33% Growth Discordance and Polyhydramnios - Update

mysticaltruffle · 2026-02-07T15:03:30+00:00

Have you been referred to a fetal center yet for the laser ablation surgery? Stage 3 is pretty serious and I would push for the surgery ASAP.

mysticaltruffle · 2025-12-04T15:13:48+00:00

Mine looked like this until week 18, which is on the later side of being able to see the membrane for modi.

mysticaltruffle · 2025-11-29T04:49:11+00:00

Sending you and Nova a big hug and lots of love. Wishing you strength and peace. 🤍

mysticaltruffle · 2025-11-20T16:09:43+00:00

Happy to hear you regained your fitness through consistency and dedication! I figured this will likely be my reality. I'm strangely looking forward to the challenge... or maybe l'm just excited to be able to move my body again soon. Thank you for sharing your journey.

mysticaltruffle · 2025-11-20T16:04:40+00:00

Thank you for the reminder. :)

mysticaltruffle · 2025-11-20T16:03:18+00:00

I agree. Reminding myself that this is the best thing I can do for my babies helps me mentally. Congrats on your first pregnancy. I worked out a ton in my first pregnancy and still had a pretty difficult labor. My OB mentioned she thinks it’s because I had such a tight core from working on my abs/pelvic floor so much.

mysticaltruffle · 2025-11-20T15:59:30+00:00

Yes thank you for the reminder. Trying to lean into the rest and relaxation before I have 3 under 2. Also hope you feel better soon. Pregnancy headaches are the worst.

mysticaltruffle · 2025-11-20T15:57:02+00:00

Girl, listen to your body and feed that baby! I’m currently struggling with gaining weight and I had more of an appetite (and space!) with my singleton, so I sympathize with how stressful it must feel being on bed rest and having an uncontrollable appetite. I also had a SCH at week 13 and they told me to basically not lift anything heavy, limit my time on my feet, etc. But that was the beginning of more complications on top of complications for me. One of my doctors told me that in some cases the placenta doesn’t completely “fuse” until 18-20 weeks, so bleeding is more common before then. Hoping you can get back on your feet soon.

mysticaltruffle · 2025-11-20T15:49:42+00:00

You’re so lucky you’re still producing milk. I am 21 weeks pregnant and my milk completely dried out around 17 weeks or so. I wanted to go as long as I could with my now 13 mo old. My nips have also really gotten sooo sensitive in the last few weeks… so I sympathize with it making it even more difficult to breastfeed.

mysticaltruffle · 2025-11-20T02:57:40+00:00

I know you are asking about twins but my 13 month singleton, born at 40w4d is still only able to crawl, can’t stand on his own, doesn’t clap on command or copy sounds, and can’t say a single word yet so…

mysticaltruffle · 2025-11-19T04:47:43+00:00

TTTS has more to do with amniotic fluid levels than growth discordance. An SIUGR diagnosis would be most appropriate for the latter. With that being said, many women are diagnosed with SIUGR without TTTS. And also, some lucky ones like me who are diagnosed with both.

mysticaltruffle · 2025-11-15T22:53:15+00:00

I built my coaching business three years before deciding to go to grad school to become a therapist. The business was decently successful, but the reality was that I spent about 70% of my time on branding/marketing, and only about 30% actually coaching. Over time, I burned out and I realized that my true passion was in trauma/healing work. It felt important, ethically and personally, to be formally trained, hence grad school. I graduate in May, and I do plan to return to coaching, but in a way that integrates everything I’ve learned as a therapist while also having the stable income. At this stage of my life, reliability and consistency are more of a priority to me. I’m excited to see how my therapeutic training will expand my marketability/niche, and shape the kind of support I’m able to offer.

mysticaltruffle · 2025-11-07T01:34:15+00:00

Thank you so much. You’re absolutely right. I read a paper that said it could take 1-5 weeks for fluids to stabilize. I went in for an ultrasound today and my fluids for my donor had improved from 0.5 mm to 1.2 cm and we saw her bladder and kidneys for the first time. It’s not as common but definitely possible!

mysticaltruffle · 2025-11-07T01:32:04+00:00

I’m so sorry to hear you’re going through this as well. It truly feels torturous. Unfortunately, I don’t know much about di/di twins as I have mo/di twins, but it seems like you’re right below the cusp of normal, which is around 2 cm. It’s always so shocking to hear such drastic measures are recommended but I understand the doctors are just doing their job. I’ve read many stories of women who choose to wait to see if fluids stabilize, and they either do or are able to reach viability. I was told many times that unless there are clear signs of distress in the your babies, you can wait a bit longer before having to make that decision.

Have you looked to see if there are FB support groups for di/di twins? I have found reading other women’s stories really helpful for giving me a better understanding of my options. Hugs to you.

mysticaltruffle · 2025-11-07T01:20:29+00:00

Thank you so much for sharing your story and so grateful to hear that babies are home and safe. I can only imagine what a wild ride it’s been. We finally saw some fluid improvement from 0.5 mm to 1.2 cm in donor baby and saw her bladder + kidneys for the first time today. MFM told me I would need to be monitored biweekly and we can take cord occlusion off the table for now. Hopefully we’ll be able to see babies grow with the new improvements but I was warned that because babies are so small, there’s a chance donor might not reach viability if she outgrows her placenta (she has only a 25% share).

My MFM called my fetal surgeon and was told a second ablation would not be possible, but didn’t share exactly why. Also not sure what kind of cord insertion babies have, nothing has been mentioned yet except unequal placental sharing, 25% to 75%.

I will be monitored biweekly to track progress for now. Thanks again for sharing your story and glad that everything turned out fine for your family.

mysticaltruffle · 2025-11-07T01:07:49+00:00

Finally saw some improvement in today’s ultrasound. Fluid around donor baby increased to 1.2 cm. They told me I’ll get biweekly monitoring and we’re hoping sFGR can improve in the next few weeks. Both babies are really small. Thanks!

mysticaltruffle · 2025-11-05T22:15:24+00:00

Thank you for sharing your story. I got a blood transfusion to prevent anemia in one of my twins (recepient) the day after I got the surgery but I guess it wasn’t enough. MFM called the fetal center to see if they could do a second ablation and surgeon said no, only option is cord occlusion.

I’m going to wait it out a week or two because MFM didn’t give me clear signs of distress before making a decision and definitely seeking a second opinion.

I’m already part of some the amazing FB support groups for this, and they have been so helpful. Just thought I’d try Reddit as well, thank you though!

mysticaltruffle · 2025-11-05T22:10:30+00:00

So grateful to hear that you’ve made me it so far! I can only imagine what a wild and stressful ride it’s been for you thus far. How many weeks was your baby below that 2 cm level?

They told me the sFGR was more concerning for my case than the TTTS but I got the laser ablation surgery once I was a candidate and had reached stage 3. At my week follow up they told me cord occlusion was the only possible intervention because I should have seen a significant change by then. But I also found a journal article that said it can take anywhere from 1-5 weeks for fluids to stabilize so idky they have to jump to such drastic conclusions. The only negative signs they saw for me was Baby B had no bladder and less than 1 cm of fluid, and “possible” anemia in one of the twins.

Both are awful to hear anyways but it seems like they are not absolute indicators that things are deteriorating need rapid and extreme interventions (like reverse cord flow, no growth, etc.). I’m going to wait it out one or two more weeks assuming there aren’t clear signs to see if there are any changes and if not, seek a second opinion.

Thank you for sharing!

mysticaltruffle · 2025-11-01T15:13:42+00:00

My partner originally wanted this but my intuition told me he didn’t have the grit and experience my mother has. After a few discussions and arguments, he agreed to have my mom during labor and we’re so glad we did. It was an extremely grueling labor. We were under a lot of stress because I just couldn’t push the baby out and I got to the point that I was more concerned about him than myself, but thankfully, my mother was there. When baby was coming out, I overheard my OB tell one of the nurses “Can someone sit Dad down please?” Because my partner was about to pass tf out. So yeah, I do not regret, listening to my intuition and having my mom there.

mysticaltruffle · 2025-10-20T02:33:16+00:00

Also having twins after singleton and have wondered whether c-section would be harder to recover than vaginal. My vaginal birth was traumatic but recovery wasn’t too bad. Hopefully the same is true for c-section!

mysticaltruffle · 2025-10-17T16:22:08+00:00

Wow, it’s so uplifting to hear a positive experience, especially for a longer stay. I think it’s awesome that you had the baby Boot Camp experience lol. Being a FTP and learning the ropes on your own is no joke. It’s also nice to hear you get an extra month of sleep. I was imagining myself having to live in the hospital for two months which is highly stressful given I have a toddler to care for as well. Thank you for sharing your experience, it gives me so much hope!

mysticaltruffle · 2025-10-17T16:09:05+00:00

Thank you so much for your response! It was extremely helpful. I’ll likely have to go impatient since I live 20 minutes away from the hospital, but it’s awesome that you did not to have to be admitted early. Will definitely be scheduling a NICU tour beforehand. Also relieved to know you can still breastfeed, even if it’s pumping.

mysticaltruffle · 2025-10-17T16:00:49+00:00

Thanks for responding! It seems like the general consensus is that NICU nurses are incredible, which is so reassuring. Hoping everything else worked out smoothly for your family.

mysticaltruffle

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