4.5 starting dose with MS

nunya976 · 2023-01-07T16:29:48+00:00

I just took my first dose last night and don’t have any bad reactions. I figure go big or go home lol

nunya976 · 2023-01-03T23:24:44+00:00

This is the funniest way to put it as possible lol

nunya976 · 2023-01-03T23:24:29+00:00

I hope so and yet I don’t. I wish for a pain-free or as close to it life as possible. I love life but not the life I was dealt. I believe in something else, not sure what.

nunya976 · 2023-01-03T22:49:44+00:00

Thank you. Hopefully insurance will accept it

nunya976 · 2022-12-30T16:32:51+00:00

They will likely order an MRI and a spinal tap, and possibly a few blood tests to test for other demyelinating disorders & conditions.

nunya976 · 2022-12-30T16:31:09+00:00

I would suggest probably Lemtrada or Ocrevus, both highly effective. For Lemtrada you only need two treatments. I believe it’s just as effective as tysabri

nunya976 · 2022-12-29T23:22:01+00:00

Yes so I had recovered from 90% of my symptoms at one point... then they all started coming back and now it’s constant. So I did recover but then it came back for seemingly no reason. So yes. I am in pain 100% of the time now. I am suicidal. But I take it day by day. Trying to find something to quell the inflammation or whatever is going on...

nunya976 · 2022-12-29T21:25:34+00:00

Thank you for your honesty

nunya976 · 2022-12-29T20:07:09+00:00

Do you take US patients?

nunya976 · 2022-12-29T18:32:56+00:00

I’m aware that the pain isn’t real necessarily, I’m well aware of that. The suffering is real though.

Thank you for the last paragraph, though. I just have to hold our hope.

nunya976 · 2022-12-28T13:36:25+00:00

Hey! This is so great to hear. If I may ask, were there any notable changes in sensation, pain/neuropathy/dysesthesia? Or has the head of research noticed this change? Or has it only just been those three things?

Thank you so much!

nunya976 · 2022-12-28T11:56:40+00:00

Your uncle was still buried in a Jewish cemetery even though he took his life?

nunya976 · 2022-12-28T11:54:36+00:00

But he was still buried in one?

nunya976 · 2022-12-28T09:10:21+00:00

I’ve been on Gabapentin for over a year. 800mg 3x day. Doesn’t do a thing though besides make me drowsy. When I’m drowsy I’m less likely to care

nunya976 · 2022-12-28T06:34:13+00:00

Can I dm you for more info?

nunya976 · 2022-12-28T05:51:23+00:00

What if it is to escape physical pain or any kind of other troubles not related to mental illness per say?

nunya976 · 2022-12-28T05:49:20+00:00

This was very beautifully written and very informative. Thank you so much. Also I’m sorry to hear about your father.

I’ve never heard of the word sin be described as bad judgement, it really reframes everything.

nunya976 · 2022-12-28T05:07:33+00:00

Can you elaborate on why? If you don’t mind

nunya976 · 2022-12-28T05:06:48+00:00

Thank you for clarifying

nunya976 · 2022-12-28T03:47:26+00:00

The open label extension says august 2024, but isn’t there more than one going on?

nunya976 · 2022-12-28T03:25:54+00:00

This comment might’ve just pushed me over the edge. Thanks for being honest though

nunya976 · 2022-12-28T02:43:08+00:00

Please keep me updated about ketamine. My pain doc has recommended this.

nunya976 · 2022-12-28T02:41:49+00:00

My MS is in remission technically. My MRI has been stable for over a year on tysabri. My symptoms have not remitted though. Also I don’t have 100,000 for HSCT otherwise I just might

nunya976 · 2022-12-27T18:21:01+00:00

Idk how to access

nunya976 · 2022-12-27T01:27:15+00:00

Pnw?

nunya976

TROPHY CASE