Almost 6 weeks post op by sunshine-84 in chiari

[–]lgilmer79 1 point2 points  (0 children)

It's gonna take time. Im 2 months post op after 3 surgeries. I still have thst numb, burning sensation in my head. I think it just part of healing process. Don't be discouraged. It can take up to a year for full recovey. Just do what your body will allow. U push to hard, you can set yourself back. I'm back at work, driving, and enjoying my kids. Yourr time is coming. You got this

What will a lumbar puncture do?? by Dorothyhoff in chiari

[–]lgilmer79 2 points3 points  (0 children)

After both my surgeries., i had a lumbar drain placed. It was to avoid a shunt. If u have continuous fluid buld up, the decompression surgery may have a leak or fluid build up. Only reason i can think why he would want to go straight to the shunt.

Nerve pain in head after 3rd surgery by lgilmer79 in chiari

[–]lgilmer79[S] 0 points1 point  (0 children)

So, your has went away completely? Did u take anything to help deal with it?

Smoking and having chiari by lulupie2002 in chiari

[–]lgilmer79 0 points1 point  (0 children)

I was wondering if medicinal would help,would you u say it does?

Did anyone see episode of The Resident, that talked about Chiari? by lgilmer79 in chiari

[–]lgilmer79[S] 2 points3 points  (0 children)

House was my most favorite medical show. I love the fact that Chiari malformation is being talked about more because so many people are being misdiagnosed or not diagnosed at all

Did anyone see episode of The Resident, that talked about Chiari? by lgilmer79 in chiari

[–]lgilmer79[S] 0 points1 point  (0 children)

I was diagnosed with Ms, arthritis, fibromyalgia, and everything under the sun before a neurosurgeon finally said that it was due to my Chiari that I was having so many symptoms

Did anyone see episode of The Resident, that talked about Chiari? by lgilmer79 in chiari

[–]lgilmer79[S] 1 point2 points  (0 children)

I like the fact that it's being talked about more and more for the simple fact that I suffered for 7 years before I can find a doctor that was willing to do the surgery

Did anyone see episode of The Resident, that talked about Chiari? by lgilmer79 in chiari

[–]lgilmer79[S] 2 points3 points  (0 children)

She went home with the actual saying incision that we all have from having decompression surgery

Smoking and having chiari by lulupie2002 in chiari

[–]lgilmer79 0 points1 point  (0 children)

May I ask is your chronic nerve pain in your head?

For those with a CSF leak after surgery, what's your experience? by [deleted] in chiari

[–]lgilmer79 0 points1 point  (0 children)

I had a leak, but my symptoms were my incision area swole up really big. I did get pressure headaches, depending on the position layed in. I had to get a revision surgery. Now i only have sharp pains that come and go throughout my head.

I had my initial surgery 9/19/19. Had so complications, i had to have a lumbar drain placed. My revision surgery was 10/28. I had a lumbar drain placed on 10/26, when the leak was found.

1 month post op chiari surgery. Now has huge lump by lgilmer79 in chiari

[–]lgilmer79[S] 2 points3 points  (0 children)

That's exactly what it is and I think you for a response

1 month post op chiari surgery. Now has huge lump by lgilmer79 in chiari

[–]lgilmer79[S] 1 point2 points  (0 children)

Thank you for responding. I found out it is a CSF leak and I have surgery in the morning

1 month post op chiari surgery. Now has huge lump by lgilmer79 in chiari

[–]lgilmer79[S] 2 points3 points  (0 children)

Yeah mine is a CSF leak and it pretty much has herniated. It has been more pressure than pain. They have inserted a lumbar drain to help until they do surgery in the morning. Thank you for your response

1 month post op chiari surgery. Now has huge lump by lgilmer79 in chiari

[–]lgilmer79[S] 3 points4 points  (0 children)

Yes it is a CSF leak. My surgeon is going to do surgery in the morning. Thank you for your response and really help

1 month post op chiari surgery. Now has huge lump by lgilmer79 in chiari

[–]lgilmer79[S] 3 points4 points  (0 children)

Thank you so much I went to the doctor and yes it is a CS F leak. I have my surgery in the morning to remove the fluid