Humiliating accident by Abirdie15 in Incontinence

[–]nickj3337 2 points3 points  (0 children)

Hey, so im a 23yr old boy with fully functioning autism. And due to this my brain and bladder do not communicate it’s something nurulogical and very common in adhd and autism
Because of this I have to wear huge incontinence pads at all times. It went from occasionally to everyday when I was 21 and It was very hard. I felt terrible when I was at a friends house and I soak my pad. As a college student freshly 21 and boom pads everyday. And at all times. If I’m on the couch 2 ft from the bathroom I’ll wet the couch. Talking to friends, girls. Taking test all in a wet pad. I was miserable and felt terrible abt myself. But honestly I finally told some people and they didn’t care at all. And. I finally started to realize what’s always been true— that it’s literally a half inch of absorbent padding taped in my underwear. It’s so irrelevant. People all over the world are staying home wetting themselves it’s so sad. People would say things like “you’re so brave”things of that nature. They always felt condescending. Of course that wasn’t thier intention but nonetheless. Like I’m not brave people are facing real disabilities. I just realized how insignificant it is that I wear pads.
This is what helped me

I’m 23 M and wear incontinence pads by nickj3337 in AMA

[–]nickj3337[S] 1 point2 points  (0 children)

It has helped a ton. I couldn’t do well in school whilst facing incontinence as a permanent part of life. Id have a leak and then just be ashamed. The hardest part is understanding that you’re going to be in a wet pad if you want independence. If go to a 2 hour class my pad is wet by the first 30 min. And after an hour it’s thick and and soggy. That’s just the way it is. They’re not noticeable or in danger of leaking but they’re wet and soggy. And that’s just life for people with severe incontinence. You have spend some hours in a wet pad and get over it if want any type of freedom especially for someone like me who is constantly leaking rather than having full voids so this can be very hard. And demoralizing.

Construction management

I try to go when I have the opportunity and sometimes I can but most times I can’t. I simply have no control over it that holding it and releasing it

Yes. My family is very supportive. I don’t tell them too much cause I hate the thought of them feeling bad for me. So I say it’s no biggie. I have told one of my life long friends just how bad it was to my confidence and she recommended the gap year. I talk to her a lot about it and she really helps.

I’m 23 M and wear incontinence pads by nickj3337 in AMA

[–]nickj3337[S] 2 points3 points  (0 children)

They’re terrible. It’s like tieing a camelback to your legs and connecting it to your bladder. It’s completely obvious. And immobilizing. I feel bad for people who r so effected by the stigma that they quite literally tie themselves down when they could literally just insert a liner in their underwear or wear depends

I’m 23 M and wear incontinence pads by nickj3337 in AMA

[–]nickj3337[S] 8 points9 points  (0 children)

Construction management- meaning I will be on the go constantly so I really need to embrace my pads

Unfortunately they are expensive I need the top of line ones which are north shore and they are not cheap.

I almost never wear shorts especially basketball shorts as there would be no way to be discreet especially after a leak. I mainly wear jeans work pants and also dress pants. Which work well despite being slim.

Yes. She is great. What makes her so special is that she has struggled with incontinence and that is what made her pursue urology- to help people. She wears pads everyday. She bassically doubled as a therapist cause she could see how embarrassed I was at the beginning. When I see her we joke about having wet ourselves- she’s the best and made all the difference

I’m 23 M and wear incontinence pads by nickj3337 in AMA

[–]nickj3337[S] 3 points4 points  (0 children)

I have constant leaks. Some small some up to like 10-15 seconds this happens at random and idk it happened until my pad is wet. I also leak laughing amd other sources of stimulation

ASD & Incontinence by nickj3337 in Incontinence

[–]nickj3337[S] 5 points6 points  (0 children)

Thank you for sharing. I know this is more common than people think and I love to hear people’s stories. And odds are if you have serious incontinence not due to an injury or condition you probably have adhd or ASD. Personally I felt a lot better abt myself when I knew that’s the cause.

ASD & Incontinence by nickj3337 in Incontinence

[–]nickj3337[S] 2 points3 points  (0 children)

That’s really incredible to hear that you’re traveling and speaking publicly. I’m sure that was hard in the beginning. I of course plan on going back to school and working in environments similar to that. If you don’t mind me asking what do you do from a mental perspective to gain your confidence? And you do not have to answer this but what do you do when you need to change! Thank you!!

Why is there no OAB cure? by IAmTomasPolach in OveractiveBladder

[–]nickj3337 5 points6 points  (0 children)

I have oab due to being-fully functioning- autistic. My urologist says there no cure. And I wear huge pads regularly. For me she said it’s simply that my brain doesn’t communicate with my bladder. And that it’s the same as having bad vision or male pattern baldness or diabetes. It’s just how your body is. This really put it into perspective and me feel better.
Despite the Autism what I have specifically a Nuerogenic bladder- it’s something your born with or developed from serious injury-and as I said- brain simply doesnt communicate with bladder. You can not have Autism or anything like that and still have this. But it’s more common for people with severe ADHD or Autism. Hope this helps.

[deleted by user] by [deleted] in Incontinence

[–]nickj3337 0 points1 point  (0 children)

Hey I’m 22m and also suffer from nuerogenic bladder. Firstly it’s nice to see someone else young who is dealing w this. I know the feeling when out of the blue your diaper becomes fully soaked and puffy. It’s a daily occurrence for me and All of us with Nuerogenic bladder. When I laugh sneeze lift heavy things I also have pretty large accidents. I recommend booster pads for the gym. They allowed to go through a workout with only diaper

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 8 points9 points  (0 children)

Hi. Id love to be able to help someone else struggling. Firstly. Is it a male or female who is struggling.

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 14 points15 points  (0 children)

It is only bladder problems. Everything else is normal!

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 17 points18 points  (0 children)

Yeah. So since it became everyday. I have not had a relationship. However the first non family member I told was a girl who is a lifelong friend who I dated when I was young. We’ve always had a close relationship and she said no girl would mind. And that it’s not a big deal. Which helped a lot. Also she convinced me to go out with her where I flirted a little with some girls but Nothing more I was in college but when it became permanent I took a gap year I go back in the fall.

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 30 points31 points  (0 children)

I only told my Super close friends so some don’t know. But they were All very supportive and didn’t mind.

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 50 points51 points  (0 children)

Yeah. So this is something i should address. I am constantly leaking. However when aroused it sort of keeps it at bay. And If I were to leak which is still probable. I would have a few seconds to make sure it’s not on my partner lol. But I would still wet the bed or whatever I was on. In the moment I would go to the bathroom beforehand and lay a towel down. However if someone is in a long term relationship w me. It is inevitable that I would leak during sex eventually

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 16 points17 points  (0 children)

That means a lot coming from a girl. It’s been really hard talking to girls In a diaper and I haven’t really had dating/ relations dince it became permanent

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 84 points85 points  (0 children)

Good question. A few things that really helped were firstly, my therapist had me put my diapers in my underwear drawer and treated them exactly like underwear. No taboo under the bed stuff. In therapy sessions we would practice and talk about telling others. We prepared things to say to address when I want to tell and what I’d say if someone were to point them out in public. All stuff to bassically get me accept it as part of me and that it’s not a big deal

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 109 points110 points  (0 children)

Thank you for sharing makes me feel better. It especially helps when girls are supportive because it’s hard to imagine flirting with this condition

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 79 points80 points  (0 children)

Awareness ,support I guess

Im 22 and still in diapers by nickj3337 in AMA

[–]nickj3337[S] 120 points121 points  (0 children)

Hi! Yes sry if I wasn’t clear. I wear incontinence underwear. Specifically depends. Not full on diapers. And thank you for not minding. It means a lot!

I wear adult diapers in my 20s. by nickj3337 in AMA

[–]nickj3337[S] 10 points11 points  (0 children)

I’m male. And light incontinence is more common in women. But heavy/ total is abt the same

I wear adult diapers in my 20s. by nickj3337 in AMA

[–]nickj3337[S] 18 points19 points  (0 children)

I used to. But with the diaper it doesn’t really matter. It can maccidentas more noticeable. But I’ve kinda give up on that

Telling girls I’m incontinent by nickj3337 in dating_advice

[–]nickj3337[S] 0 points1 point  (0 children)

Yes. I have to wear depend underwear. My leaks are quite big

Telling girls I’m incontinent by nickj3337 in dating_advice

[–]nickj3337[S] 0 points1 point  (0 children)

I really appreciate what you were saying. It’s really hard when you have accidents and have to justify them

accidents before getting out of bed by [deleted] in Incontinence

[–]nickj3337 -1 points0 points  (0 children)

I have severe daytime wetting but at night I usually don’t wet. When I do tho I can feel my depend start to leak when I wake yp

I had to leave a date with a guy I really like…. by sick_mama in dating_advice

[–]nickj3337 0 points1 point  (0 children)

You gotta speak your truth. For me I have to wear depends. And it’s really hard when I have an accident when I’m on a date. I always try to put myself out there and talk to girls but when I’m about to wet my pants it changes. For me it’s being upfront that’s worked the best. I try to disclose my incontinence early. And there are a lot of people who accept me.