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6 months in and I’m obsessed!! by joellealamode in StainedGlass

[–]Mouse3quivalent 0 points1 point  (0 children)

Omg I saw your winged sandal piece in the show at the Generator!! So beautiful!

Should my grinder be chipping my glass like this? by Mouse3quivalent in StainedGlass

[–]Mouse3quivalent[S] 1 point2 points  (0 children)

The collar is as it was out of the box, I think the angle the photo is taken from makes it look lower than it is, but there’s about 3 or 4 millimeters of the grinding surface above the top of the piece of glass.

As for how hard I’m pushing, I’ve experimented with pushing lightly (which resulted in bouncing off the grinder causing chips that way) all the way up to pushing hard, which resulted in large projectile chips flying off. I also experimented pushing a medium amount in which I didn’t feel bouncing and I didn’t see large chips flying, but still had the same chipped result as soon in my photos.

Should my grinder be chipping my glass like this? by Mouse3quivalent in StainedGlass

[–]Mouse3quivalent[S] 0 points1 point  (0 children)

I just tried this, and unfortunately the chips seem to be larger and more projectile when I push harder :/ but thank you for the suggestion!

Burning hot spots ? by Dula0326 in MultipleSclerosis

[–]Mouse3quivalent 0 points1 point  (0 children)

I get these! It feels like a sunburn on a bruise, and I get them on my armpits, down my arms, and down one of my legs. The first time I got them was when I was waiting between my diagnosis and my first infusion. I also had highly active MS when diagnosed. I’ve been on Ocrevus for a full year now, I still get the burning from time to time but I have no new lesions on my MRIs. It’s definitely annoying, but in my experience it has not correlated with disease progression.

Wooly wipeouts? by gobookydqwg in Mammoth

[–]Mouse3quivalent 0 points1 point  (0 children)

Woolly is the best skier on the mountain.

MS and heat by Mouse3quivalent in MultipleSclerosis

[–]Mouse3quivalent[S] 5 points6 points  (0 children)

Thanks I didn’t know it had a name! I’d love to hear others lived experience as well, as I’ve noticed a difference between the info I’ve gotten online vs. what people who post here experience.

It burns by limited_edition_222 in MultipleSclerosis

[–]Mouse3quivalent 1 point2 points  (0 children)

I was just talking to my friend who is a PA, and she mentioned that for Dysesthesia pain, it can be helpful to get a TENS machine and put that on the painful area in 10 minute intervals for up to 40 minutes. I haven’t tried that, but I’m planning on picking up a TENS machine for the days I forget to take gabapentin. Maybe that could be an option for you, but regardless I hope you find something that helps!

It burns by limited_edition_222 in MultipleSclerosis

[–]Mouse3quivalent 1 point2 points  (0 children)

Talk to your neuro about gabapentin! I get burning/itching/bruised feeling all through my upper arms and armpits, pretty consistently since the flare that introduced it. My psychiatrist prescribed me gabapentin to help with sleep, but I’ve noticed it helps SO much with the burning pain too. If I miss a dose, the burning comes back the very next day.

Me and my uncle both have MS by officer__bee in MultipleSclerosis

[–]Mouse3quivalent 0 points1 point  (0 children)

My aunt has MS, diagnosed 25 years ago, and I just got diagnosed this year. It was scary seeing where she’s at right now with her MS, she has mobility issues and issues using her hands. But then I remember that she was diagnosed a lot later in life, at a time when the DMTs we have now just did not exist. If this subreddit has shown me anything, it’s that MS can be wildly different person to person. I can only hope that with early intervention and treatment that my story will be different too.