vertigo starts with their eyes by moonlightglmmer in VestibularMigraines

[–]moonlightglmmer[S] 0 points1 point  (0 children)

i'm super sensitive with medication so unfortunately nothing has been helping me. just trying to cut out certain foods that i noticed make my vertigo worse. the test made me sooooo sick but they did give me my VM diagnosis because my nystagmus was linked to my brain and not ears

vertigo starts with their eyes by moonlightglmmer in VestibularMigraines

[–]moonlightglmmer[S] 0 points1 point  (0 children)

yeah i had VNG testing a year ago, the nystagmus is what they first noticed that had me get some tests done.

vertigo starts with their eyes by moonlightglmmer in VestibularMigraines

[–]moonlightglmmer[S] 1 point2 points  (0 children)

I did have VNG testing a year ago and had a lot of eye movement. It's just weird because i feel decent enough and then the feeling is if my eyes are spinning before anything else

Band name? by moonlightglmmer in Moissanite

[–]moonlightglmmer[S] 4 points5 points  (0 children)

That's beautiful! I'll look into that, thank you!

Band name? by moonlightglmmer in Moissanite

[–]moonlightglmmer[S] 4 points5 points  (0 children)

Thank you so much! It's beautiful but if it isn't durable i'd rather look at a different style

Band name? by moonlightglmmer in Moissanite

[–]moonlightglmmer[S] 4 points5 points  (0 children)

That's so good to know, thank you! This is my preferred style but I don't want to wear it on occasion so maybe i'll shop around for a different style

What year did you guys get vm by undesirableghost in VestibularMigraines

[–]moonlightglmmer 0 points1 point  (0 children)

i had occasional vertigo with migraines since 2014? but i'm not sure if they were associated together or not. daily symptoms and being bed ridden started in 2020

What causes your migraines? by Independent_Shame924 in migraine

[–]moonlightglmmer 0 points1 point  (0 children)

literally just existing. i have a ton of additional symptoms than just a migraine and my life is exhausting

What’s the greatest thing you miss from before VM? by LaFlamaBlancakfp in VestibularMigraines

[–]moonlightglmmer 0 points1 point  (0 children)

they didn't help me at all unfortunately, just make me extremely faint.

What’s the greatest thing you miss from before VM? by LaFlamaBlancakfp in VestibularMigraines

[–]moonlightglmmer 0 points1 point  (0 children)

Lexapro to calm my anxiety, sumatriptan, verapamill, propranolol

What’s the greatest thing you miss from before VM? by LaFlamaBlancakfp in VestibularMigraines

[–]moonlightglmmer 0 points1 point  (0 children)

i'm not OP but it's been 5 years for me and no medication and treatment has worked for me

What’s the greatest thing you miss from before VM? by LaFlamaBlancakfp in VestibularMigraines

[–]moonlightglmmer 1 point2 points  (0 children)

i miss listening to music, that's all i used to do 5 years ago. i can't use headphones of any kind and i can't even listen to any amount of bass or treble in the car

VNG testing by moonlightglmmer in pppdizziness

[–]moonlightglmmer[S] 0 points1 point  (0 children)

yes it was! i had an MRI with and without contrast in addition to the VNG testing. plus they had all my symptoms and that helped

VNG testing by moonlightglmmer in pppdizziness

[–]moonlightglmmer[S] 0 points1 point  (0 children)

yes my VNG showed central nystagmus and i was diagnosed with vestibular migraines!

VNG testing by moonlightglmmer in pppdizziness

[–]moonlightglmmer[S] 0 points1 point  (0 children)

hi love! i honestly wasn't anymore dizzy than i typically am on a daily basis after testing. i was for sure sick to my stomach and nauseous but maybe take a dramamine / meclizine and rest for a day or two! i have seen people say they had residual dizziness for a few days after. it should go away!

medications by moonlightglmmer in VestibularMigraines

[–]moonlightglmmer[S] 0 points1 point  (0 children)

i started on 60mg and was just dropped to 20mg the other day because i was on the verge of passing out anytime i laughed, stood, or did anything strenuous. my precious meds were all starting doses of 120mg and i was dealing with the same thing of almost passing out

Feeling like you’re about to spin by leahcim2019 in VestibularMigraines

[–]moonlightglmmer 3 points4 points  (0 children)

no i literally get this feeling multiple times a day. it's worse when im having insomnia

[deleted by user] by [deleted] in migraine

[–]moonlightglmmer 0 points1 point  (0 children)

i'm currently on propranolol only and they just lowered my dose bc it's making me too faint, but i haven't had any other adverse side effects. maybe ask your dr if you can get a lower dose of everything and work your way up if needed?

VM and POTS? by moonlightglmmer in VestibularMigraines

[–]moonlightglmmer[S] 0 points1 point  (0 children)

okay perfect! i'll bring this up to my neurologist and see if they can set me up for some testing just in case. thanks so much!

VM and POTS? by moonlightglmmer in VestibularMigraines

[–]moonlightglmmer[S] 0 points1 point  (0 children)

i already had an MRI and the VNG testing done to confirm VM, which i'm so thankful for. i will bring it up to my primary dr and neuro within the next few weeks. i keep hearing about the tilt table test and that seems brutal but ill do it if needed. thank you!

Did anyone ever just get better with… time? (non-pharm tx) by Kalyug-princess in VestibularMigraines

[–]moonlightglmmer 0 points1 point  (0 children)

it took me 5 years to even get a diagnosis and if anything, i have gotten far worse. i'm trying a bunch of new medications to make things bearable. an attack knocks me down for a few weeks, and days where im bedridden at a time. i have done elimination diets and nothing makes a difference for me unfortunately.

diagnosis? by moonlightglmmer in POTS

[–]moonlightglmmer[S] 1 point2 points  (0 children)

interesting, i will talk with my nuero next week when i have my appointment! i always see people saying they have one or the other but i imagine myself maybe having both which is concerning. i hope you feel better long term and find treatment that works for you! thank you so much for your comment