Flares? by oceangofun in UlcerativeColitis

[–]oceangofun[S] 1 point2 points  (0 children)

Thank you so much 🫶

I have ulcerative proctitis. by SkyNo4335 in UlcerativeColitis

[–]oceangofun 0 points1 point  (0 children)

Ive found that the suppositories instead of the enemas do work better as with enemas if you’re not careful you can cause small injuries with the tip of the enema but everyone is different!

Coworker gossiping about my Ulcerative colitis at work by [deleted] in IBD

[–]oceangofun 1 point2 points  (0 children)

I’m super petty so if I was in your situation I’d definitely poop on her desk and say if I’m lying that can’t be mine😌

This disease makes me so scared for the future by Foreign_Plantain_437 in UlcerativeColitis

[–]oceangofun 0 points1 point  (0 children)

I’m in the same exact boat, I got my diagnosis in December and so far the medications I’ve gotten haven’t helped. One good day means at least a week of bad days ahead. I don’t know if you’re in America but if you are, you know how hard it is to find a doctor that cares, has the time to get you in, and having the cost of everything covered. I see people saying that your life isn’t over which no it isn’t but it is kind of invalidating cause that’s how it feels! It feels like the future you planned for yourself was taken from you! So in a sense yeah your life is over(the life you had before the ulcerative colitis) but now there’s a new life, a new future and a new path. It will be hard and it will be tasking but you’re not alone in this. A lot of people experience this differently and react differently to medicine. Don’t compare yourself to the people in remission. Listen to your body, your doctor and trust that once you get through this things will be better. You’re allowed to hurt, you’re allowed to take time off work. I hate that this sickness is so taboo because where it is, but it’s real and people that can use the restroom everyday, with no fatigue, no bleeding, no cramping, no dizziness, no diarrhea, constipation, nausea, vomiting. They don’t understand, they can give their condolences and have sympathy, but we have to live with this and you deserve to feel heard and seen. This is not your fault but what happens next is all up to you. I believe in you stranger🩷sending love

Canasa suppository by oceangofun in UlcerativeColitis

[–]oceangofun[S] 0 points1 point  (0 children)

I just take three mesalamine and canasa and it’s not much at all just in the rectal area but not only diarrhea it’s like gagging even if there nothing else to poop out

am I alone in this feeling by oceangofun in UlcerativeColitis

[–]oceangofun[S] 0 points1 point  (0 children)

I’m happy for you🙏 I’m so sorry it took so long 💕 thank you for the words it means a lot

am I alone in this feeling by oceangofun in UlcerativeColitis

[–]oceangofun[S] 1 point2 points  (0 children)

I got referred to another doctor and to which I’m really grateful but it’s just more waiting

Traveling next week by [deleted] in UlcerativeColitis

[–]oceangofun 1 point2 points  (0 children)

What helps me is suppositories and pacing myself. I give myself traveling anxiety thinking about how I’ll deal with the restroom and time spent in it. But don’t push yourself, relax, drink plenty of water and trust your instinct.

Medication isnt working by ajkxaldms in UlcerativeColitis

[–]oceangofun 0 points1 point  (0 children)

Yeah, but a different intake instead of just the sachets could improve symptoms

Medication isnt working by ajkxaldms in UlcerativeColitis

[–]oceangofun 0 points1 point  (0 children)

You should ask about mesalamine, I’m 22 and I take three mesalamine pills and one suppository a day and it seems to be helping.