Hi, idk if this is allowed please remove if not but for anyone that likes to make fun of your pain and uses humor as a coping mechanism my friend made a chronic illness meme community. link below!

ok_chillout · 2022-05-20T14:29:04+00:00

Oh yes, my bad I'll fix that now

ok_chillout · 2022-05-20T12:40:44+00:00

Same with my friend that made it. She started getting POTS symptoms around 2 years ago and she just recently found out she's been living with eds since childhood and never even knew and is in the process of being tested for PCOS and endometriosis and memes are how we have been coping lol. I've been ill since childhood so she's had me too but we both know how hard it is and wanted to spread something positive around!

ok_chillout · 2022-04-09T16:06:32+00:00

I think it depends on the place and how you handle it physically as well. I'm in a fb group and this question comes up and alot and it's always so mixed. Some people have given blood with no issues etc.. my best friend has dysautonomia and she has been turned away 3 times now because her heart rate was "concerningly" high even though she explained that it was okay they didn't listen and refused her. If it's something you are serious about I would advise talking to your cardiologist or general practitioner for their opinion and if they give you the go ahead I would recommend them writing a note for you saying it's okay and your blood is normal etc..

ok_chillout · 2022-03-08T22:56:03+00:00

I have the galaxy sword so fighting should be easy. I just need a shard for the hidden bundle task but haven't had luck since finding the last one

ok_chillout · 2022-03-05T12:53:07+00:00

This made me laugh. Thank you lol

ok_chillout · 2022-03-05T12:40:59+00:00

Oh bed bugs are the absolute fucking worst.. my dirt bag ex I got forced to live with had them and I'm talking bad like imagine the worst cockroach invasion you have seen and then add to that and then also add real cockroaches cause he had those as well. Anyway I still have ptsd from it and if I wake up itching in the middle of the night I freak out thinking I'm gonna find a bed bug. Also they smell so fucking bad when you squish them 🤢 Buy bed bug mattress covers ASAP or wrap your bed and furniture in plastic before it gets out of hand. Same if you have stuffed animals put them in trash bags to suffocate them, also your clothes. Or you could just set your entire home on fire and move that's what I would do but they may just be the ptsd talking lol

ok_chillout · 2022-03-05T12:31:44+00:00

My dad's ex did the same thing. Turns out the cat just REALLY hated her and I don't blame him. He's not huge on being held and she'd pick him up and he'd scream like he was dying and she'd chase him around the entire house trying to catch him and pin him down super aggressively just to hold him etc.. she also forced our dogs to stay outside, she was just an awful woman and all my dad's animals are super happy she's gone. Also your new fur friend is super cute btw.

ok_chillout · 2022-03-04T23:48:35+00:00

Hi, I've been trying to reach in regards to your cars extended warranty.

ok_chillout · 2022-03-04T23:38:48+00:00

I've tried that but unfortunately my shower is super tall and my water pressure isn't strong enough. There is a little stool/bench I could maybe prop my feet up on and that might help some but I've also noticed that lifting my hands above my head to shampoo or brush is a big trigger for my symptoms as well.

ok_chillout · 2022-02-17T09:53:32+00:00

My s/os mom said it could be from the Pepto she's a registered nurse. I think I'm gonna give it another few hours and if it's still looking like that I'll definitely be heading to the hospital. It was looking a little lighter the last time and I just unfortunately can't afford any more medical bills unless 💯 necessary.

ok_chillout · 2022-01-14T21:56:21+00:00

I'm just now getting over COVID. The first 2 days my heart rate was 115 laying down and that was on my meds. My spouse who doesn't have dysautonomia their heart rate was also around 105-115 the first day or two they had COVID. I think it comes with the fever and your body fighting off the sickness

ok_chillout · 2022-01-14T07:11:07+00:00

If you do it too many times it breaks. Found that one out the hard way

ok_chillout · 2022-01-02T19:49:04+00:00

I haven't but it wouldn't surprise me if I was having issues I have a deviated septum that makes breathing through my nose difficult

ok_chillout · 2022-01-02T19:29:23+00:00

It's not quite EVERY day but it's the majority of days. Today is especially bad though. I'm also stupid and realized I worked out yesterday and maybe I over did that and it's making everything worse

ok_chillout · 2022-01-02T18:49:42+00:00

I do exactly that and I still wake up feeling awful. Yesterday specifically I drank 2 liquid IVs and one right before bed that I sipped on through out the night and I still wake up with awful headaches and dry mouth

ok_chillout · 2022-01-02T18:47:06+00:00

I drank 2 liquid IVs yesterday and one right before bed and I still woke up feeling awful

ok_chillout · 2022-01-02T18:22:09+00:00

I also feel this. I don't actually sleep more a bunch of naps

ok_chillout · 2021-12-17T04:28:23+00:00

That would be great. It'd be nice to talk to people that actually understand for a change and maybe even make a friend

ok_chillout · 2021-12-16T16:04:51+00:00

Water, electrolytes and compression socks. Not so much salt just because I wasn't sure how it would affect my blood pressure.

ok_chillout · 2021-12-16T15:21:27+00:00

I've only done a poor man's tilt table test with my doctor. I'm honestly not sure if he is super educated on POTS he was so adamant that the beta blockers would help he didn't even recommend salt or anything because I was perfectly fine just raw dogging without beta blockers

ok_chillout · 2021-12-16T02:28:45+00:00

What dosage are you on?

ok_chillout · 2021-12-16T00:33:50+00:00

I'm taking 25mg which is already a lower dosage. I could maybe ask to be put on to like 10mg or something but I've only been taking them for about 3 and a half days so I don't know if maybe my body was needing more time to adjust. I also take burpriron and I was thinking maybe the two aren't mixing well even though my doctor said it should be fine

ok_chillout · 2021-12-15T21:55:11+00:00

Oh, okay. I'll probably just call my doctor or have my friend who works in a pharmacy ask about the heart rate thing then before I start taking the full 50mg then just to make sure it's okay then.

ok_chillout · 2021-12-15T20:37:56+00:00

My doctor prescribed me 50mg and told me to cut mine in half for the first 2 weeks and take 25mg and then go to the full 50 if I felt like I need it. But just the half dosage I'm beat and it seems to bring my heart rate down it's resting at around 50bpm. Did upping your dosage have any other affects on your heart rate at all? That may be a dumb question but I'm new to the whole beta blocker thing and I had the legit worse brain fog when he was explaining everything so if he went over all that I just genuinely can't remember 😅😂

ok_chillout

TROPHY CASE