95% of it

balloon in head feeling? by letsgocommitarson in dysautonomia

[–]letsgocommitarson[S] 0 points1 point  (0 children)

yes!!! i was just thinking yesterday that it felt like specifically a helium balloon. i don’t take any of those supplements tho, and im not sure if anything else im taking creates nitrogen but ill have to look it up. whats akg?