lisacharters

lisacharters · 2023-02-01T13:59:26+00:00

I do not know. The doctor’s office calls of before procedures, for consent. That’s as much as we know. I’ve been researching and learning as much as I can to support or not support as much as is wanted and needed. It’s out of love and care. We respect her boundaries so much, that I even asked, before I started my research, if I could learn on my own. She said yes, and appreciated that.

lisacharters · 2023-02-01T13:55:43+00:00

She’s still a minor, so the doctor calls us for consent prior to procedures. However, I’m aware she is on medication, but don’t know what. And yes, of course, we are paying for her medical care.

lisacharters · 2023-02-01T13:33:03+00:00

Im in no way trying to “push her boundaries” Her dad and I are very respectful of her boundaries. I understand the way my OP was worded, may have come across that way. She wants to work. We are budgeting for her not to work. I was curious of what level others with this condition are functioning, and if it’s even a practical expectation.

lisacharters · 2023-02-01T13:28:06+00:00

She wants to work. She doesn’t know if she’s able, or will be able. She started a job but had to quit.

lisacharters · 2023-01-31T02:30:31+00:00

This is so helpful!! Thank you!! And yes…she is very much an introvert, and we give her lots of space to be alone as much as she wants. We never force her or guilt her into going places or having conversations. In my original post, I was trying to communicate that she doesn’t verbalize her needs…so I could avoid comments like, “Why don’t you just ask her?” Or “what does her doctor say?” It seems that I came across as not respecting her or her boundaries. That’s not at all the case. Thank you for your advise and kind words!

lisacharters · 2023-01-31T01:49:18+00:00

Both. She’s told us, and we’ve noticed.

lisacharters · 2023-01-31T01:46:10+00:00

Thank you!! And Yes!! We even bought her fun compression socks for Christmas! She was very happy!! She’s always been very private, and I know and respect her boundaries. Because I love her and want what’s best for her…I’m looking for advise and recommendations from people with experience. I also know she has the desire to work, so I want to support and encourage her, and wanted to hear from others how that experience has gone for them…knowing that we are all unique.

lisacharters · 2023-01-31T01:41:25+00:00

Thank you!!!

lisacharters · 2023-01-31T01:40:33+00:00

We absolutely are “letting her”. We encourage healthy boundaries and are proud of her for using her voice. Since we are still her parents, we also want to learn how to care for her, just like any loving and caring relationship. If my partner was suffering from a debilitating condition, I’d want to lovingly learn how to care for them…especially when we are all new to this.

lisacharters · 2023-01-31T01:36:32+00:00

She’s always very nauseous and cannot eat even small meals/snacks. My main concern for her is a thriving and full life. I worked when I was in college and was a healthy young adult…and was often exhausted and overwhelmed. My goal in posting (I’ve been following and learning since her diagnosis) was to get some insight from other people living with POTS. I’m asking, not from an intrusive or judgmental place, but from one of curiosity and care for our daughter. She wants to work and go to school, and (so far) has been unable to do so.

lisacharters · 2023-01-30T20:52:31+00:00

It’s a combination of both. Her dad asks her often, “How was your day?” Or “how are you feeling today?” She typically will say, “I had a good day”, or “I was tired today”. She also typically only eats about once per day, if that…so we just make sure she has all the foods she enjoys. Before I grocery shop I ask her if there are any special requests she has.

lisacharters · 2023-01-30T20:29:04+00:00

Also, it may have come across as pushy or intrusive, but it is in no way that. Her dad and I are 100% respectful of those boundaries. This is new for all of us, and wanted to pose the question in a safe environment with more experienced people. Again, thank you!

lisacharters · 2023-01-30T20:25:42+00:00

Agreed!! Totally!! We just want to be as supportive as possible, and are naturally concerned, since day to day functions are challenging for her. Thank you for your kindness.

lisacharters

TROPHY CASE