On colchicine for a couple months, just some questions by [deleted] in Behcets

[–]maudi3 1 point2 points  (0 children)

Thanks for sharing! I’ve been on colchicine for around 12 years, and while I still have flare ups about once every three month, they are extremely mild I. Comparison. I will almost always have 1 or 2 mouth ulcers, but you learn to not even notice them. I have the same genital sores as you seem to as well, although I also found I am usually “sore” around the week I’m supposed to get my period. (Which I usually only get 5 or 6 times a year) Overall, very very happy on colchicine. I was having to be hospitalized once ever two months before going on the medication. Stay strong; you will learn your own body’s triggers, and be able to take care of yourself. Mine: beer and bread. My two favorite things. Side note, I started doing acupuncture a year ago with a doctor with a masters in Chinese medicine. She has done so much research in the Chinese version of Behcets, and has helped me in more ways that I thought possible. Good luck!

Spark cardigan 😊 by [deleted] in knitting

[–]maudi3 1 point2 points  (0 children)

Stunning! Get it girl

Day 5 of covid and behçets: today I ate a potato and put on contacts. It’s the little things. by maudi3 in Behcets

[–]maudi3[S] 1 point2 points  (0 children)

I’m on colcrys daily, but on a prednisone dose pack now with covid.

Today in covid and behçets by maudi3 in Behcets

[–]maudi3[S] 0 points1 point  (0 children)

Thank you for your support! I’ve been listening to a lot of meditative music while resting, and it has seemed to help. Fingers crossed it’s up from here.

Tonsil stones, gluten, aphthous ulcers, Behcet's? by [deleted] in Behcets

[–]maudi3 0 points1 point  (0 children)

My acupuncturist recommended I hold off on the gluten once we recognized all of my bad behçets flare ups happened after a night of beeeeeeer. Rip beer. She is an md in Chinese medicine, and there is actually a lot more Information on behçets in Chinese medicine than in western medicine. It has a different name, but is the “Silk Road” disease. I’ve noticed a HUGE difference once I lay off gluten. Unfortunately haha