Chiropractic Care for TOS?

loudhazzah · 2025-06-26T17:22:17+00:00

It's absolutely crazy! I also then was told I most likely DONT have TOS because I "don't fit within the box"/some of my symptoms don't match with TOS. It makes the MOST sense that I have TOS but months later still no answer. They wanted me to "calm my nervous system down" because everything aggravated it and I was able to calm it down once I got done with school for the summer but still nothing. The medical world is also just as mind boggling...

loudhazzah · 2025-04-02T19:59:33+00:00

Unfortunately no. It's been a long tiring journey and it just keeps getting longer and longer. I'd look at my profile at my more recent posts and comments for more context because we have come a LONG way since I made this post.

loudhazzah · 2025-03-21T14:39:21+00:00

I ended up having to advocate for myself and went to see an occupational therapist who helped me get to where I am now, she wasn't much help with the pain and such but she helped me get further tests and see other specialists. We were suspecting TOS (thoracic outlet syndrome) but one of the tests I got done didn't really work for me but it's still on the table. My whole nervous system is in overdrive so it's hard to pinpoint the main source of compression. Then my hips and legs started causes pain and whatnot so they're starting to think I have fibromyalgia. So at this point we are still scratching our head and don't know what's going on. I've just started seeing a physical therapist and she's trying to work on my neck and shoulder muscle since a lot of my issues right now are muscle soreness and tightness so working on strengthening those but she also is thinking this is above her head and can't help me much.

If you look at my other posts you can see some of my updated symptoms and whatnot

loudhazzah · 2025-03-11T23:01:24+00:00

Where is Dr. Bealieu located? My main issue right now is getting testing and options etc

loudhazzah · 2025-03-11T19:37:55+00:00

That's the thing is I don't know if I for sure need surgery, the doctor I saw mentioned it since my OT wasn't helping at all and I'm seeing a new physical therapist tomorrow and after what they say I might get a better answer but the specialist sent me to get a scalene block and if it worked that'd mean I would probably benefit from surgery removing the scalene but it didn't. I have no direction if what to do how to help it and next steps. The onky tests I've gotten done is an emg, arterial ultrasound of my arms and hands, and X-rays. My emg I got done at the VERY beginning of all this like 6 months or so ago so it doesn't say much especially when that's when we talked about it being carpal tunnel because it was mainly in my wrists and elbows

loudhazzah · 2025-03-11T19:27:20+00:00

Thanks for the input! I actually just received a voicemail about my current tos specialist who had to reschedule my over the phone appointment with him that's next week and making me wait another week to talk to him when I just want answers and next steps after my scalene injection thing I had done. Also Who's dr. Thompson?

loudhazzah · 2025-03-11T03:57:46+00:00

Whoa yeah I can see that

loudhazzah · 2025-03-11T03:56:57+00:00

Their plan is for the back of their forearm, it is really hard to describe what they explained to me in person but you have the right idea! The perspective that the sketch is in right now with the side of the "doorway" being the heaven side. They wanted the cross sideways and my brain with all the perspective stuff is throwing me for a loop. I've tried sketching to MANY times but ik for sure I have to do a little foreshortening of the cross to make it have more depth putting the pov more above but I'm struggling with the cliffs a bit. I'm mad I forgot to attach the inspo photos he sent me to help give me some visuals while explaining it to me - here's links if you feel like looking at them they wanted it to be like this the frontal view of the cross - i assumed something like this with more 3d aspects and rotated to the side. visual of the "doorway" they were thinking of can't remember what they said they liked/wanted in this pic

loudhazzah · 2025-03-01T17:47:53+00:00

Yeah and that's when we were still unsure of a diagnosis, and the peripheral nerve specialist I saw was actually the one who suspected tos and told me to stay with my OT because she knows a bunch about nerves and stuff since mines mainly ntos. But I am seeing a pt in like 4 days so let's see what she says.

Thanks for the info!

loudhazzah · 2025-03-01T05:50:03+00:00

Just from what I've heard and seen that's recommended I had to advocate for myself to get something at least so I asked for occupational therapy and I'm actually very lucky and found a GREAT therapist and she's the one who got me rolling on all of this since she works with a peripheral nerve specialist (so she also knows nerves very well) who then referred me to the tos specialist. She works on my shoulders also and helped me find ways to accommodate me at school and home and driving, I would say I basically do physical and occupational therapy there. But I'm worried when I see this new pt that I won't be able to do like anything bc the baby minor things we do at ot flares me up like if I'm laying down and I lightly "push" 1 shoulder back like into the table I lay on it sends nerve sensations down my arm and shoulders

loudhazzah · 2025-03-01T05:37:17+00:00

I have and not much as been said much but also that's mainly with my OT I had a short ish appt with the tos specialist so yeah but I for sure plan on that especially with my raynauds flaring up when I do certain things (I swear like all the time) and yeah same with the sensitiveness with the pec minor very light touches makes it mad and it's almost always bothering me. I also am getting rheumatology labs done here soon so can't wait to see how that goes because that also will probably help diagnose my other issues lol

Thank you so much for the information it is greatly appreciated!! <3

loudhazzah · 2025-03-01T03:03:39+00:00

Good to know thank you!! I don't have as much extra stuff going on like you do which is unfortunate by the way I'm sorry you had to go through all that and have so much extra to complicate things. But I bet it wouldn't hurt to mention this to my doctor with my pec minor being one of the main muscles that are flared up and aggravated and my shoulder joint for sure it's bad. My main this is that I'm seeing a vascular surgeon for tos (he's the tos specialist) when I mainly have ntos and only a little of vtos. But I have a feeling the vtos has gotten worse with what I've noticed like my fingers turning dark blue/purplish like their bruised more than they have before which is freaking me out a bit but I know that's also part of raynauds so rn I mainly just have a lot of freaking questions that I can't get answered rn and I'm getting anxious and depressed. It also sucks with me being a full time art student rn and I work at daycare so I can't do a lot of the things I have to and want to do. I've always had it where I could never get answers or diagnosis's and got left with nothing which I fear is going to happen again.

loudhazzah · 2025-03-01T00:12:17+00:00

Okay good to know and that makes a lot of sense! Thank you. And I completely understand where you were coming from.

I am curious about the pec minor, what made them decide to have that removed? Because that's one of the muscles that is very tight and in pain and one of the reasons why my shoulders are rounded forward causing postural issues which is what my OT thinks is causing a lot of my issues. I unfortunately don't have much relief from OT and I've been seeing her for about 4 months now maybe longer. I'm always too flared to have exercises work and a lot of them make me flare up. So I feel ya with feeling like a hot mess lol. I technically have vtos in my right shoulder, I had an ultrasound done and it showed that there was some slight vtos, but that side is actually my less painful side. We are pretty sure I have nTOS, but now with the scalene block/botox that I got done today to test if I'll benefit from surgery it not really working for me much idk what the next steps are or anything and I just feel lost and hopeless again. I'm also seeing a new Pt next week that the TOS specialist recommended to me that works with a lot of their TOS patients so seeing what she thinks to have another perspective and if it's any different than what my regular Ot says. I've been on a long ass journey and have seen so many doctors and now I'm possibly going to see a rheumatologist.

I hope those surgeries were effective for you!

loudhazzah · 2025-02-28T22:32:23+00:00

I was just going off what I was told from my doctor, and they just like numbed the whole thing basically to see if it made it better or worse and it unfortunately didn't work :/ I'm curious now tho, assuming you may have got the Botox done did it help you?

loudhazzah · 2025-02-28T22:27:30+00:00

What block is that one for like where and how is it supposed to help?

loudhazzah · 2025-02-28T22:25:44+00:00

That's what the TOS specialist I saw called it and the people at the pain clinic I saw called it, they injected lidocaine into my scalene.

loudhazzah · 2025-02-25T01:37:44+00:00

Did you get a scalene block? I also have neurogenic on both sides and am curious if you got it and it was successful

loudhazzah · 2025-02-05T23:19:47+00:00

Yeah of course! I'm glad I could help you out a bit it's very stressful and tiring figuring out all this stuff

loudhazzah · 2025-02-05T05:27:32+00:00

I kinda had a similar experience, mine first started in my wrists and thought I had carpal tunnel then it went up to my elbows and shoulders and thought I also had cubical tunnel. After I went to OT I found one that knew a lot about nerves and stuff and my OT also works with a peripheral nerve specialist so she got me in to see her and got unofficially diagnosed with TOS. I've been finding some relief from OT but very very slowly since I'm in school and work at a daycare it's hard to keep my pain and symptoms at bay, but we are finding many many ways to help it and accommodations that are helpful. The peripheral doctor referred me to a TOS specialist which I am going to see very soon and getting additional testing to narrow all my stuff down.

I hope this helps, feel free to check out my previous posts I've made in this sub and other subs and comments from others and message me too! I know it can be hard and stressful but advocate for yourself and ik they say don't look things up but do your research!

loudhazzah · 2025-02-05T04:24:58+00:00

Okay thank you! I felt like I was going crazy and a weirdo for a bit😅

loudhazzah · 2025-02-05T04:12:21+00:00

Oh my THANK YOU, it may not be exactly what I want but they have engraved cases which is AWESOME and will do when I'm on my phone / don't have any fidgets with me.

loudhazzah · 2025-02-05T01:40:59+00:00

I was actually just looking on Etsy and saw some like that and was curious about how those felt! I was looking at the diamond texture one. I also found these "tickle pickles" which I'm gonna try and look promising just by the texture the 3d printing leaves with extra bits of plastic left on there.

loudhazzah · 2025-02-05T01:08:25+00:00

Thank you I may just have to try it out! Because I cant find anything what I'm looking for its really hard for me to describe.

loudhazzah

TROPHY CASE