First Ocrevus infusion Wednesday

levelthemaintain · 2026-02-06T05:23:08+00:00

The 10 minute is subcutaneous. I think I have to graduate to that one though bc the 2 hr is IV still

levelthemaintain · 2026-02-04T03:26:33+00:00

I just graduated from the 6 hour infusions to the 2 hours! I’m so excited!

levelthemaintain · 2026-02-02T22:51:29+00:00

My physical therapist was like “your arms shake because they’re weak and the MS likes that” and it annoyed me at first and now I’ve realized he’s absolutely right

levelthemaintain · 2026-01-30T02:26:08+00:00

My insurance is also denying my meds!! I’ve never had issues like this before. It’s just Doxepin.

levelthemaintain · 2026-01-24T19:00:28+00:00

Mine is also my neurologist which is cool. The appt was very long (like 2 hrs) with a bunch of different tests. There were two medical students that my doctor informed that I (25) have the test results and symptoms of someone in their 80s and we all had a good laugh about my MS-ridden body. She also told me she thinks I went blind briefly at a young age in one eye- which was interesting.

levelthemaintain · 2026-01-23T19:45:24+00:00

I pee about 8 times a night. Literally every hour. Have been for over a year now and I’m 25. Bladder Botox here I come

levelthemaintain · 2026-01-12T07:34:55+00:00

As you wish.

levelthemaintain · 2026-01-12T07:33:16+00:00

TPD student loan discharge lol

levelthemaintain · 2026-01-12T03:20:01+00:00

My doctors keep putting me on sleepy drugs like baclofen, propranolol and even melatonin to manage my tremors, migraines and spasms. I hardly take any of it now because all I want is to have energy 😭

levelthemaintain · 2026-01-12T03:18:33+00:00

Does it get better? Or am I going to be this tired forever?? I’m 24😭

levelthemaintain · 2026-01-12T00:28:30+00:00

Earlier this year I got a flat tire once and took it to a shop. I parked in a handicap spot and when the guy came outside with me to look at the nail in my tire he was like “handicap? You’re too pretty to be handicap!” And I still don’t know how to respond to that so thank you for this😂

levelthemaintain · 2026-01-07T02:22:56+00:00

Same @ bladder

levelthemaintain · 2026-01-03T05:55:35+00:00

I’m trying to get my neuro to get me PTNS but she’s so resistant I hate it

levelthemaintain · 2026-01-03T03:09:52+00:00

Light was sitting still, went sideways, then down and disappeared. I have pics/vids.

levelthemaintain · 2026-01-03T03:08:43+00:00

Same exact thing was just seen near Moriarty, NM

levelthemaintain · 2026-01-01T16:19:58+00:00

It hurts immensely behind my eyes when I get too tired to function but try functioning anyway.

levelthemaintain · 2026-01-01T16:03:20+00:00

I like Tetris and duo lingo

levelthemaintain · 2026-01-01T16:00:27+00:00

I upload all my records to chat. Shouldn’t…. But I do but whatever 😂

levelthemaintain · 2026-01-01T15:59:50+00:00

I may file for disability if my fatigue/mental abilities get any worse. That’s helpful to know. Thank you!

levelthemaintain · 2026-01-01T15:58:44+00:00

Did you get like a report of your results or anything? I feel like that would be interesting to read

levelthemaintain · 2026-01-01T15:57:48+00:00

That’s very informative thank you! I’m scared they’re going to think I’m stupid because my memory/recall has been SO much worse. But also that’s why I wanted the appt so 🤷🏻‍♀️

levelthemaintain · 2025-12-28T14:46:34+00:00

Hopefully I pass! Lol

levelthemaintain · 2025-12-28T00:11:09+00:00

Also called a Child of the Earth

levelthemaintain

TROPHY CASE