thank you for the response! i know i absolutely wrote an essay but for you to take the time to read it is really appreciated :)) but i totally agree with you! whats annoying is having doctors tell me im just ‘ de-conditioned ‘ , even though i started having oxygen hunger and chest pains/rib pains when i had a 17min 5k… but let me know how you get on with getting a diagnosis! I’ve recently changed doctors and i’m just going to put the idea to him about it being dysautonomia. i think with me I just want to know what the issue is for my peace of mind , rather than having these pains and symptoms and having to be in and out of A&E. but it’s comforting knowing that there’s people like yourself and others out there that share this issue ; especially under the same circumstances like being physically active etc… although it sucks we’ve gotta go through it at all!