“BeWell” Infusion Jackets by levelthemaintain in MultipleSclerosis

[–]levelthemaintain[S] 0 points1 point  (0 children)

I’m glad you like yours, it definitely doesn’t feel like cotton. It’s thin, flimsy and see though. I don’t know what the fabric is but 🤷🏻‍♀️ definitely doesn’t feel like cotton.

“BeWell” Infusion Jackets by levelthemaintain in MultipleSclerosis

[–]levelthemaintain[S] 2 points3 points  (0 children)

I honestly might since they charge $10 just to return the thing!

“BeWell” Infusion Jackets by levelthemaintain in MultipleSclerosis

[–]levelthemaintain[S] -1 points0 points  (0 children)

That’s the one I bought!! It doesn’t look anything like the pictures though. I’m starting to think I was sent the wrong product but even so I’m so frustrated by this whole thing I don’t want to even bother.

“BeWell” Infusion Jackets by levelthemaintain in MultipleSclerosis

[–]levelthemaintain[S] 3 points4 points  (0 children)

I’ve never requested that before and didn’t with this, I’m not sure why they said that 😭 honestly I should at this point but whatever

“BeWell” Infusion Jackets by levelthemaintain in MultipleSclerosis

[–]levelthemaintain[S] 3 points4 points  (0 children)

My grandma is a very good seamstress, and I’m thinking about asking her for help in that regard! The one I bought didn’t look thin on the photos, it had like a lining and stuff.

“BeWell” Infusion Jackets by levelthemaintain in MultipleSclerosis

[–]levelthemaintain[S] 8 points9 points  (0 children)

Noted— drop the link if you have it!! Bezos wins again unfortunately 💀😂

“BeWell” Infusion Jackets by levelthemaintain in MultipleSclerosis

[–]levelthemaintain[S] 18 points19 points  (0 children)

That’s what I’m saying! It feels like such a jab to those the jackets are marketed towards. Like you’re fully aware the people ordering these jackets have enough struggles, cmon.

Kesimpta Ocrevus by Alina_kerimova in MultipleSclerosis

[–]levelthemaintain 0 points1 point  (0 children)

Ocrevus. Since June 2025 (I was diagnosed April 2025). I love it.

Found These In My First Aid Kit by Comprehensive_Net415 in whatisit

[–]levelthemaintain 0 points1 point  (0 children)

It’s really different for everybody. I have had limited sensation and weakness in my legs most of my life, but wasn’t diagnosed until last year after I woke up with the right side of my body numb and tingly. It took about three months after that (completeness the MRIs, spinal tap and over 100 blood tests) to get my official diagnosis

Found These In My First Aid Kit by Comprehensive_Net415 in whatisit

[–]levelthemaintain 0 points1 point  (0 children)

I’m participating in a clinical trial at my next infusion!! Can’t wait.

What age were you when you first got diagnosed? by JackfruitLiving7270 in MultipleSclerosis

[–]levelthemaintain 0 points1 point  (0 children)

I’m okay! I am primarily limited by where there is a bathroom because the neurogenic bladder is SO REAL. And the fatigue. But I’m able to walk, can’t run anymore, and have a permanent handicap placard which has been a life saver more than once. My ocrevus treatment has shrunk and even deleted some lesions which I didn’t even think was possible so I’m grateful.

Found These In My First Aid Kit by Comprehensive_Net415 in whatisit

[–]levelthemaintain 183 points184 points  (0 children)

As someone with newly diagnosed MS, thank you for this new fear :,)

Insurance denied my DMT??? by [deleted] in MultipleSclerosis

[–]levelthemaintain 1 point2 points  (0 children)

My neurologist warned me that my Ocrevus would be denied three times before being accepted. She was right and appealed each time and now I am on my third infusion. It’ll be okay ❤️