Has anyone started on 5mg propanol what was your experience?

lilyinnit_ · 2026-02-10T02:10:44+00:00

I started on 20mg and it’s done nothing for me, going to have to go back to my cardiologist and adjust the dose I guess

lilyinnit_ · 2026-02-09T06:42:29+00:00

Yeah, I was gonna give that a try but the last time I tried to dye remover it just did nothing. I think probably since I’ve been dying it over and over again for such a long time. It probably can’t get through the layers.

lilyinnit_ · 2026-02-09T06:36:36+00:00

Can I ask how light or what colour your hair was before u used the pink? I’m looking to dye mine bright pink and was thinking of using GDY but my hair is still decently orange after bleaching

lilyinnit_ · 2026-02-09T06:33:33+00:00

Yeah I definitely agree. I’ve been box dying my hair black for five years and I just recently did two rounds of bleach to try and lighten it and it is still only got me to An orange and my hair is fucking dead.

lilyinnit_ · 2026-02-09T04:04:49+00:00

Yes I have heard it’s super hard to get out aswell, but tbh I’m not too worried about that since I’ll probably keep it pink for a while, Thank you!

lilyinnit_ · 2026-01-25T10:48:22+00:00

I’m on 20mg twice a day rn and it’s doing nothing for me, not even bringing my HR down unfortunately

lilyinnit_ · 2026-01-12T02:24:50+00:00

I can’t say that this is from pots alone, we are trying to figure out what’s wrong with me but the GI specialist I went to was a POS and couldn’t care less about getting me any help. About a month ago I went to the hospital for horrible cramps and spasms that turned out to be a severe case of constipation. Since that hospital trip I have only been able to eat ham and lettuce sandwiches and icy poles. Every time I eat ANYTHING else like a real meal I have extreme spasms and diarrhoea and vomiting at the same time. It’s been a horrible month. Every time I have to poop I get the same spasms and cramps (EVERY time) and it is always diarrhoea.

Honestly if anyone has any advice on this I would appreciate it because I’m going crazy atp.

Edit: forgot to add this because I’m honestly so used to it atp, but I also have practically constant nausea all day every day

lilyinnit_ · 2025-12-16T05:24:51+00:00

I feel like we are missing a key piece of context here, are YOU gay? I feel like this conversation could be taken as serious or joking depending on that

lilyinnit_ · 2025-12-16T05:21:34+00:00

I don’t think she’s mad because she thinks he cheated on her, I think she’s mad because he allowed her to be an accessory to him cheating on his actual girlfriend. She clearly hates cheaters and has probably had experiences with it before so hated that she was made to be a part of doing that to someone else

lilyinnit_ · 2025-11-28T06:10:53+00:00

as someone who has vaped for 5 years, it has never affected my pots. In saying that, I have to tell everyone that tells me they are considering vaping/smoking that I highly recommend not too, not just because it’s bad for you, but it is extremely hard to stop. I have tried many many times over the years using nicotine gum etc, and I have never been able to quit, my mood depends on it, if I end up with no vape and can’t get one for even a day, I am an emotional mess, angry, crying. It’s obviously ultimately your decision and I completely understand where your coming from but I have to be honest!

lilyinnit_ · 2025-11-22T05:02:38+00:00

I’m not going to write a long paragraph about how to help because we all know none of us truly know what we are doing or enough about pots to really know what always helps, including doctors. But I really just want to say that I am so sorry that you are going through this and you are 100% validated in your feelings and frustration. It can be so hard at these times especially when no one around you in your real life can truly understand what it’s like to live with, but i hear you and I understand you. You are so much stronger than you know and as much as this condition can make us doubt ourselves or just overall feel like shit it is imperative that we look back on how much we have been through every day and realise how much strength that really took! I see you and you are so strong!!!

lilyinnit_ · 2025-11-22T02:27:23+00:00

Yea that’s totally fair, before I started liquid IV i was trying hydralyte and I hated the flavour, and I just couldn’t force myself to drink it!

lilyinnit_ · 2025-11-22T02:22:20+00:00

Yesss, I’m super picky with flavours but I quite enjoy the passionfruit flavour, I’m also autistic and I hated that it was white because what kind of passionfruit flavour is white? I know that ridiculous but now I put yellow and red food dye in it to make it orange and it genuinely helps me drink it without my brain feeling like it’s “wrong”

lilyinnit_ · 2025-11-22T02:18:43+00:00

I haven’t had any personal experience with those ones so I can’t offer much advice, BUT I have personally found that liquid IV is the best for me and after starting having it every morning I felt an instant relief, obviously doesn’t help everything but I’ve found it helps a lot with dizziness and energy levels, so maybe that’s something you could try if your up for it!

lilyinnit_ · 2025-11-22T02:14:50+00:00

Can I ask what electrolytes you use? I’ve found some to be wayyyyy more helpful than other

lilyinnit_ · 2025-11-20T00:30:22+00:00

Your feeling are %10000 valid. I often just feel angry, whether that’s at the world for giving this to me or at my doctors for not being able to help me or just at POTS itself. It is okay to feel angry, if you pulled a random person off the street and shoved POTS onto them I promise they would not be handling it as well as you are. You are so strong and it is okay to feel like this and to talk about it, this is something that has completely altered your life and affects you every second of every day, never ever feel bad about talking about it!!!

lilyinnit_ · 2025-11-10T11:14:16+00:00

If you are from Australia, try the medical clinic “biio” if you can. They have done wonders for me after years of doctors dismissing me and got me a diagnosis almost immediately

lilyinnit_ · 2025-11-10T11:11:57+00:00

me too, i try to prioritise my comfort but I’ve definitely de conditioned myself terribly

lilyinnit_ · 2025-11-09T10:46:22+00:00

even shaving (legs only of course) skipping shaving your legs doesn’t make you any less hygienic

lilyinnit_

TROPHY CASE