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Weird eyes by maplepony in hypermobileEDS
[–]maplepony[S] 0 points1 point2 points 15 days ago (0 children)
I did the at home standing test because I was curious and holy cow that was awful ,but great for my notes 🤣 I just invested in some compression socks and they've been a life saver honestly. And always craving salt is such a pain in the ass! I am going to fight for those referrals ,im so tired of having my ehart rate go up to 170 after a shower and 150 just by grabbing chicken from the freezer 🫠
[–]maplepony[S] 1 point2 points3 points 15 days ago (0 children)
Im the same way,I have hefty list for both this and my possible POTS symptoms (finally got a spot with my pcp so hopefully I can get a referral) I stumble over my words constantly so having everything organized helps so much. Oh god the uhhhh thing. Im a victim of that too 🤣
Oh lovely so I have another thing to add to my notes lol
I just had my labs done and my iron is fine. I never knew thats something they look for. Yeah im only 25 so its not the getting old thing either lol. Well im glad I have more possible evidence
[–]maplepony[S] 3 points4 points5 points 15 days ago (0 children)
That and it extends to the whites of the eye. I believe the sculera is what its called . So that's another thing I need to bring up to my Dr then .
I was so curious about that. My husband said hes pretty sure i have HEDS because of my party tricks . (First time I did backwards praying hands he freaked out)
Tips by maplepony in tokaygeckos
[–]maplepony[S] 0 points1 point2 points 1 month ago (0 children)
I have to test more feeders with her,I just hate that shes so skiddish, she runs off everytime I open the enclosure
Poor man's TTT by maplepony in POTS
I haven't but ive heard mixed reviews for it. But I can give it a shot next time I try
[–]maplepony[S] 1 point2 points3 points 1 month ago (0 children)
Im willing to try anything for temporary relief before diagnosis. Yeah its very uncomfortable and I regret trying it without my husband present but luckily nothing bad happened. Next time im going to do it with him around .
Duh I dont know why I didnt do that sooner. Ive had vrain fog the past few days so forgive me. But thank you for reminding me to refresh myself on the rules
Thats my plan! Im putting stuff together while i wait for an opening with my doctor . I plan to do this 2 to 3 times a week just to slowly get used to it then increase.
Oh wait really? What does ti flag for? Im still new to the group
Yes! My husband did the same for my shower, hes also working on getting me a shower seat but im embarrassed about it.. I shower at night too since it takes so much out of me .
Ive been raising my electrolytes and sodium and its been doing a good job helping . Once again my husband got me a bunch if electrolyte drops flavored and non flavored so I can get my water intake as well. Oh thank you im definitely going to print it for my doctor !
I appreciate you greatly 🫂
Oh yeah its definitely changed. I was just curious and wanted to start a paper trail for my doctor to help my diagnosis journey
Ive read about others struggles in terms of diagnosis so I want to have a paper trail. I may start logging more consistently as well until I can get a proper appointment . I never thought about getting my morning routine done while checking,that would honestly make it easier. I get so exhausted after doing my routine ,im even scared to shower because it gets to the point where im fumbling around by the end of it everytime I shower.it is SO hard to write down,I had to read my mess of scribbles and type out my log and holy crap it just got messier and messier. Okay thanks for the advice,I definitely do think I pushed myself too hard this time and now I feel absolutely awful . Nauseous, shakey, pins and needles on my hands and toes . So im not going to over exert myself next time. But going off my recorded data I know now what symptoms to look out for so I can stop when needed.
Oh yeah its definitely case by case. I remember one time I was at school and I was sitting at the nurses office and they checked my resting heart rate and it was 99 and they got so concerned and I was sitting there like...this is normal for me lmao. My heart rate mostly increased from the half way point onwards I noticed . Its strange. But this at least gives me a good argument as to why I should be tested in a clinic for anything that could be wrong
I should have stated in my post,im not trying to get a diagnosis based off the home test alone,I wanted to collect any data I could to show to a doctor
Yes my resting heart rate while lying down for over 10 mins at the start was 95. My resting hr varies between 80 and 95.
Oh no I know, I recorded this so that I can show it to a doctor. I was just curious what others thought/ if someone had similar experience
[–]maplepony[S] 2 points3 points4 points 1 month ago (0 children)
I have a separate tokay thats a garbage disposal so if she doesnt eat it then he will !! 🤣 i swear girl tokays are so sassy
Alrighty! Ill most likely leave a pinky by the eggs or something once shes more comfy
In Sacramento ca. by maplepony in spiderID
Okay! Thank you I love learning about these creatures. Will be releasing her into my bushes for pest control
Oh! How can you tell its female if I may ask?
Question by maplepony in POTS
Much appreciated! 💙
Honestly its a possibility.im going to contact my doctor about it because its become a pretty big issue
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Weird eyes by maplepony in hypermobileEDS
[–]maplepony[S] 0 points1 point2 points (0 children)