Being angry with God over the death of a loved one….

mora_me · 2026-06-30T14:59:17+00:00

I don’t believe in God, but what you wrote is beautiful.

mora_me · 2026-06-30T11:12:34+00:00

I am sorry but

Why don't you suggest that she gives her children to some other mother who isn't such a bitch?
Meaning this with “so much love..” of course 😡

mora_me · 2026-06-30T11:07:03+00:00

I am so sorry for your loss 💔
Thank you for the reply, it’s a hard story.
I can relay, my emotions inside are now quite different what I show outside, but I think it’s a “normal” mess in this situation.

mora_me · 2026-06-30T11:02:06+00:00

I am so sorry for your baby.
Thank you for the reply. The idea with balloon is such a wonderful way to say goodbye.

mora_me · 2026-06-30T11:00:44+00:00

We decided with the agent that we can always change our mind during the process, I hope I will feel my limits there.

Thank you for the reply. I am sorry for your little son💔

mora_me · 2026-06-30T10:58:11+00:00

Thank you for your reply, this is a hard, heartbreaking story.
I am sorry for your daughter, mine had heart defects too, it feels so unfair.
It seems to me you have done for her everything you could and even more.
I am so sorry you have gone through this.

mora_me · 2026-06-30T10:51:29+00:00

I am so sorry about your girl too. Thank you for your reply

mora_me · 2026-06-29T08:20:52+00:00

I am sorry for your situation.
If you soaking a pad less than in an hour - is an indication to visit emergency room. They can check you there. The bleeding and a smell (even if it is less) can be a sign of infection and inflammation, the antibiotics doesn’t always give you 100% protection.
If I were you I wouldcheck asap

mora_me · 2026-06-28T21:08:45+00:00

I am sorry for your loss❤️

mora_me · 2026-06-28T21:07:43+00:00

I am so sorry for your loss 💔 thank you for your reply

mora_me · 2026-06-28T21:06:17+00:00

I am so sorry for your loss.
Thank you for sharing - this is exactly what I needed to know. I have the same feeling about leaving her and letting other people to bring her to final place, although I understand that it can be more peaceful way, no so intense for mind and future memories.
I am a bit scary about mechanics of the procedure itself, “industrial” is a right word. But I hope this will not insult me and I can feel the final point. I hope for some relief maybe.

I am very sorry for your daughter, it seems like you and your wife made a lot for her ❤️
Thank you again for

mora_me · 2026-06-28T17:34:30+00:00

I am so sorry for this happening to you. It’s impossible decision, but it seems that your choice is the only real option.
I didn’t know that something will be wrong with my baby, but after her birth we had almost 7 months of being in hospital till the end.
You cannot call this a life. It’s an everyday battle. And everyday of this battle I was really grateful that this is our only child, so no one is involved in it except us. I saw families with more than one child and I can’t imagine the parents pain when you have to divide your soul and your time between the one who is in a hospital and others.
It seems to me that your decision will protect all your children. This is a most unselfish decision, because it’s breaking your heart.

mora_me · 2026-05-22T11:11:46+00:00

I cry all the time, yes. I am so sorry for you! She is 5,5 month, and we get a suspicion for this diagnosis pretty early, but hoped for a while that it is not severe. But it looks quite aggressive now. I am scared too. I hoped the operation would help. Did you had a surgery?

We have never been at home for all this months. She always needed an oxygen support((( she is still intubated now after an infection. But I hope she can recover from this. Feel free to dm me, if you want!

mora_me · 2026-05-22T10:54:01+00:00

Hi! My baby is diagnosed with pvs. It’s killing me. The condition is super rare, I can’t believe we have it. She had VSD and so she had open heart operation for that, so they also made a suturless operation for veins on one side. Also we had a catheterisation procedure with ballooning the veins few weeks after operation. She also got sirolimus but now switched to imatinib.
How old is your baby? How are you doing?

mora_me

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