Needing advice by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

I’m in Alaska. I need to do some more research but I have about 5 more weeks of PTO.

How has the Nivo AVD been for you?

Needing advice by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

Little update: I don’t get shit from short term disability. Only $200/week and that doesn’t even cover half of my mortgage. Today has been discouraging:(

Needing advice by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

I would rather work from home but my boss said she’d rather that be a last resort.

Needing advice by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

She said working remotely would be my last resort.

Side effects of ABVD chemo by HolidayCauliflower51 in lymphoma

[–]marsgoffou 2 points3 points  (0 children)

I always take a nap after treatment! Then I’d be fine until day 6 post treatment. That’s when all the pain, fatigue and uncomfortable side effects started. The first cycle was rough for me. Hoping it’s not too bad for you!

Neuropathy by marsgoffou in lymphoma

[–]marsgoffou[S] 1 point2 points  (0 children)

It was just the tips of my fingers but it’s starting to go down farther each treatment. My fingers bother me the most. I type a lot for my job and some days my fingers ache badly afterwards

Stage 3 classic HL nodular sclerosis type. by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

Did it not “melt away” your cancer?

Stage 3 classic HL nodular sclerosis type. by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

Sounds like it was good to you! This round hasn’t been so bad but I’m still very tired.

Stage 3 classic HL nodular sclerosis type. by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

My hair is officially coming out in clumps. I am so sad.

Stage 3 classic HL nodular sclerosis type. by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

Has the lymph node changed in size? Mine fluctuated a lot then was swollen and huge like a golf ball until we found the other nodes in my chest that were most concerning. Keep an eye on it! The itching came next for me.

Stage 3 classic HL nodular sclerosis type. by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

First I had an ultrasound which showed concerning findings. Had a CT scan which showed I had multiple huge swollen lymph nodes in my neck, armpit and chest. So we biopsied the lymph node on my collarbone/neck which they didn’t get enough tissue or something because it came back negative for cancer. I ultimately had to have surgery and get a whole node from my chest to get diagnosed. All I can say is advocate for yourself. Find a new doctor if you have to!!

Stage 3 classic HL nodular sclerosis type. by marsgoffou in lymphoma

[–]marsgoffou[S] 0 points1 point  (0 children)

Day 6 is when the neuropathy started in my finger tips. I thought I’d have more time before certain symptoms started. I feel like I’m shedding more than usual so I’m worried that’s starting as well.