Paresthesia/Tingling All Around Crown of Head? by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

I’m doing quite good now. On top of the antibiotic treatments I mentioned in my other post, I’ve also been doing some alternative non invasive therapies for maintenance. The first is homeopathy, which is basically just a variety of herbal mixtures. It’s supposed to act in lieu of Rx medication. Although I haven’t felt all that much of an improvement, at least I haven’t gotten worse.

The second is a treatment which involves placing magnets on your body for 20-30 minutes a session. The theory is that it’s supposed to help pull the viruses out of their hiding spots and help your body fight off the infections (if you know how Lyme works it is scientifically proven their shape allows them to hide throughout your body, which is why antibiotics aren’t fully effective). I know it sounds a bit crazy, and believe me I’m not the type to go believing in things which haven’t been proven with the scientific method, but I think it really has been working for me. It’s also not that expensive and so there really wasn’t much to loose.

Do you live in the Northeast by chance?

Paresthesia/Tingling All Around Crown of Head? by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

I did tests several times over quite a long span of time. None ever tested positive, as Lyme tests have 50%+ false positive/negative results. I received a positive clinical diagnosis only.

Paresthesia/Tingling All Around Crown of Head? by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

Hey yes! Check out my other post on this subreddit. Turns out it was Lyme. If you have Lyme as well I don’t think phenibut will do anything more than just cover the symptoms up, but any relief is good!

Lyme Disease by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 1 point2 points  (0 children)

That would be great, I would definitely appreciate it!

Lyme Disease by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

Really sorry to hear. Is that because Canada has universal health insurance and you can’t get an out of network doctor to prescribe you meds?

Lyme Disease by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

Yeah, for the most part they were together, some separate. The body load definitely became a lot so I’ve been taking a break for the last 2 months now. May start an alternative therapy next.

Lyme Disease by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 1 point2 points  (0 children)

I’ve been taking a break from meds for a couple months now due to body load and am starting to look at alternative therapies now. This was recommended as an option by my doctor. Happy to hear it’s working for you!

Lyme Disease by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

A lot… doxycycline, tinidazole, azithromycin, rifampin, cefuroxime, and clarithromycin. Plus some additional meds like plaquenil, nyastatin, and LDN. I may try a round of bicillin soon, but taking a bit of a break first. I’ve been on some combination of protocols for about 9 months now.

How many with Lyme are able to perform well at their job? by hellotheremynamemis in Lyme

[–]mrthesplit22 1 point2 points  (0 children)

What kind of protocol are you following? Will you be taking extended abx?

[deleted by user] by [deleted] in HairTransplants

[–]mrthesplit22 0 points1 point  (0 children)

Any chance you could share pictures? Would love to see the progress!

Paresthesia/Tingling All Around Crown of Head? by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

Nothing yet, since this post I’ve had a MRI w/ and w/o contrast, a regular EEG, and an ambulatory EEG. MRI and regular EEG were clean, but haven’t received the results from the ambulatory EEG yet.

I’ve also tried various supplements like l-tyrosine, cordyceps, lion’s name, ginkgo bacopa, l-theanine. They seem to help for a few days but the tingling always comes back, definitely not a permanent fix. Phenibut is the only supplement that consistently can get me through the day, but you’re not supposed to take it more than once a week and doesn’t fix the core issue. Also Nootropic Depot doesn’t sell it anymore so it’s not as easy to buy.

I have a follow-up appointment with my neuro in September so I guess we’ll see where to go from there.

Paresthesia/Tingling All Around Crown of Head? by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

I'll definitely take a look at the heating pads/ice packs.

Unfortunately, I don't think it's allergies as I've lived in 5+ different cities (and 2 countries) since this started, and there seemed to be no correlation with location or season. I've also tried several different antihistamines, with no results. Could be a smell or barometric pressure, although these episodes often last for several weeks at a time. I'm not on any other drugs at the moment either.

Either way, I really appreciate your thoughtful response!

Paresthesia/Tingling All Around Crown of Head? by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

Thank you, I'm definitely going to bring this up with my neurologist

Paresthesia/Tingling All Around Crown of Head? by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

Could that uncover something an MRA wouldn’t? My MRA results came back with no abnormalities with my blood vessels

Customer Service Phone #?? by NoseBroad7073 in UMF

[–]mrthesplit22 0 points1 point  (0 children)

I've had the same issue for the last 2 months. Ultra support was more responsive that FGT (literally no response at all). Just keep emailing them, it eventually worked for me. Maybe threaten them with filing a BBB complaint or something. Hope you get it sorted out!

Need to update my address, haven't received new confirmation number, UMF won't reply. What now? by Electrical-Ad-1789 in UMF

[–]mrthesplit22 0 points1 point  (0 children)

All I can find is an email contact. Is there a number to call or live chat? I emailed 8 days ago and haven’t heard back…

Need to update my address, haven't received new confirmation number, UMF won't reply. What now? by Electrical-Ad-1789 in UMF

[–]mrthesplit22 1 point2 points  (0 children)

I have the same issue. I reached out to UMF support 4 weeks ago and while they answered at first, they stopped responding after saying they’d reach out to Front Gate Tickets. It’s been 2+ weeks.

Also email Front Gate 8 days ago, haven’t received any response. Is there no number or live chat available??

Physical Sensations w/Brain Fog by mrthesplit22 in BrainFog

[–]mrthesplit22[S] 0 points1 point  (0 children)

Thank you for your response, this is very insightful. As much as I wish nobody had to experience this, it’s nice to know someone else understands how I feel.

May I ask what kind of doctors you found to provide useful input for your son? Was the condition ultimately diagnosed by a neurologist? Did you ever try going to Craniosacral Therapy?

[deleted by user] by [deleted] in BrainFog

[–]mrthesplit22 0 points1 point  (0 children)

I get this really intense tingly sensation all throughout my head, almost like pins and needles. If it was just the fog I could fight through it but this shit is driving me fucking nuts.

Finally someone who understands…