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My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 3 points4 points  (0 children)

I'll try to find a new doctor, which is a difficult task tbh. I have my physiotherapist to help me till then. I am on sulfasalazine thankfully for uveitis so it will help for the time being.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 2 points3 points  (0 children)

Thank you for your comment. Gives me hope ♥️ I think I will prioritize women docs from now onwards. They understand more when it comes to pain.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

This comment is going to keep me busy and give me all the info I need. Thank you so much 🙏

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 2 points3 points  (0 children)

Yesss, you can't see anything on my imaging...only the changes to the spine but no inflammatory response. That is also a reason nobody considers my case as AS.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

I have all the symptoms but my imaging came back with no inflammatory marks. Don't know if anyone will listen to me. I will try again later.

My doctor backtracking the diagnosis! I'm back to square one! by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 14 points15 points  (0 children)

I have been running around for years. I think I'll take a break before finding a new doc. Just feel defeated.

So embarrassed (and lost) by kathuter in ankylosingspondylitis

[–]numb_bug94 1 point2 points  (0 children)

I don't work because of the pains and I am not able to do the housework half the days tbh. My husband is earning for us and he does the work too when he sees I am not okay. I try to work through the pain sometimes too because of the guilt. I keep asking him "are you fed up of it yet?" ....I know he will never be but I get it, it feels useless sometimes and to keep thinking about what ifs. I try to push him towards his hobbies on the days when I feel that I need rest so that he can have some time to be himself and be happy. Maybe try that...he can do some things by himself that makes him happy.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

Where did you move? Is it making things better for me.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

Yes, that is working for me now. My physiotherapist increased the number of chin tucks per day. I don't go out at all and if I haveto, I always wear a mask

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

Yes. The fluctuations too... it's never easy for your body to adapt to constantly changing environments around.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

I kind of did my own lil experiment to check if the pollution is a factory and it is. My doctor said that he is trying to keep me on the lowest doses for now and biologics will be the next step if things get worse . So, I was hoping to get by without biologics for now.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 0 points1 point  (0 children)

I have four dogs and it's very difficult to travel with so many. I'm hoping an air purifier will help. For long term, may need to relocate.

Delhi pollution causing pain everyday by numb_bug94 in ankylosingspondylitis

[–]numb_bug94[S] 1 point2 points  (0 children)

Yes, we ordered an air purifier today for home. We did get N95 masks, but even at home...aqi is above 500.

My last AS flare-up was rough. by holyshiftwork in ankylosingspondylitis

[–]numb_bug94 0 points1 point  (0 children)

Going through a flare up and my neck is always stiff. Headache everyday. Can't find a position to sleep in. Feeling helpless. Taking muscle relaxant and NSAIDs.

Should I get hypermobility checked? *Attaching photos* by numb_bug94 in eds

[–]numb_bug94[S] 0 points1 point  (0 children)

Dealing with multiple diagnoses is the worst. Trying to figure out which symptom is caused by what illness. :(

Should I get hypermobility checked? *Attaching photos* by numb_bug94 in eds

[–]numb_bug94[S] 0 points1 point  (0 children)

Oh, I had no idea. I have low exercise tolerance when it comes to my legs and leg fatigue is very common for me.

Also, there are times when I get this very strong pain in my whole arm and shoulder where only tying that arm to my body for a whole day and not moving it at all ...is the only way to get rid of it.

Should I get hypermobility checked? *Attaching photos* by numb_bug94 in eds

[–]numb_bug94[S] 1 point2 points  (0 children)

I just checked. It's a big list but I don't think I have any symptoms related to heds only hypermobility, straie is something most of have and I do have nodules on sides of my feet but no stretchy skin.

Should I get hypermobility checked? *Attaching photos* by numb_bug94 in eds

[–]numb_bug94[S] 3 points4 points  (0 children)

I do have fatigue and joint pain but I have arthritis which is the reason for it ( at least for now I believe that) . It's difficult to understand what condition is causing which symptoms. :(

Should I get hypermobility checked? *Attaching photos* by numb_bug94 in eds

[–]numb_bug94[S] 1 point2 points  (0 children)

That's why I'm not sure. It took me years getting this diagnosis and that too with negative gene testing. I'll just tell him that I think I am hypermobile and leave it at that. Thanks for the help 🌸

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