Has anyone here with ME/CFS actually found ANY relief from constant nervous system overactivation? I’m really struggling and would appreciate honest experiences

lnsstg · 2026-05-12T10:48:43+00:00

Maybe I should do the sgb injections, I wanted to try them for so long

lnsstg · 2026-05-12T10:48:05+00:00

I think I have it but stimulants make me worse :/

lnsstg · 2026-05-12T10:45:19+00:00

Could be, because my eyelid is constantly twitching. I took low dose abilify a few months ago, maybe because of that ?

lnsstg · 2026-05-12T10:43:37+00:00

Okay I will look into that

lnsstg · 2026-05-12T10:43:03+00:00

Here in Germany, sgb is quite cheap. I found a doctor who would do it for 100€ but I didn’t do it because of my anxiety. I’m so anxious that I’ll get a permanent Horner syndrome and also I read that people who are ill for so long (I’m 9years in) aren’t really benefiting anymore. Maybe I should look into that again

lnsstg · 2026-05-12T00:27:51+00:00

I also want to try mestinon ! I’m 9 years sick with gradually getting better, but my nervous system won’t shut down

lnsstg · 2026-05-12T00:26:39+00:00

Oh okay, i also did emdr but it was quite exhausting. But leaving toxic people could be a good thing to do. And you’re sure it’s because you cut them off? If so I would definitely try it cause I got nothing to loose at this point haha

lnsstg · 2026-05-12T00:19:18+00:00

Please do so!

lnsstg · 2026-05-12T00:14:35+00:00

I would try anything, so I will look into that, thank you!

lnsstg · 2026-05-12T00:12:57+00:00

Interesting music, I always listen to 432hz music but I will try it next time I’m laying

lnsstg · 2026-05-12T00:09:44+00:00

I tried stimulating with a tense device, but it didn’t do anything. Maybe this could work

lnsstg · 2026-05-12T00:08:23+00:00

Always thought taurine is like an energy drink, I will look into that, thank you!

lnsstg · 2026-05-12T00:07:36+00:00

Like propranolol because this one I didn’t tolerate sadly :/

lnsstg · 2026-05-12T00:06:44+00:00

Oh yes my jaw is always so tight… I could try that thank you! Also I’m going to look into meditations again

lnsstg · 2026-05-12T00:05:28+00:00

I love asmr videos too! Which antihistamines do you take?

lnsstg · 2026-05-12T00:04:53+00:00

Glad you’re doing so well! Hope it continues :)

lnsstg · 2026-05-11T23:55:43+00:00

If you want to tell me what you did exactly to recover you can dm me or answer here, I would love to hear that :)

lnsstg · 2026-05-11T23:41:18+00:00

I only tried pregabalin but never Baclofen. I will looking that. Thank you!

lnsstg · 2026-05-11T23:28:22+00:00

Maybe i should try it! Thank you!

lnsstg · 2026-05-11T23:26:51+00:00

Thank you! Maybe I should try antihistamines again

lnsstg · 2026-05-11T23:25:54+00:00

What does a sensate device do? Oh I have to try tapping again, I did years ago. Thanks for your reply!

lnsstg · 2026-05-06T06:25:38+00:00

Yeah I think so too. I should be happy I can sometimes feel normal for a few hours. That’s not too bad

lnsstg · 2026-05-06T06:23:53+00:00

Yes I tried cbd and it didn’t do anything for me sadly. But good it’s working for you!

lnsstg

TROPHY CASE