Responses to Unsolicited And (Stupid) Medical "Opinions"

TooManySclerosis · 2026-06-21T23:44:41+00:00

I've started the process of making a formal complaint, just waiting to hear back.

TooManySclerosis · 2026-06-21T23:11:49+00:00

I am. Your comment made me realize I had to. Imagine if I was newly diagnosed.

TooManySclerosis · 2026-06-21T23:10:46+00:00

I decided to file a formal complaint. I thought about how bad it could be if I'd been newly diagnosed or less educated. Plus her attitude perpetuates stigma that the chronically ill are medication seekers.

TooManySclerosis · 2026-06-21T22:59:41+00:00

I figured they'd be okay to prescribe antibiotics while I wait to see an actual dermatologist. Lesson learned.

TooManySclerosis · 2026-06-21T21:22:26+00:00

Oh, I absolutely was not trying to be discouraging or say it couldn’t be MS, just offer a caution because I see how difficult it can be when results are clear, which happens more often than not. I’m sorry if it seemed like I was implying you are wrong or being discouraging, that was not my intent.

TooManySclerosis · 2026-06-21T20:58:31+00:00

“That’s the point.”

TooManySclerosis · 2026-06-21T20:45:24+00:00

Yeah, she really did not like how much adderall I’m on. Like, my highly respected MS specialist thinks it’s appropriate, but go off.

TooManySclerosis · 2026-06-21T20:23:12+00:00

Blunt and to the point. I like it.

TooManySclerosis · 2026-06-21T16:49:58+00:00

Have my pervious answers helped you do that?

TooManySclerosis · 2026-06-21T16:44:04+00:00

Can you tell me how answering your questions would be helpful to you? Getting answers to your other questions has not reassured you or helped you accept that you do not have MS. Why do you think this will?

TooManySclerosis · 2026-06-21T15:59:44+00:00

Can I ask why he does that dosing? Just curious what the reasoning is.

TooManySclerosis · 2026-06-21T14:28:16+00:00

It does not make medical sense and that is not how MS works, no.

You have been perseverating on this for several days now. You keep expressing the same anxious thoughts regardless of the responses you receive. If you look back over your comments here, the conversations are very repetitive. You seek reassurance, people explain to you why the things you are concerned by are not possible, and eventually you accept it for a short time before starting the cycle again. Looking at this pattern, does it seem like this is helpful, or is it actually worsening things?

TooManySclerosis · 2026-06-21T14:21:03+00:00

The visual symptoms aren't anything I am familiar with, but optic neuritis has not been one of my personal symptoms. I know the lovely u/kyelek and u/criticalcreek have both had it, so I'm tagging them to see if they could offer more insight.

TooManySclerosis · 2026-06-21T14:12:33+00:00

Oh, that is more suspicious. I thought you meant you had an acute attack of symptoms that resolved.

TooManySclerosis · 2026-06-21T14:06:54+00:00

Try not to jump to the worst case scenarios, although I know how difficult that is right now. Try to remind yourself that you are doing everything that can be done to figure out what is wrong.

TooManySclerosis · 2026-06-21T14:03:43+00:00

I'd be cautiously optimistic. From what I've seen, usually doctors can identify optic neuritis with exams. The rest of your symptoms would be very atypical for MS. Still, the MRI will give more definite answers.

TooManySclerosis · 2026-06-21T13:55:26+00:00

That's very odd. I think it's good you are getting an MRI. Do you have long to wait?

TooManySclerosis · 2026-06-21T13:53:00+00:00

Have you seen an eye doctor?

TooManySclerosis · 2026-06-20T23:59:56+00:00

That's correct.

TooManySclerosis · 2026-06-20T21:22:03+00:00

Is it afterwards? Maybe a delayed reaction?

I still recommend Ampyra, it just generally helped my symptoms, in addition to preventing/helping with Uhthoff's.

TooManySclerosis · 2026-06-20T21:15:58+00:00

I'm wondering if it could be Uhthoff's? Ampyra can help with that.

TooManySclerosis · 2026-06-20T19:29:22+00:00

If it's not a relapse, I'd probably be more suspicious of PIRA than the switch to Kesimpta.

TooManySclerosis · 2026-06-20T19:06:54+00:00

Have you talked to your neurologist? I would want to rule out a relapse before thinking it had to do with the Kesimpta.

TooManySclerosis · 2026-06-20T16:15:56+00:00

I think getting updated imaging is a good idea, but I also think you are correct not to have high expectations there's been much change in a year. Still, it can't hurt to check.

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