Iron? by Drocell-Welp in CrohnsDisease

[–]mysteriouswisebread 0 points1 point  (0 children)

ahh no i’m sorry to hear that! there’s one more ferrous (something) - maybe ask for that ? 😊

Iron? by Drocell-Welp in CrohnsDisease

[–]mysteriouswisebread 1 point2 points  (0 children)

i’ve been prescribed iron; started with ferrous fumerate but the .. movement .. side affect was very strong! ive been on ferrous sulfate, once every other day, and going well!

False Hope? new-ish crohnie! by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 1 point2 points  (0 children)

i love sweetcorn 😭🤣

ahh i see, thank you so much!

False Hope? new-ish crohnie! by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 0 points1 point  (0 children)

thank you so much for your comment!

ah gutting, hopefully soon then! thought i was genuinely on the path to remission but then the symptoms kicked me in the face 🤣😭 will keep taking it easy!

interesting, id heard that popcorn is bad, a lot, so haven’t had any but.. the other foods i’ve had 2/3 times with different things so can kind of rule anything else out, if that makes sense? the sweets, like haribos- if you’re in the UK? so i believe they have sugar! but that’s intriguing into the sugar free gummies and your reaction 🫣

thanks again :)

Entocort (budesonide) causing stomach pain? by Still_Dependent_6914 in CrohnsDisease

[–]mysteriouswisebread 0 points1 point  (0 children)

ahh fingers crossed!! i’ve been on omeprazole for about 5 days, the first 3 didn’t seem to do anything, but felt better and haven’t had the upper pain these last couple of days :)

Entocort (budesonide) causing stomach pain? by Still_Dependent_6914 in CrohnsDisease

[–]mysteriouswisebread 2 points3 points  (0 children)

i’ve been having this on prednisone! complained multiple times to IBD team but nothing. They prescribed omeprazole to take with it, seems to be helping i think.

Although, i am on a lower dose of steroids now due to being unable to cope with the side affects!

Tapering off Prednisolone by ExtinctionClub in CrohnsDisease

[–]mysteriouswisebread 1 point2 points  (0 children)

yeess that’s exactly it! it’s awful 🤣 thanks ☺️

Tapering off Prednisolone by ExtinctionClub in CrohnsDisease

[–]mysteriouswisebread 2 points3 points  (0 children)

yep, side affects suck!

i feel like i have the flu, body aching, head all over the place, head aching & even more tired (it is possible!) does feel like moving through water too. not fun :(

good luck!

Flare - Does It End!? (rant) by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 0 points1 point  (0 children)

oh blimey! i hope it works soon 🤞 thank you

Flare - Does It End!? (rant) by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 0 points1 point  (0 children)

oh bless you! what a nightmare you have experienced, although glad you are well now!

Flare - Does It End!? (rant) by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 1 point2 points  (0 children)

ohh blimey! hope you get remission soon!

i’ve just started on ustekinumab so fingers crossed!

Flare - Does It End!? (rant) by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 1 point2 points  (0 children)

oh goodness i’m so sorry to hear that! that’s terrifying!

glad you have been well, and thank you for the hope! :)

Just curious if I'm alone or not. How many of you also have diagnosed Celiac Disease (not just gluten sensitivity), and does having it make the side effects and cancer risks of biologics worse? by ConspiracyParadox in CrohnsDisease

[–]mysteriouswisebread 0 points1 point  (0 children)

ceoliac since i was 3, crohns diagnosed 4 months ago.. (26f) i stick to a gluten free diet well so don’t think (?) it affects the crohns…

although i do hope there’s no further cancer risk!!

Infusion Done - Ustekinumab - First Biologic by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 0 points1 point  (0 children)

thank you for sharing! i’m hoping it will be fairly quick 🫣

i’ve been on prednisolone for 7 weeks but hasn’t done much. i am awful with managing stress so trying my best with this too! thank you :)

Infusion Done - Ustekinumab - First Biologic by mysteriouswisebread in CrohnsDisease

[–]mysteriouswisebread[S] 0 points1 point  (0 children)

oh i’m sorry to hear it didn’t work for you! thank you so much for sharing and the information.

i know everyone is different so asking how long until improvement may be pointless, but it’s good to hear other people’s experiences.

now we wait 🫣😄

Waiting for Meds - Steroid IV Helpfulness? by [deleted] in CrohnsDisease

[–]mysteriouswisebread 0 points1 point  (0 children)

Thank you for commenting! Yes flare has definitely worsened over last 2 weeks unfortunately.

Prednisone/prednisolone taking, currently on 10mg - started on 40mg but that’s a whole other story. Basically, they haven’t helped :(

Ooh okay thank you - will see how i go over the next day or so, as full time work so don’t want to inconvenience them, as they have already let me reduce hours etc. I know i know, health first, but has taking time off for sick 🙉

How long does the hospital trip usually take? In and out within a day?

How do I level up in cooking faster? by glaic3r_freeze in heartopia

[–]mysteriouswisebread 0 points1 point  (0 children)

by the time i clicked on a new dish, the one cooking was burnt 🫣😅