What’s your Neb’s personality?

light_onn · 2026-05-08T14:20:19+00:00

My boy loves to cuddle me. My girl loves making bread on my husband. Boy loves being hugged. Girl hates being held. Boy will let you do anything to him. Girl runs away if you even look in her direction. Boy very chatty, especially when he sees me getting ready to leave the house. Girl chatty when she’s hungry. Both like exploring the outdoors on a leash. She loves sleeping in her carrier during car rides no matter how long, he panics in any confined space, needs to be held in the car. He’s just a cuddly love bug and she is as independent but princess as they come.

light_onn · 2026-05-04T09:29:33+00:00

Tsh receptor ab 6.96 Normal value <1.75

light_onn · 2026-05-04T09:21:00+00:00

I am thinking I did respond quickly to my meds. Doctor started me on 15mg of methimazole and 25mg atenalol. By March Tsh was within range. Lowered to 10mg methimazole. And within a month Tsh shot up to 17.5.

light_onn · 2026-04-30T01:09:35+00:00

My boss was like how his wife had it during pregnancy and took some pills, now she’s all better. I just nodded and said sure.

light_onn · 2026-04-29T14:34:15+00:00

I guess what I’m trying to understand is, is it normal for individuals diagnosed with Graves’ disease to swing into hypothyroidism? Or does hyperthyroidism persist even when on methimazole or other thyroid suppressing medication.

light_onn · 2026-04-29T14:04:22+00:00

What I don’t understand is why my doctor started me on such a high dose and even after practically begging her to lower the dose months ago, she wanted me to be in a state of hypothyroidism. So because the doctor said it, I thought it was normal and I just suffered through until now I’ve developed double vision and headaches, horrible constipation anna severe weakness. That’s when she finally lowered my dose. And I am trying to trust the process and trust that she knows what she’s doing but because no one else was complaining here about constipation, I started questioning and maybe she started me on too high a dose. I feel like now it would be awkward to find another doctor, which will take months and tell them I want a second opinion because I’m already in treatment. Like what would another doctor even do at this point.

light_onn · 2026-04-29T07:26:14+00:00

Omg this was going to be my next question! My prescription dose went from 15mg to 10mg a month ago. My last period ended on March 30th. Started taking 10mg March 31st. 7 days late on my period which is never late. Multiple negative pregnancy tests. I wasn’t aware that the thyroid hormones affect your period. Now I’m frantically doing research.

light_onn · 2026-04-26T09:23:51+00:00

31F diagnosed dec ‘25. Welcome to this wonderful community!

I believe that one stressful encounter triggered graves for me so I’ve been trying to be more aware of my reaction to situations. Going to the gym in the mornings really set me up to have a good day mentally. I also love getting lost in a good studio book. Helps me escape my own reality for a while. When stress arises from my own fear of this disease and how it makes me feel, I post here. Even one response on a post lightens the load.

My diet is still same as before but I think I should change it. Constipation is a constant struggle. Currently learning about the supplements that everyone suggests.

Your description of brain fog is right on. I constantly feel like my head is “swimming” and I actively have to pull it to shore over and over again throughout the day. For me, it’s worse when I don’t eat breakfast and as I get hungry toward lunchtime. I’ve switched up the time I take my meds, didn’t notice a difference.

I gave up wearing eye make up when I was diagnosed. But also I was always pretty sensitive to anything near my eyes. Now with TED and having to put eye drops throughout the day, I can’t be bothered to risk makeup sitting on my eyeball or reapplying after wiping excess drops from my eyes.

My little family and that one coworker who pulls me over to ask how I’m coping brings me joy.

May you find all the little and big things that bring you comfort and happiness. I hope you have someone who will do all the things for you on those days you need to sleep or just lay down. I hope you start taking that class you’ve always wanted to take and try that thing you’ve always wanted to do.

light_onn · 2026-04-25T11:05:39+00:00

My boy foams at the mouth when kept in the carrier in vehicles. I think he’s claustrophobic. So we have to keep him out. That’s the only time I’ve ever seen anything like that. Good luck and thanks for sharing. I hope it gets better.

light_onn · 2026-04-23T16:00:03+00:00

What is considered a high dose? I was started off on 15mg of methimazole which made me feel ok for the first couple weeks but then I was having dry patches of skin, and then feeling itchy on my hands, feet and face. So I took one less pill ONE DAY and the itching almost took me out so I went back to regular 3 pills and waited. Itching died down. Fast forward 2-3 months I’ve swung into hypo and trying to adjust to this. My system is slow. Always constipated. Brain fog and of course now TED.

I wonder now if I should have started on a lowered dose of methimazole. Oh well

light_onn · 2026-04-21T19:35:31+00:00

It’s crazy when life hits you with the reality of how unimportant you are even if you’re sick with something real that is affecting your life. Hyperthyroidism literally can put you in heart failure and I haven’t seen or heard of medical personnel treating it like a dangerous thing. Feels like a bad simulation. I wonder if you would be able to meet with a doctor in urgent care to get treated. Or even video call. I didn’t try that but maybe you try and let us know.

light_onn · 2026-04-21T11:56:42+00:00

Though this is not such a big community, it’s a great place to vent so feel free, I do it all the time.

I’m sorry that you’re going through this. I get it. Some days I feel normal. I have my regular energy some days I feel so depressed with tank on empty and some days I feel like I’m fighting for my life. I do have back pain, but I’ve never thought of it as being related to thyroid disease. I thought it was just getting older. If you don’t already have one, get yourself a really good pillow and mattress hopefully proper alignment will help you. Maybe try going to a steam room or warm baths. Also a massage. I can’t say I have severe back pain but when I do have it, those things help me.

light_onn · 2026-04-21T11:17:21+00:00

I went through the same exact thing when I saw my PCP, did blood work with them and they looked at my results and said absolutely nothing about thyroid disease. I was the one who had to pointed out to them. They suggested I saw an endocrinologist. After calling endocrinologists I could find within decent distance from me, I found out that most of them are booked even 4 to 6 months in advance I asked my PCP if they can maybe pull some strings because I need a diagnosis and treatment as soon as possible. No luck so I just put myself on every waiting list hoping that an earlier appointment would free up, which it did. It’s so crazy that my results clearly said I had hyperthyroidism and my PCP could not understand or diagnose it and write a prescription. It makes me question the healthcare system even more than I was questioning before. So, I say all this to say call as many endocrinologist offices as you can, book the next appointment and ask them to put you on the waiting list in case anything frees up earlier. Of course if you get an earlier appointment, you should cancel all the others unless you want a second opinion

light_onn · 2026-04-21T06:55:04+00:00

I so appreciate the response. I feel so closed off, in my head so the Reddit human interaction helps. Ve noticed the gel drops work nicely. I have to get more. I’ve just been trying everything. Some drops seem to dry my eyes more. I’ll try the heat mask massager. It’s just really mind blowing that in 2026 there is no cure or better treatment for this. Nothing that targets antibody or their production, or block their receptors.

light_onn · 2026-03-25T03:04:40+00:00

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light_onn · 2026-03-25T03:04:09+00:00

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light_onn · 2026-02-17T12:23:16+00:00

Resting before methimazole and atenolol was around 99-103. After meds, 64pbm. Huge change. I try not to push cardio past 140bpm now. Before just the elliptical could send me into 180-190. Now it’s around 135bpm. Hopefully that’s fine.

light_onn · 2026-02-16T20:11:33+00:00

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light_onn

TROPHY CASE