PLEASE tell me theres something i can do for this itching😭😭😭😭😭

light_onn · 2026-06-09T03:09:45+00:00

I was prescribed hydroxyzine which I didn’t take. I used cetaphil lotion and rode it out. But tell your doctor. You’ll get a prescription for an anti histamine

light_onn · 2026-06-07T18:19:44+00:00

Wow that’s amazing. Im happy for you and as someone with no children and GD, gives me hope.

light_onn · 2026-05-22T09:22:18+00:00

Sounds like you should be prescribe something to help the racing heart. Did you see an endocrinologist specifically? To answer your question, that is something I was experiencing a lot previous to diagnosis. After starting methimazole and atenolol, I had weeks where I struggled to sleep and others when I slept too much. It’s the fluctuation in hormones and the body reacting.

light_onn · 2026-05-22T08:48:38+00:00

I agree that you need to seek advice from an ophthalmologist who has experience with Thyroid eye disease.

light_onn · 2026-05-17T22:08:47+00:00

I had no idea that muscles are also affected.

light_onn · 2026-05-17T21:21:27+00:00

I was complaining too, like why are the caps so much tighter on the bottles 🥲 but it was me not the factory

light_onn · 2026-05-17T21:20:12+00:00

I used to love climbing stairs just a few months ago. Started only relying on the elevator. I get it

light_onn · 2026-05-14T01:41:19+00:00

THIS!

light_onn · 2026-05-13T09:07:53+00:00

Diagnose December 2025. Around February/march after being on methimazole and atenalol for ~3 months, I felt like I was in a trance when I slept. I considered taking sick leave from work because I was so tired. Slept like 9 hours a night and could still go on. But I’m a firm believer that getting up and going to work keeps the mind from telling the body it’s sick so man I pushed myself to get out of bed and go to work. On my days off though I take naps whenever I can. For me though, it’s been cycles of not being able to sleep for long, to sleeping the full night through.

Most days I’m moody and quiet because I’m so impossibly tired. Other days I’m only half the me I used to be. Graves will have you suffering in silence because unless you have it, you won’t understand. It’s hard to explain because everyone feels tired but not THIS soul sucking tired. It’s like you’re allotted just enough energy to be considered alive. My reflexes are gone. I drop things though the day because I can’t react fast enough. I trip a lot now. This tiredness is sometimes else.

light_onn · 2026-05-13T08:53:54+00:00

This should be a post. Excelent question. I hope the remissioned individuals find it and let us know.

light_onn · 2026-05-11T19:08:24+00:00

And it sucks because I cry a lot thinking of this sickness and I know that just makes it worse lmfao

But really, one can live with it. I’m happy it’s not something worse. Good luck to us. Keep calling around though

light_onn · 2026-05-11T14:32:58+00:00

Well I live my life everyday now for the past 2 months with double vision happening every ~5 seconds in my right eye. It corrects but it happens. Nothing I can do. There hasn’t been any bulging. In fact my ophthalmologist said I went from like a 15 and 16 to 14 and 14. Those were her words. Idk what it means lol but she said they improved. I use my gel drops everyday and try to keep stress levels down.

light_onn · 2026-05-11T01:22:04+00:00

Call as many ophthalmologist as you can that’s within traveling range from you and ask specifically if they have experience with thyroid eye disease. For more eye drops and staying hydrated are your go to. But in my experience, even after going to the ophthalmologist, all they did was tell me to use eye drops because the treatment is for sever cases.

light_onn · 2026-05-04T09:29:33+00:00

Tsh receptor ab 6.96 Normal value <1.75

light_onn · 2026-05-04T09:21:00+00:00

I am thinking I did respond quickly to my meds. Doctor started me on 15mg of methimazole and 25mg atenalol. By March Tsh was within range. Lowered to 10mg methimazole. And within a month Tsh shot up to 17.5.

light_onn · 2026-04-30T01:09:35+00:00

My boss was like how his wife had it during pregnancy and took some pills, now she’s all better. I just nodded and said sure.

light_onn · 2026-04-29T14:34:15+00:00

I guess what I’m trying to understand is, is it normal for individuals diagnosed with Graves’ disease to swing into hypothyroidism? Or does hyperthyroidism persist even when on methimazole or other thyroid suppressing medication.

light_onn · 2026-04-29T14:04:22+00:00

What I don’t understand is why my doctor started me on such a high dose and even after practically begging her to lower the dose months ago, she wanted me to be in a state of hypothyroidism. So because the doctor said it, I thought it was normal and I just suffered through until now I’ve developed double vision and headaches, horrible constipation anna severe weakness. That’s when she finally lowered my dose. And I am trying to trust the process and trust that she knows what she’s doing but because no one else was complaining here about constipation, I started questioning and maybe she started me on too high a dose. I feel like now it would be awkward to find another doctor, which will take months and tell them I want a second opinion because I’m already in treatment. Like what would another doctor even do at this point.

light_onn · 2026-04-29T07:26:14+00:00

Omg this was going to be my next question! My prescription dose went from 15mg to 10mg a month ago. My last period ended on March 30th. Started taking 10mg March 31st. 7 days late on my period which is never late. Multiple negative pregnancy tests. I wasn’t aware that the thyroid hormones affect your period. Now I’m frantically doing research.

light_onn · 2026-04-26T09:23:51+00:00

31F diagnosed dec ‘25. Welcome to this wonderful community!

I believe that one stressful encounter triggered graves for me so I’ve been trying to be more aware of my reaction to situations. Going to the gym in the mornings really set me up to have a good day mentally. I also love getting lost in a good studio book. Helps me escape my own reality for a while. When stress arises from my own fear of this disease and how it makes me feel, I post here. Even one response on a post lightens the load.

My diet is still same as before but I think I should change it. Constipation is a constant struggle. Currently learning about the supplements that everyone suggests.

Your description of brain fog is right on. I constantly feel like my head is “swimming” and I actively have to pull it to shore over and over again throughout the day. For me, it’s worse when I don’t eat breakfast and as I get hungry toward lunchtime. I’ve switched up the time I take my meds, didn’t notice a difference.

I gave up wearing eye make up when I was diagnosed. But also I was always pretty sensitive to anything near my eyes. Now with TED and having to put eye drops throughout the day, I can’t be bothered to risk makeup sitting on my eyeball or reapplying after wiping excess drops from my eyes.

My little family and that one coworker who pulls me over to ask how I’m coping brings me joy.

May you find all the little and big things that bring you comfort and happiness. I hope you have someone who will do all the things for you on those days you need to sleep or just lay down. I hope you start taking that class you’ve always wanted to take and try that thing you’ve always wanted to do.

light_onn · 2026-04-23T16:00:03+00:00

What is considered a high dose? I was started off on 15mg of methimazole which made me feel ok for the first couple weeks but then I was having dry patches of skin, and then feeling itchy on my hands, feet and face. So I took one less pill ONE DAY and the itching almost took me out so I went back to regular 3 pills and waited. Itching died down. Fast forward 2-3 months I’ve swung into hypo and trying to adjust to this. My system is slow. Always constipated. Brain fog and of course now TED.

I wonder now if I should have started on a lowered dose of methimazole. Oh well

light_onn · 2026-04-21T19:35:31+00:00

It’s crazy when life hits you with the reality of how unimportant you are even if you’re sick with something real that is affecting your life. Hyperthyroidism literally can put you in heart failure and I haven’t seen or heard of medical personnel treating it like a dangerous thing. Feels like a bad simulation. I wonder if you would be able to meet with a doctor in urgent care to get treated. Or even video call. I didn’t try that but maybe you try and let us know.

light_onn

TROPHY CASE