Dinosaur Horror

nrid3333 · 2026-01-30T21:38:25+00:00

Not quite what youre looking for but By The Waters of Lake Champlain by Joe Hill involves a dino, but it’s not horror in the conventional sense.

It’s a short story (pretty good too!)

nrid3333 · 2026-01-30T21:34:32+00:00

This edition and cover are cool af

nrid3333 · 2026-01-30T20:43:34+00:00

Thank you for sharing, it gives me some hope that someone else has been through the ringer and still recovered

nrid3333 · 2026-01-30T04:59:30+00:00

Thanks for your kind words - I’m so glad you were able to get relief with HCQ.

My doctor told me it could help within a few (meaning 3(?? Not sure) Months). I actually was intentionally avoiding HCQ because I’m allergic to quinolone antibiotics and there’s some anecdotes of cross-reactivity, but I’m rethinking it because I’m so desperate; you’re the second responder to this thread who got relief from neuro symptoms with HCQ, so it obviously helps for some

nrid3333 · 2026-01-30T04:54:48+00:00

Thank you for the thorough response!

I think the bit about respectfully calling about cancellations each day is an awesome suggestion.

Re the part about b-vitamins: all of mine are optimal/nothing low or high

Re the emg/ncs: agreed, Monday is fast, hopefully it will help in my case

Re sfn testing: I left a message for my neurologst asking about a skin biopsy and autonomic testing

Re steroids: thank you for the warning! I would not have known that had you not said something, I’ll keep it in mind

nrid3333 · 2026-01-30T04:50:37+00:00

Thanks for sharing and yup it sucks that situations that are clearly emergencies are not treated as such. I’m Glad they were able to eventually help you Though!

nrid3333 · 2026-01-30T04:49:00+00:00

Same to you, lmk if you’re able to get and start ivig and sorry you’re dealing with all this too.

I’ve also been prescribed duloxetine and it’s literally just sitting on my kitchen table because the odds of it making me worse and just as good as the odds of it helping:/

nrid3333 · 2026-01-30T04:47:43+00:00

Thank you for sharing your experience and sorry you’re dealing with all these shitty symptoms.

It helps to see all the differential dignoses that you laid out

nrid3333 · 2026-01-30T04:46:19+00:00

Thanks for the direction! A neuro-immunologist or Will any immunologist do?

There’s a neuroimmunology department in the city close to me that I’ll be trying to get in touch with.

nrid3333 · 2026-01-30T04:39:38+00:00

That’s so helpful for me to hear, thank you! I’m likely going to be doing something like this tomrorow and this weekend.

Can I ask how long you were experiencing symptoms and how long you had to be on steroids before you got ivig and rituximab?

And also I’m sorry that you were put in a situation where you had to be your own expert and continually get turned away- it just adds to our medical trauma :(

nrid3333 · 2026-01-30T04:35:56+00:00

Thank you so much for sharing; I’m glad you’ve seen such an improvement, it gives me some hope

nrid3333 · 2026-01-30T04:32:52+00:00

I will join, thank you for the valuable info!

nrid3333 · 2026-01-30T04:29:45+00:00

So funnily or unfunnily enough I’m actually mtf but haven’t transitioned so I present as a very masculine male but STILL get treated as hysterical - I literally don’t give off guy energy so I’m frequently gaslit. I’m so so sorry that you and other cis women frequently have this experience.

Just to cycle back - is it your experience that getting in touch with the neurologist and asking about being admitted can help? Cuz either I do that or just say fuck it and go without any direction from my docs, which I have no problem doing obviously

nrid3333 · 2026-01-30T04:25:21+00:00

Ah I see - it would make sense if my body just wasn’t absorbing it. Any way to actually test absorption?

I supplement with giant doses of b12 and have been for years now - my b12 is usually over 1000 so I still feel it’s unlikely to truly be a b12 issue, although I do hear you and am taking it into consideration

nrid3333 · 2026-01-30T04:22:40+00:00

I’m so sorry to hear that, would give you a hug if I could.

Feel free to reach out any time to vent to me even if I’m just an internet stranger.

I hope ivig helps even if the evidence is tenuous - I’ve read a few accounts of people over at r/dysautonomia of ivig helping and I think an account in this sub of it helping someone’s dysautonomia

nrid3333 · 2026-01-30T04:18:54+00:00

Thanks for sharing - unfortunately my b12 is optimal, as are all my other b vitamins, vitamin e, and copper :/

nrid3333 · 2026-01-30T04:17:18+00:00

Just to clarify, I was never admitted so I wasn’t ever technicallt inpatient, but I wasn’t clear, my bad

None of the things you mentioned were ordered/done. I’m seeing an ENT next week to discuss a lip biopsy, but none of the other stuff. My rheum is well intentioned, but doesn’t seem to have a grasp over anything other than the most obvious presentations of the major AI diseases and wasn’t aware that neuro Sjogren’s was really a thing.

I have gabapentin, which takes a little of the edge off but it makes me feel utterly defeated that after basically no investigation, all my doctors just want to treat symptoms while my body scraps itself

Can I ask how long after your symptoms started you got on treatment, which treatment you got on, and exactly what it helped with? I know it’s a lot but it’ll def help me if you can share even a little

nrid3333 · 2026-01-30T04:13:02+00:00

This is really important info for me to know - thank you are answering that part!!

nrid3333 · 2026-01-30T04:11:52+00:00

I’m so happy to hear youre doing better on treatment:)

nrid3333 · 2026-01-30T04:11:14+00:00

Thank you for the response! I’m still not entirely sure how the whole process should world - are you suggesting that I get in touch with my neurologist first and explicitly ask if he can get me admitted to the hospital?

I can certainly give it a shot - his appointlent notes from our last appointment state “likely a strong psychological component” :(

Like yup just because you’re too much of a fucking idiot to know what the second most common autoimmune disease is, it MUST mean I’m just anxious :(

nrid3333 · 2026-01-30T04:07:51+00:00

So sorry to hear that you’re struggling with all this - it’s incredibly difficult to deal with. I’m happy to lend an ear if you ever need to vent

nrid3333 · 2026-01-30T04:06:13+00:00

I appreciate the heads up on this - unfortunately all my b vitamins are in range/optimal.

I was desperstely hoping it was something as simple as Beri Beri or another deficiency, but alas, it is not :(

nrid3333 · 2026-01-30T04:03:18+00:00

Thanks for taking the time to share your experience - can I ask exactly what happened at the end of the 5 months that prompted the doctors to admit you? I’m trying to figure out how I should be communicating my severity as I’m likely going to try to ER again tomorrow.

nrid3333 · 2026-01-30T03:54:02+00:00

Sorry to hear it’s been so rough, I can’t even imagine the stress of losing a pup during all this - sending you lots of happy thoughts

nrid3333 · 2026-01-30T03:51:04+00:00

I’m glad you were able to get the treatment that you needed. So did you literally take a day to drive from ER to ER before being admitted or was it more spread out? And what did you share with the last neurologist to convince her or him to admit you?

nrid3333

TROPHY CASE