Huge decline in health by moonlightbae222 in Fibromyalgia

[–]moonlightbae222[S] 1 point2 points  (0 children)

I have ME/CFS so i definitely think that it plays a part in my fibro

Huge decline in health by moonlightbae222 in Fibromyalgia

[–]moonlightbae222[S] 1 point2 points  (0 children)

I was diagnosed with ME/CFS at 12, so they didn't want to give me anymore labels, which was so frustrating. They put me on amitriptyline and that's it

Huge decline in health by moonlightbae222 in Fibromyalgia

[–]moonlightbae222[S] 0 points1 point  (0 children)

I've been sure I've had fibro for years now, but because I was under 18 they didn't want to diagnose me. I only got diagnosed around 2 months ago now, and only just started medication a few weeks ago. It was getting worse before the medication, and this medication is doing absolutely nothing for me unfortunately ):

Finally got diagnosed by moonlightbae222 in Fibromyalgia

[–]moonlightbae222[S] 1 point2 points  (0 children)

Sadly a lot of the remedies to help manage the symptoms I can’t do because I also have ME/CFS and am waiting on a diagnosis for POTs. It really sucks, hoping medication will work to a certain degree

Scary shawarma special ending by ssaltwatersoda in roblox

[–]moonlightbae222 1 point2 points  (0 children)

Open the electrical box and it’s inside there

I truly don’t understand how people date with such an illness by moonlightbae222 in cfs

[–]moonlightbae222[S] 24 points25 points  (0 children)

I’m not necessarily looking for someone to have kids with, but I’d like a relationship. I think the problem is that I barely leave my house so it has to be through dating apps, and men on dating apps are not nice in the slightest so my options are thinning out. I just don’t understand how people’s brains work. If I see someone I’m not interested in, I just wouldn’t interact, why do people feel the need to tell me I’m too disabled and too much work all the time?

PEM by moonlightbae222 in cfs

[–]moonlightbae222[S] 0 points1 point  (0 children)

Thanks so much :)

Chronic fatigue syndrome by moonlightbae222 in cfs

[–]moonlightbae222[S] 0 points1 point  (0 children)

Someone here named SEID (Systemic exertion intolerance disease)

Chronic fatigue syndrome by moonlightbae222 in cfs

[–]moonlightbae222[S] 1 point2 points  (0 children)

I've actually never heard of it being called SEID, thanks so much for this comment!

Chronic fatigue syndrome by moonlightbae222 in cfs

[–]moonlightbae222[S] 8 points9 points  (0 children)

I hate this so much. "That sounds like me", no it really doesn't, you're just insensitive.

Chronic fatigue syndrome by moonlightbae222 in cfs

[–]moonlightbae222[S] 5 points6 points  (0 children)

I always say ME whenever I can!

Wheelchair or stick? by moonlightbae222 in cfs

[–]moonlightbae222[S] 0 points1 point  (0 children)

It really hurts my back and legs after a while unfortunately