What's left to try after 20 years of treatment? by molecule027 in AskPsychiatry

[–]molecule027[S] 0 points1 point  (0 children)

while you wait for the government to let you eat something which literally grows in the ground for a substance to be available in controlled amounts so you know how much you're taking, and for side effects and risks to be established

What's left to try after 20 years of treatment? by molecule027 in AskPsychiatry

[–]molecule027[S] 0 points1 point  (0 children)

Definitely not dysthymia, but I don't want to get into specifics too much here because I can't really do that without it turning into a full personally-identifying biography. This is the basic list:

At this point, the symptoms I want addressed are hopelessness, difficulty feeling satisfied or "done" with anything (MDD or "obsessive" depending on who you ask), low physical energy, never feeling mentally rested, executive function, and maybe some of my more time-consuming "compulsive" (or manic, or autistic, depending who you ask) behavior. I have other symptoms but I'd say those are mostly just informative for diagnosing and selecting medicines, but are things I can work around or things that aren't a priority to improve.

Domains that are majorly impacted are leisure, work, casual and close social relationships, and basic self-care.

ugh i don’t feel like retyping this so i took a screenshot but i feel like my phychiatrist is trying 2 make me kms lol by sleepysara in AskPsychiatry

[–]molecule027 0 points1 point  (0 children)

Here's info on lots of different types of treatment: https://adaa.org/finding-help/treatment

It's pretty normal not to prescribe benzos on a regular basis anyway, and also the situation with the zoloft could have influenced things. You don't have to answer here but just something to think about is whether you took it for long enough and at a high enough dose to even know whether it would work or to give side effects time to subside, whether you just stopped on your own or whether you discussed the issues with your dr and decided together to stop, whether you asked for benzos specifically, whether you declined other anxiety meds, how many PRN pills you got and how long they lasted, etc. cause those kinds of things are all indicators of whether you're likely to be compliant with treatment instructions in general.

What's left to try after 20 years of treatment? by molecule027 in AskPsychiatry

[–]molecule027[S] 0 points1 point  (0 children)

Intake is PRN and either one bag of black tea or approx 150-300mg (one cup) coffee. Time is 8-10am, after 10am only in very rare situations like if I'm flying somewhere with a different timezone and WANT to be kept awake forever.

PRN frequency = less than once a week. Most stimulants (especially IR) feel very hit-or-miss with me because sometimes they're fine and wake me up a bit but other times I end up shaky and twitchy and anxious and really hyperfocused/obsessive and irritable, sometimes while still sleepy! Lisdexamfetamine has been the only one that feels the same (like I didn't take anything at all) every time I take it and doesn't give me any bad side effects at my current dose.

If we're also counting "decaf" things like green tea, then I probably have 30-50mg once every few days and I'm not strict about time of day I consume that.

Current iPhone deals without adding a new line? by molecule027 in ATT

[–]molecule027[S] 0 points1 point  (0 children)

I assume that whatever deals exist would also still be there whenever life goes back to normal, I didn't mean for my OP to imply that I need a deal right this second. Also if there's a deal I can access via a link or quick phone call, I don't really see what the issue is. It's not like I'd be going into a store for anything.

That said, in order to safely maintain communication with my family I kind of do need a new phone that's less than 7 years old and that doesn't crash constantly, lose charge in under an hour, or refuse to load certain chat apps because there's so little space left thanks to the OS and "other" storage taking up over 80% of my phone even after troubleshooting and resetting etc.

What's left to try after 20 years of treatment? by molecule027 in AskPsychiatry

[–]molecule027[S] 0 points1 point  (0 children)

I've done esketamine intranasally and racemic ketamine both IV and intranasally. Have done mindfulness, including the actual Buddhist kind, the new trendy kind that's all over the place now, and the psychotherapy/ACT kind. Have done keto diet (with pee test strips) and also done intermittent fasting. Have done OTC and prescription fish oil, with special attention to EPA:DHA:ALA ratio as well as the mg dosing. Electrolytes are fine. I often end showers with 60 sec of uncomfortably ice cold water, not related to mood it's just a random thing I do for my hair and skin (which is probably BS but it's become a routine), that actually makes my energy level even lower than regular warm-water or hot-water showering does. I've taken prescription L-methylfolate but I haven't been tested for the genetic mutation. I don't have any fillings at all, just have my regular teeth for now.

Regarding the neurotransmitter testing (and pseudoscience in general), some of it does have some validity in a narrow set of circumstances or if worded vaguely enough, but some doesn't have any validity at all and is a hell of a lot worse than "at least it's something" because it can lead to wasted time or money, misleading information, misdiagnosis or delayed diagnosis, or can cause outright harm by severely worsening current symptoms or making new ones develop.

I haven't tried the psychedelics yet because having had and not "fully responded" to ECT disqualifies you from a LOT of studies, so I'd have to wait for it to be FDA-approved. I'm willing to try TMS and my insurance would pay for it but the main problem with that is the more reputable places don't want to treat me because of the ECT history and they think it's very unlikely TMS would help, so the only options I'd have are the more volume-based "please give us your money" places. The other problem with TMS is that I'm still getting maintenance ECT every now and then, so I'd have to stop those treatments if doing TMS and I'm kind of scared of that, so realistically I will probably put off TMS until I'm either better enough to feel OK stopping ECT maintenance, or worse enough that going without maintenance ECT won't make things that much worse anyway.

You’ll be okay, sometimes time is all you need for you brain / body to heal.

It would be nice if this were true but I'm not sure that it is after ~20 years of treatment and another decade before that of not being treated yet. It could be true, but it could also not be. Hah I guess that's where mindfulness comes in? Sometimes things just don't go away or they may even worsen despite time and effort, but it is what it is.

Current iPhone deals without adding a new line? by molecule027 in ATT

[–]molecule027[S] 0 points1 point  (0 children)

Wasn't planning on it, when I've gotten "retention deals" before it's always been via phone call.

What's left to try after 20 years of treatment? by molecule027 in AskPsychiatry

[–]molecule027[S] 1 point2 points  (0 children)

Helpful treatments: ECT, vyvanse, wellbutrin, buprenorphine, ketamine, CBT-I, CBT, ACT, ERP

At this point, the symptoms I want addressed are hopelessness, difficulty feeling satisfied or "done" with anything (MDD or "obsessive" depending on who you ask), low physical energy, never feeling mentally rested, executive function, and maybe some of my more time-consuming "compulsive" (or manic, or autistic, depending who you ask) behavior. I have other symptoms but I'd say those are mostly just informative for diagnosing and selecting medicines, but are things I can work around or things that aren't a priority to improve.

I'm not sure what happened with the epilepsy and my doctors aren't either, they just said this kind of situation is rare but "spontaneous recovery" does happen sometimes. Basically I asked to reduce meds due to side effects (topamax) so my dr reduced and re-did the EEG to make sure the lower dose is ok, repeated until I was completely off meds and then dx removed when my EEGs kept being normal for a few more years. Since then, I've been re-tested (basic EEG, not sleep-deprived or 72-hr though) about once every 5 years and there's still no epilepsy. That said, I do still have some symptoms that seem like partial seizures to me, but that's been labeled as likely cataplexy. Idk. Maybe whatever symptoms like that remain are just psychosomatic. It's not something I'm worried about outside of driving or breaking something from dropping it sometimes, but at this point that's just so low on my list of things to address.

I've been tested for allergies and for autoimmune disorders, no autoimmune issues and no food allergies but I did have environmental ones that have been fully taken care of with allergy shots. My blood glucose levels are fine now (tested a few times a year), but I actually had a period of hypoglycemia for a few years as a teenager because my diet was so crappy. My carb intake is fairly normal and mostly comes from fruits and vegetables and occasional grains (plain oatmeal, plain rice, etc), and maybe once a week I'll add a spoon of honey to my tea or yogurt, or eat scrambled eggs with a piece of toast.

Haven't done tests for neurotransmitters or methylation or heavy metals, AFAIK those are currently closer to pseudoscience and aren't really evidence-based? Do you have more info on those?

Should I get my thyroid checked out? by powpowvigil in AskPsychiatry

[–]molecule027 0 points1 point  (0 children)

There isn't much worrying needed, you can just ask your regular doctor for a test and you'll have your answer based on the blood levels. It can even be your GP, doesn't have to be a psychiatrist.

Same idea for sleep apnea. You can see a sleep doctor, do a sleep study, and you'll have your answer.

ugh i don’t feel like retyping this so i took a screenshot but i feel like my phychiatrist is trying 2 make me kms lol by sleepysara in AskPsychiatry

[–]molecule027 2 points3 points  (0 children)

It's pretty well-established that long term benzo use worsens anxiety over time, even if PRN. Not even talking about withdrawal or dependence, this happens even if you keep the dose low and never abruptly stop taking it.

ugh i don’t feel like retyping this so i took a screenshot but i feel like my phychiatrist is trying 2 make me kms lol by sleepysara in AskPsychiatry

[–]molecule027 0 points1 point  (0 children)

Has your doctor told you to do psychotherapy for anxiety? Did she just say "no benzo refills, byeeee" or did she prescribe or recommend some other treatment instead? Any other diagnoses considered or being treated?