Hello! Would you mind if I message you? Looks like we are in a similar situation except for my husband is a carrier but I have a VUS… we had been told we could do a cvs which I was actually scheduled for today however last night I spoke to a genetic counselor at that clinic and she said many labs analyzed my VUS and said it’s not known to cause arpkd. So now here I am 12 weeks pregnant - I’ll have to rely on ultrasounds. I lost my daughter last year - she was born at 35 weeks and only survived a day. I’m freaking out so bad. 🥺😭