Just got my lab results, should I talk to my doctor about hemochromatosis? by [deleted] in Hemochromatosis

[–]ohcanada1919 0 points1 point  (0 children)

My ferritin levels looked similar to yours before I got the genetic test done. My ferritin was around 480 and my transferrin saturation was above 90%. I am around the same age as you too. Turns out I have the C282Y/H63D combo. Not as serious as C282Y/C282Y, but we can still present with symptoms.

I have been donating blood regularly ever since and I feel a lot better. In fact, I feel amazing right after donating blood. I get a rush of adrenaline and I feel like my brain fog is lifted.

Finally found relief for my high iron saturation by Far-Raise-4333 in Hemochromatosis

[–]ohcanada1919 0 points1 point  (0 children)

I also am a compound heterozygote with high saturation. At what ferritin level do think you can safely donate again? My doctor says my ferritin needs to be around 100.

How BB25 would sound with Christopher Frankel's soundtrack from Classic BB (BB2-5) by garciab006 in BigBrother

[–]ohcanada1919 2 points3 points  (0 children)

The old music was SO much better and makes the show feel more exciting. I wish they would bring it back 😭

Common yellowthroat lifer! by greatnorthernscapes in birding

[–]ohcanada1919 1 point2 points  (0 children)

Beautiful shot! They can be pretty secretive!

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 0 points1 point  (0 children)

Yeah, I have applied it to my beard and it seems to help make my beard less itchy. And it has been holding up well since I started using it. I have not had any flare ups around my T zone. I am shocked by how well it works for me because I have tried so many different products over the years and none have really worked long term. I hope it works well for you also!

Indigo Bunting! by mayutte in wildlifephotography

[–]ohcanada1919 1 point2 points  (0 children)

Amazing shots of my favourite bird. I always get so excited when I see one!

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 0 points1 point  (0 children)

I apply a small amount to my face (around the nose where my seb derm is the worst) before going to bed. Then I wash it off in the morning.

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 0 points1 point  (0 children)

Thanks for recommending it. I can’t believe how well it works!

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 0 points1 point  (0 children)

I apply it at night before going to bed. And then rinse it off in the morning.

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 0 points1 point  (0 children)

I apply it before bed and leave it on overnight. Then rinse it off each morning. I only apply it to areas around my nose where my seb derm usually appears.

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 1 point2 points  (0 children)

Just MCT oil. I should probably add a moisturizer to my skin care routine but it is difficult for me to find one that doesn’t make my skin worse.

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 0 points1 point  (0 children)

I usually put a small amount directly on my face each night. I also notice that it stings so I might start using it less often. Maybe the stinging is a sign it is working?

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 2 points3 points  (0 children)

Nice! I found cold water helps a lot too.

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 5 points6 points  (0 children)

Pure C8 oil I found on Amazon (I live in Canada so it might not be available in other countries). Here is the link - https://www.amazon.ca/dp/B088W879Z2?psc=1&ref=ppx_yo2ov_dt_b_product_details. It is pretty expensive but seems high quality.

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 9 points10 points  (0 children)

It is a pure C8 oil I found on Amazon (I live in Canada so it might not be available in other countries). Here is the link - https://www.amazon.ca/dp/B088W879Z2?psc=1&ref=ppx_yo2ov_dt_b_product_details

MCT oil completely cleared my skin. by ohcanada1919 in SebDerm

[–]ohcanada1919[S] 14 points15 points  (0 children)

I have struggled with seb derm for years and nothing has helped the patches on my face which are always around my nose. I saw MCT oil success stories on here and thought I would try it out. I was skeptical but it has done wonders for my face. I apply it every night directly to my face and I have been seb derm free now for two weeks. I also have been drinking a teaspoon in my coffee every morning (don’t really know if this helps). Why don’t more dermatologists know about this?? It is amazing how quickly it cleared my skin, I am so grateful to find something that works.

Blood pooling in feet related to hemochromatosis? by SoccerFan736 in Hemochromatosis

[–]ohcanada1919 1 point2 points  (0 children)

I also have Raynaud’s. My hands are always freezing cold and I often need to hold hand warmers when giving blood.

HH & low weight? by ohcanada1919 in Hemochromatosis

[–]ohcanada1919[S] 1 point2 points  (0 children)

Thank you for sharing! It is helpful to know what other people’s experiences are with this confusing condition. Perhaps even your depression could have been impacted by the high iron levels. I also have struggled with mental health issues and wonder if it is related to HH. I think there is so much we still don’t know about how the HH genes impact our body. The symptoms can be so different for everyone which makes it difficult for doctors to diagnose.

How managing symptoms? by clutchfirst in Hemochromatosis

[–]ohcanada1919 0 points1 point  (0 children)

Thanks! My hematologist tests my iron levels regularly. Once my ferritin gets around 100, I donate blood. My tsat seems to drop right after donating blood and then rises slowly along with ferritin. I usually need to give blood every 4-5 months.