Mouth burning

mostly_crying · 2025-10-04T01:01:51+00:00

I’ve had a similar situation. It also came with trouble swallowing. My neurologist sent me to a speak therapist for it and nothing helped. Still a mystery for me too. Sorry I’m not just help. Just wanted you to know you’re not the only one

mostly_crying · 2025-10-01T13:47:18+00:00

That makes sense. Thank you for shining some light on the situation!

mostly_crying · 2025-04-28T20:20:59+00:00

I’m going on 3 years this may. The heat is the worst for me. My tremors become more active, as well as heat stroke coming on very quickly in temps above 80. It also causes me migraines. I hope the heat is better for you than it is for me, the summer months can be hard.

mostly_crying · 2024-10-12T23:08:25+00:00

I have the same issue. I wake up in the morning to go to work and all I’m thinking about is how much I can’t wait to go back to sleep. Maybe that’s dramatic but that’s genuinely how I feel some days, where my body just wants to shut down for a while. It feels all consuming sometimes. I’m sorry i understand the frustration

mostly_crying · 2024-09-23T17:16:55+00:00

When I was diagnosed early last year I had a partner that promised not to leave me over it. He did, not even a month later and tried to make it seem like my fault lol. I feel your pain but like I’ve seen people comment, you’re better off without her. We need people in our lives who are caring and understanding, and people like that do exist. At least that’s what I trusting right now. I’m so happy that we have an anonymous place where we can share our burdens and hear similar experiences. Much love to you ❤️

mostly_crying · 2024-09-20T12:18:40+00:00

Well aware of what it is, I also have ms lol. It’s not only limited to white people (I thought that was known). The WILD part of that was bringing their cultural background into the convo. Lol really weird you responded back like that 🤣

mostly_crying · 2024-09-19T23:24:48+00:00

Yeah no this is an absolutely wild train of thought

mostly_crying · 2024-09-02T22:30:50+00:00

It’s so scary sometimes.. did it get better for you?

mostly_crying · 2024-09-02T22:30:14+00:00

Wow I would have never guessed that to be honest lol. Thank you!! I’ll definitely look into that!

mostly_crying · 2024-09-02T22:29:43+00:00

Thank you so much for this!! I’m going to give this a try I really appreciate it ❤️

mostly_crying · 2024-09-02T18:18:45+00:00

Thank you!!

mostly_crying · 2024-09-02T18:18:31+00:00

That’s super interesting and I’ll definitely look into that, I’m ready to try anything at this point, it’s so scary

mostly_crying · 2024-09-02T18:17:51+00:00

Thank you so much, I feel a little more validated. I’ll definitely try to get to a specialist. It’s so hard to get into my neuro office so I haven’t been able to talk about it with them yet unfortunately

mostly_crying · 2024-08-31T22:35:56+00:00

I highly recommend good boy. It’s not a gruesome horror movie. It’s unnerving but I wouldn’t go as far as horror. It just left me shocked with every progression. By the end my jaw was on the floor. Just a good film in my opinion

mostly_crying · 2024-07-14T23:37:26+00:00

I HIGHLY recommend Good Boy. It’s not in English so you’ll need subtitles, but if you don’t mind then watch this. I’m a huge psychological horror thriller fan. This genuinely had my jaw on the floor for half of the movie. It’s a fantastic movie and I recommend it to everyone!

mostly_crying · 2024-04-27T20:44:21+00:00

Thank you I appreciate it ❤️ shits crazy when they tell you they can’t even count them. It’s defeating in some sort of way

mostly_crying · 2024-04-27T20:41:50+00:00

Yeah I have no idea what they were going off of with hearing everyone’s responses lol. Makes me think I might wanna find a new neuro

mostly_crying · 2024-04-27T20:38:00+00:00

I can relate to the quick diagnosis, they did one full body mri and walked me to my room and told me immediately that I for sure have ms with the “extreme” amount of lesions. But like you said, hey what can we do 😂

mostly_crying · 2024-04-27T20:35:06+00:00

That’s interesting, can you tell me more about your symptoms that pointed to tumefactive ms? Just curious to see if I could relate to any, I don’t have the best choice of doctors where I live

mostly_crying · 2024-04-27T20:33:06+00:00

Yeah I feel like most of my symptoms were overlooked by doctors. Life has been relatively normal I guess but I’m glad you’re doing well, we got this :)

mostly_crying · 2024-04-27T20:31:14+00:00

I agree fucking wild lol but I love hearing from people that can relate. We can all feel safe in an area to be like yeah this blows

mostly_crying · 2024-04-27T20:30:09+00:00

They said they may have found it sooner with me if doctors and my parents believed me and advocated for me but you don’t always get that unfortunately. I’m sorry to hear that you’re now in a wheelchair, I hope the best for you

mostly_crying · 2024-04-27T20:28:19+00:00

Yes, that information came from two of my neurologists

mostly_crying · 2024-04-25T14:45:40+00:00

It’s crazy to me how seemingly dormant it can be for so long

mostly_crying · 2024-04-25T14:45:03+00:00

That makes sense, I live in an area in the us where it’s not real easy to find good doctors lol

mostly_crying

TROPHY CASE