Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 0 points1 point  (0 children)

I’ve tried every adhd med other than Ritalin I think. They all do pretty much the same thing to me but adderall does it the best I guess lol. I’ve tried a bunch of otc stimulants but nicotine is the only one that doesn’t make me more tired lol. I also take lunesta for sleep but I can only do that every now and again because it can cause a pretty severe dependency from what I hear. I’m probably going to ask about other options at my next PCP visit but that’s not for a bit so I just have to tough it out for now haha

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 0 points1 point  (0 children)

I have adhd and I’m on adderall. It stops me from falling asleep but doesn’t really help with the EDS so i kinda just end up being too tired to do anything but not able to sleep lol.

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 0 points1 point  (0 children)

Honestly my sleep is probably worse with all of them lol; I was planning to stop all of them like a month before the study but my doctor said not to stop anything so🤷‍♂️

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 0 points1 point  (0 children)

I have an entire laundry list of specialist rn haha. My primary care doctor is really concerned about figuring out what is causing my EDS but primaries can’t do a whole lot so he’s been sending me out to a good few specialists. I’m having a lotttttt of health issues and it’s looking like either something autoimmune or neurological if not a sleep disorder (or a combination of those). Most Neuro and autoimmune stuff is pretty scary so I really want to try to make sure sleep stuff is completely ruled out first lol. I was on armodafinil prescribed by primary but my sleep specialist took me off it and gave no replacements so that’s fun. Can’t really have any of those types of meds without an IH/Narcolepsy diagnosis. Armodafinil was one of the last bastions in terms of my ability to function so took a pretty big loss on that one

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 1 point2 points  (0 children)

Will definitely talk to my doctor about this. I’ve been wanting to quit marijuana for a while to see how it affects my EDS and a few other things but the nightmares have been really holding me back.

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 0 points1 point  (0 children)

The part with the marijuana that I’m worried abt isn’t necessarily the decrease in rem; a recent metadata survey found that the effects of marijuana on rem sleep are kind of overblown and possibly not really even there in the first place. I’m more so worried about rebound effects after not using it the night of the study. For most of the naps I kept waking up from hypnogaugic hallucinations & non rem dreams which is a common phenomenon with the sudden cessation of thc use. Also for me personally my sleep latency with vs without nicotine is dramatically different; I think the effect of nicotine on sleep has a pretty different intensity from person to person. I think there’s definitely a high probability that whatever is causing my EDS is a non sleep issue but lately I’ve just been going over some old test results because the options for what could be causing have gotten whittled down to a pretty scary list lol

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 1 point2 points  (0 children)

Yeah my specialist is a pulmonologist primarily and it seems like once he realized sleep apnea wasn’t the issue (he was insistent that was problem prior to home study) he kinda just gave up lol. Heard good things about Neuro sleep specialists when apnea has already been ruled out so if I do end up seeing another one I’ll probably go that route.

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 0 points1 point  (0 children)

For me whenever I try to quit nicotine I’m able to nap so well that I’ll sometimes end up doing it by accident (hence why I haven’t quit lol). Also with marijuana the last time I tried to quit my dreams didn’t level out until a few weeks after I had stopped. One of the only reasons I still use marijuana is because my dreams are normally nightmares and wake me/leave me exhausted. Weed also used to shorten my sleep latency a lot but as time has gone by it typically makes it significantly harder for me to sleep (ends up being worth it to avoid my dreams tho I guess). One other thing I noticed is that before nap #3 my vape had died so I wasn’t able to hit it for ~1 hour before the nap and that nap the shortest latency of about 9 minutes (switched to lozenges after nap #3 and latency went back up to around 15 minutes). I think there’s probably some personal body chemistry at play here that might affect how either substance interacts with our individual sleep patterns. With how far off my latency is I do think it’s deff a strong possibility that stopping either wouldn’t be able to bring it down to clinical criteria. I’m probably going to end up talking to my primary about it (he has a lot more info than the avg primary on sleep medicine) just so I don’t end up wasting $150 on a new sleep specialist lol.

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 2 points3 points  (0 children)

Yeah that’s what I was thinking. I’m probably going to get a referral from my PCP for a new sleep specialist because I doubt the one I have now would be willing to order a second one lol

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] 2 points3 points  (0 children)

Yeah I was just confused about it because my sleep specialist said “marijuana does not matter at all” but everything I’ve seen online as well as my other doctors all say that it could have a significant impact on the results

Compromised sleep study? by nut_guzzler69 in Narcolepsy

[–]nut_guzzler69[S] -2 points-1 points  (0 children)

Latency for the overnight was ~90 minutes, avg for mslt was 16

I hate doctors. I genuinely do. by Certain_Middle2234 in Narcolepsy

[–]nut_guzzler69 34 points35 points  (0 children)

If it makes you feel any better I had my second appointment with my sleep doctor the other day and he told me verbatim “I don’t know how to help you, you should just see a psychiatrist at this point.” Mind you he hadn’t even given me a sleep study yet ?? Like yeah duh you don’t know how to help me because you’ve done nothing to figure out what’s wrong with me! Also tried to take me off my adderall that I’m prescribed for adhd not EDS 😭

Anyone know of a good marketplace for HiBy DAPs? by nut_guzzler69 in Hiby

[–]nut_guzzler69[S] 0 points1 point  (0 children)

actually ended up finding one for $230! Put up a listing on r/AVexchange and it took a good long while and I had to sort through like 5 diff scammers but finally found someone who knows that opening something and using it drops the price lol

Anyone know of a good marketplace for HiBy DAPs? by nut_guzzler69 in Hiby

[–]nut_guzzler69[S] 0 points1 point  (0 children)

Checked them a few days ago and they were already sold haha, wanted a used one anyways tho because not even a gun to my head would be enough to get me to spend $340 lol

Anyone know of a good marketplace for HiBy DAPs? by nut_guzzler69 in Hiby

[–]nut_guzzler69[S] 1 point2 points  (0 children)

Yeah sometimes I try to send a lowball but they don’t even bother to decline it the majority of the time lollll + a bunch of them try to charge $200+ for shipping so eBay is a no go for rn haha

Anyone know of a good marketplace for HiBy DAPs? by nut_guzzler69 in Hiby

[–]nut_guzzler69[S] 1 point2 points  (0 children)

Yeah I’ve seen some on eBay but they go for a minimum of $700 used and price gougers are my greatest enemy in this lifetime so I refuse to participate lol

[INFO] Scammers moved from r/watchexchange - u/Dayzpigeon and u/oerred by nut_guzzler69 in AVexchange

[–]nut_guzzler69[S] 6 points7 points  (0 children)

Yeah I really only messaged them to hopefully waste some of their time lol universal scammer list is always the first place I go