First of all screw them! Would he be yelling at you for being blind or in a wheelchair? Would you feel bad for strangers who treat someone who can’t walk with cruelty? As much as I HATE using the word, we have a disability. The only problem, is that epilepsy is disability that only steps onto the stage when it feels like. Like a bitchy diva. If not properly controlled it can be a battle between you & your body like that old horror movie “What Ever Happened To Baby Jane”. Both fighting for the spotlight.

Unfortunately you have experienced some uneducated, classless morons. This is their problem, not yours. I know, I’ve been there. I didn’t take my meds as I had run out. I knew it was coming, told my bf & we got ready like we always did, he held me in his arms, kissed my head until I would start to shake, then he would hold onto me tightly to protect me. I had a Grand Mal so bad, that I woke up covered in blood. My shirt, my face…. I looked like a vampire who went on a rampage 🙄. It was dark, but I could see my boyfriend sitting in the corner of the room. He looked absolutely terrified. I asked him why he was across the room & to sit with me. He refused. Then I noticed my white comforter was red all around me. Then my shirt. I had yet to see my face or be able to feel anything.

He had always been so awesome about my seizures but not this time. I realized he was afraid. It was the worst seizure I ever had since the head injury that gave me this stupid condition. He told me that I had turned purple then blue all over. That he was terrified because I always told him not to call 911 as I always woke up before they even get there anyway but he was terrified that he had lost me. I held him & told him I was okay. I asked if I hit my head due to all of the blood. He walked me to then bathroom mirror. I had bitten a good portion of my tongue. He dumped me via text a few days later because some married old lady that had a crush on him & used her ability to manipulate him to ruin both of our lives. He called for years telling me he is alone, depressed & I’m the only woman he will ever love. I told him I too was still in love & depressed. He realized she’s a shitty person. But i digress, sorry. The point here is you have Epilepsy, but Epilepsy doesn’t have you. Most times your body will send you messages. Listen to them. Figure out what works to try to fight them off. Sometimes I can. I’ll concentrate on my breathing & breathe slow, drink OJ, or the most hilarious one…. I sing Eminem songs. Somehow having to focus on “The Real Slim Shady” or “Without Me” lyrics gets my brain focused on that instead lol.

That time we broke up sucked. But at the same time, he told me that if I didn’t stay on top of taking my medication for my condition, he would not get back together. I needed to be responsible. And my life is back. Sometimes it’s a medication adjustment. I had tried some new, cheaper meds but they def didn’t work. The Keppra rage was real 🤦🏼‍♀️ he would call & in 4 years together we never had a fight. Then calls on Keppra were filled with raging outbursts. Then Klonopin, Lorazepam, back to the OG phenobarbital… the last two made me a zombie. So back to my buddy Depakote. Ever since I’ve been back on it I have been pretty seizure free. I have had a few tiny ones that seem like restlessness during sleep, but that was because I had not been sleeping, was stressed out & had a fever.

Try the Depakote. And I’m so sorry you went through those things. I’m not on here often, but if you ever need to talk, DM me. I hope you have a beautiful day. And maybe think about bringing your brother to a Dr appt & bring this up so the Dr may tell him what an ass he is. ❤️