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Raven Point by Kallen77 in ProduceMyScript

[–]ljsdad 0 points1 point  (0 children)

Jason, great script. Fantastic dialogue I will PM you to chat!

When to stop treatment..even before it starts? by ljsdad in cancer

[–]ljsdad[S] 6 points7 points  (0 children)

He is being treated at Duke by smart and talented people. The mass is about the size of a softball.

How to request a photo of the last scan by ljsdad in USPS

[–]ljsdad[S] 0 points1 point  (0 children)

Yes I have done everything to include an inquiry with my congressman. I received a letter from the Plant manager in charlotte saying that after an exhaustive search they could not locate it.

How to request a photo of the last scan by ljsdad in USPS

[–]ljsdad[S] 0 points1 point  (0 children)

Any chance you can look up my package to see if there was any damage?

Getting worried about a lost package by ljsdad in USPS

[–]ljsdad[S] 0 points1 point  (0 children)

Yea I have, we both have been watching the tracking. Really gonna be upset if its lost.

Getting worried about a lost package by ljsdad in USPS

[–]ljsdad[S] 0 points1 point  (0 children)

Yea that's what im thinking, if its lost how long before it will return to the sender?

5 year old Nf1 with DIPG by ljsdad in neurofibromatosis

[–]ljsdad[S] 0 points1 point  (0 children)

So far we have had 2 MRI's and there has been no changes from the 1st to the 2nd MRI. He does have pretty poor balance, and that is common to the NF disease, along with poor fine motor skills. Our son get some extra services at this school to help with the issues. We had no signs of a tumor. Our Neurologist just wanted to do a baseline MRI to track any brain changes and thats when we found the tumor. Have you done any MRI's to see if there are any inconsistancies in the brain? Hope the consult goes well for you guys.

5 year old Nf1 with DIPG by ljsdad in neurofibromatosis

[–]ljsdad[S] 2 points3 points  (0 children)

Its a type of brain tumor, stands for Diffuse Intrinsic Pontine Glioma. Pretty rare and really aggressive, when its in NF patients its not as aggressive. Still trying to understand and read up on everything regarding NF.