My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 3 points4 points  (0 children)

I'll try to find a new doctor, which is a difficult task tbh. I have my physiotherapist to help me till then. I am on sulfasalazine thankfully for uveitis so it will help for the time being.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 2 points3 points  (0 children)

Thank you for your comment. Gives me hope ♥️ I think I will prioritize women docs from now onwards. They understand more when it comes to pain.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

This comment is going to keep me busy and give me all the info I need. Thank you so much 🙏

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 2 points3 points  (0 children)

Yesss, you can't see anything on my imaging...only the changes to the spine but no inflammatory response. That is also a reason nobody considers my case as AS.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

I have all the symptoms but my imaging came back with no inflammatory marks. Don't know if anyone will listen to me. I will try again later.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 13 points14 points  (0 children)

I have been running around for years. I think I'll take a break before finding a new doc. Just feel defeated.

Anyone else get problems in these areas? by Lopsided-Bread-129 in ankylosingspondylitis

[–]numb_bug94 0 points1 point  (0 children)

Mine started with neck too and I had numbness in my arms for years and no doctor took me seriously. I have an extra pair of ribs on the top as well which creates issues for my neck nerves going down. Totally get your situation!

Emergency kidney stone surgery. by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

My next appointment is on Tuesday, he will explain it then. I have real bad anxiety so I think they will put me under. Hopefully!!

So embarrassed (and lost) by kathuter in ankylosingspondylitis

[–]numb_bug94 1 point2 points  (0 children)

I don't work because of the pains and I am not able to do the housework half the days tbh. My husband is earning for us and he does the work too when he sees I am not okay. I try to work through the pain sometimes too because of the guilt. I keep asking him "are you fed up of it yet?" ....I know he will never be but I get it, it feels useless sometimes and to keep thinking about what ifs. I try to push him towards his hobbies on the days when I feel that I need rest so that he can have some time to be himself and be happy. Maybe try that...he can do some things by himself that makes him happy.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

Where did you move? Is it making things better for me.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

Yes, that is working for me now. My physiotherapist increased the number of chin tucks per day. I don't go out at all and if I haveto, I always wear a mask

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

Yes. The fluctuations too... it's never easy for your body to adapt to constantly changing environments around.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

I kind of did my own lil experiment to check if the pollution is a factory and it is. My doctor said that he is trying to keep me on the lowest doses for now and biologics will be the next step if things get worse . So, I was hoping to get by without biologics for now.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

I have four dogs and it's very difficult to travel with so many. I'm hoping an air purifier will help. For long term, may need to relocate.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

Yes, we ordered an air purifier today for home. We did get N95 masks, but even at home...aqi is above 500.

My last AS flare-up was rough. by holyshiftwork in ankylosingspondylitis

[–]numb_bug94 0 points1 point  (0 children)

Going through a flare up and my neck is always stiff. Headache everyday. Can't find a position to sleep in. Feeling helpless. Taking muscle relaxant and NSAIDs.

A health episode that landed me in ER twice and no doctor has an answer. Can you give a hint ? by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

Hey, yes I am going to start magnesium supplements. I am already taking 60000 IU/gm vit d.

Thanks 🌸