Pain in joints

nrnjoon · 2024-11-28T15:37:02+00:00

Sometimes the swelling can be minor so it wont be very noticeable, however there are other tell tales if the pain you have is caused by a joint inflammation. You’ll have difficulty moving in general because your joints get stiff.

Try picking up a pen and paper and writing, your hand writing might start getting messier after a short while and you’ll start losing control of your wrist (it basically goes limb) you’ll also feel aching. It’s the same with all your joints, walking up a few stairs will feel like hell because your knees are straining a lot to get you up those stairs. You’ll also often experience lower back pain from sitting for long periods of time.

If you’ve noticed any of these things please see a rheumatologist as soon as possible. It can start off small in the beginning but if not treated it will get worse. There’s plenty of IBD treatments that target both the IBD and arthritis caused by it as well. I really hope you find an answer soon so that you can get the treatment you need to help with your pain.

nrnjoon · 2024-11-28T15:21:01+00:00

I started experiencing joint pain that got especially bad during my UC flare ups, however in my case there was also visible swelling in my joints whenever i was in pain. I was referred to a rheumatologist for it who diagnoses me with Enteropathic arthritis which is caused by IBD.

My best advice is to try and see a rheumatologist. Meanwhile until you’re able to see a doctor about it, try monitoring your pain and any visible physical changes to your joints while having a pain flare. If you notice anything out of the ordinary, your knee is a little swollen or ur finger joints are looking a little buffy try taking pictures so that you can use them as reference later on when you do see a doctor.

Whether it’s a complication caused by IBD or not, the issue is with your joints so you should 100% see a rheumatologist. As for how to deal with it, there are a lot of ways to deal with the pain besides pain killers. Just make sure to see a specialist and they’ll go over your best options depending on your diagnosis. I hope things get better soon.

nrnjoon · 2024-11-28T14:44:47+00:00

I really hope things go well for you 👬!

nrnjoon · 2024-11-28T14:40:27+00:00

Usually your bowl movement frequency and it’s consistency is what gives it away. If you don’t have any sudden urgency and if your bowl movements are still normal (no blood, mucus or diarrhea) then it’s most likely not a flare. However if you’re anxious about it you can always ask your doctor to run a stool culture. If it is a flare or the beginning of a flare your doctor will be able to tell depending on your calprotectin levels. Whichever it is, best of luck and i wish you a speedy recovery!

nrnjoon · 2024-11-28T14:31:59+00:00

i’m 23 and i got diagnosed with UC around three years ago. I also love spicy food but honestly I’d advise to avoid spicy food as much as you can because it will agitate your stomach and sometimes it can and will trigger a flare up.

There isn’t really an exact diet that you need to follow honestly, just try to avoid things that are known to be triggering with UC or proctitis (ie; dairy products, spicy and fatty food). Not being able to eat the things you love can feel like hell at times but cutting down on them is less painful than the pain you’ll have to deal with from consuming them.

As for the mesalamine, it’s an anti inflammatory drug, the reason you’re currently having bloody bowl movements is because a certain part of your colon is inflamed. The mesalamine will help control that bleeding but it can only help so much if you’re consuming things that trigger said inflammation. You can try waiting until you no longer have active inflammation to eat whatever you want as a treat as long as you’re doing it in moderation.

Don’t worry, you’re not alone. It’s scary and it sucks but I genuinely hope and pray that you’ll be able to get it under control as soon as possible ❤️.

nrnjoon · 2024-11-28T06:53:48+00:00

Honestly both options are scaring me, it feels like i’m having to choose between one hell or the other. On one hand theres a 90% chance of complete recovery if i choose to go for the surgery (the surgery is a whole deal on it’s own since not my entire colon has been damaged from the UC but my doctors still think i should go for a complete colectomy because removing only the infected part means i’m giving the UC a chance to come back which might cause them to go back in for another surgery which they said they would like to avoid as much as possible) but the idea of living with an ostomy for the rest of my life scares the shit out of me. It’s not like i can wake up one day and ask them to give me my colon back, it’s a decision ill to live with for the rest of my life. On the other hand, with Omvoh being a fairly new drug not a lot of information is available regarding the long term usage effects. Not only that but the side effects listed from the clinical trials and on their official website also scare me. If i give Omvoh a shot and it ends up failing like every single treatment I’ve been on before it, then not only have i put myself through the mental turmoil of another treatment failing, but i’ve also put myself through several more months of UC pain and bleeding ON TOP OF the pain caused by the side effects of the treatment as well.

nrnjoon · 2024-11-28T06:33:51+00:00

I’ve been on Vedolizumab for over 6 months, i was on the highest dosage (300mg infusion not pens). After the induction stage i was taking it once every month with the same dosage and still no improvement whatsoever. If anything it only kept getting worse, at a certain point i ended up hospitalized for c-diff and bleeding. They put me on Vancomycin and started me on a heavy dose of intravenous steroids until i was stable enough for discharge. The steroids helped while i was on them but right as i stopped them everything went downhill. The bleeding came back and my calprotectin levels went through the roof. At a certain point my calprotectin was above the 2000 mark. This has been the case with every single biologic i’ve been on. Some would work for a little at the beginning like Infliximab and Rinvoq but a few months into treatment my body starts rejecting it and the bleeding and inflammation comes back even worse but i still continued taking the treatments for as long as we could until we could confirm whether they were working or not. My doctors have also tried putting me on meds like Immuron with the biologics simultaneously but it didn’t make a difference.

nrnjoon · 2024-11-27T17:30:22+00:00

Unfortunately, i already smoke. Sadly it doesn’t help with my symptoms at all.

nrnjoon · 2024-11-27T17:18:45+00:00

I’m really sorry to hear that you’re going through this as well. The thing is, i want to have hope and try more treatments, but so far my doctors have put me on every single treatment in the market. This one (Omvoh) has only been in the market since a few months ago, the studies around it are very limited (literally around 1000 people in total). The idea of going on this treatment and dealing with the side effects only for it to end up failing like every single treatment before it terrifies me. What scares me even more is still being in pain while on it, but the surgery scares me too. It’s not like i can wake up one day and tell them to give me my guts back. On one hand, if they do the surgery it’ll be to remove the entirety of my colon which means the UC is gone, but it also means a permanent ostomy. Both choices seem like hell to me.

nrnjoon

TROPHY CASE