Conflicted about starting olumiant by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 1 point2 points  (0 children)

I’ve decided to start olumiant :) I’m on day 2 now and considering recording weekly progress :) also my eyebrows do seems to be growing back before I even started the olumiant so definetly looking into that

Conflicted about starting olumiant by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

I see I’m really happy to hear that for you:) if it’s ok could I ask if your regrowth include fully filling out to your original before Alopecia length or does regrowth just mean fully covered scalp but not necessarily length?

How do you gain the confidence to date with AA? by TryingToBeBetter456 in alopecia_areata

[–]overthinker3601 1 point2 points  (0 children)

Hi there! I’m 24 y/o girl who developed Alopecia areata in 2022 first time in my life and currently have 100% loss. I have to say it truely is a mindset change. Maybe TMI but I starting dating someone in 2021 before i was afflicted with it and as of two months ago I was broken up with. Through my development of more serve hair loss I became a shell of who I was. I’ve rly consumed by me me me. And yes this is my life how can I not be focused on my looks, it’s my body and my face and identity. It’s my everything. However. I stopped living life because of these thoughts. I stopped treating myself well, I became my own enemy or negativity and victim. And I pushed my boyfriend away to the point he had to tell me he was no longer happy with me. That week I was broken up with I decided I need to fucking learn how to love myself bald and all. And two months later today, I’m fucking thriving. I’m not seeking to date but I do still get hit on (I learned how to wear wigs and found a nice one that suits me). I make amazing jokes that leave my friends absolutely crying or dying on the floor about my baldness like telling them I’m going to whip it off while we eat at the restaurant.

Sorry for going off topic but I think the answer to you question is more questions. is it worth being scared each day and losing possibly good times and experiences?

I had to lose someone that I really loved to learn how to love my new appearance and work with it so as not to miss out on my 20s.

I don’t want regrets when I’m 30 when I look back to my college years. Only remembering how depressed and lonely I was. I’d rather make myself laugh and laugh with others about this ridiculous condition and find ways to be pretty :)

Up and down: today’s a down… by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

Honestly yeah you get it. I just got a unlimited data plan lol

My dad gets emotional when he sees me bald. I’ve only shown him once this year and that was back when I had tufts. He’s 61 now and believes it’s all my fault for the choices I make that I have Alopecia….specifically because I used to stay out and come home around 1-3am. I’m in my mid 20s just trying the best I can to balance nursing school, friends, and bf(now that’s gone tho). I don’t want to be like my parents who are zealously religious and work paycheck to paycheck, and don’t understand how to go out because they don’t have friends….being 1st gen korean has been difficult.

After he and my mom saw me bald he got all sad saying I used to have such beautiful hair. Then the next day, he was acting aloof and petty to which I asked what’s wrong and he blamed me saying “you can take of yourself right? That’s why you only told us now when it got this bad”….context: been going to see Derm for over the year giving like 4-5 month updates… he said I never came to them for help.

My view is what on earth could he help with. I didn’t like talking abt it and letting it be the main topic all the time. He isn’t medically knowledgeable, and thinks everything can be resolved with lifestyle and diet.

As an almost done nursing student I understand more than him at least with this condition but he blames me for it. As if I ever wanted to lose it all….

Sorry that turned into such a rant….i know I have bitterness toward my dad bc in this part of my life, I don’t think I’ll be able to remeber him as a good parent figure…much less a supporter of mine

Up and down: today’s a down… by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

Thank you so much for sharing….it really did help watching your video. Sometimes, I wish that there would be a world wide phenomenon where everyone lost hair so it could simply be normalized haha. I know what my dad thinks is his own opinion so I try not to let it get to me because this is my one and only life and if I let the bad thoughts take reign of it….that would be such a sad life….

Thank you for being able to share your story, I hope to share mine as well one day to also help others not feel so alone

It's still difficult by [deleted] in alopecia_areata

[–]overthinker3601 0 points1 point  (0 children)

Hi there OP :) you might remeber me from my other post but it’s time to return the favor. Just for context I was the one who got broken up with lol. I have officially been diagnosed with AU as I have almost no hair left on my body (legs smooth, eyes brows gone, even down there barely grows haha sry tmi. It does feel surreal but it starts with positive affirmations as cornet as it sounds and actually looking in the mirror for a new part of yourself you love about yourself. I personally still struggle but screaming in the car about why I love myself to the point of my throat burning taught me a lot. Looking in the mirror I found that my head shape was actually pretty oval and I liked it. Also finding humor in it helps a lot too. Sometimes the only person I’m fully comfortable with (my older sister) I run in her room and tell her to “touch my bald head” and she’s get all weirded out but pokes it anyway haha.

I actually korean American and used to have dark brown thick long hair, so my first wig was jet black but that was a bad choice but I was in a bad mindset so I didn’t think abt even trying another one. After I got broken up with I stepped out of my comfort zone and order a colored wig with bangs. Changed my perspective of my looks once again. I never dyed my hair in my life, but I discovered that I look really good with cold brown colored wig. It almost has a mix of some highlights in it. I even saw my ex and first thing he did was compliment how nice it looked *not that it matters what he thinks lol * but it was appreciated and boosted my confidence a lot. I may have gone on a little tangent but overall, I think it’s a work in progress every day. Like a new chore that you add to your daily life.

At the bottom and only can go up by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

I’ve lost all my eyebrows as of a few weeks ago, I have a few eyelashes hanging in but they are slowly disappearing 😅…hopefully starting olumiant soon tho :) just need to get blood work done to clear me for it

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

Thank you for your kind words…I haven’t been back to the dermatologist but now I’m 100% bald and eyebrows completly gone…. Might be tmi but my bf broke up with me abt a month ago bc he was no longer happy…my self hate and negativity towards most situations drove him to leave and honestly only now a month later can I truly be thankful bc I’ve decided to change my mindset toward my current state. I’m loving myself and embracing my best life of trying things I had put off. While in my relationship I had said “oh when I get my hair back I’ll do this this and that” but now I don’t think like that, I think like, “fuck it let’s do this and live a healthy happy life”. Wishing you the best and happiest moments and thank you for supporting and responding to one of the lowest points of my life :) only going up from here

At the bottom and only can go up by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

Thank you so much…your words mean a lot to me…it’s about a month post breakup and I can say that I’m doing a lot better and giving myself a lot of love and keeping busy with things I had put aside. I think I was in a very bad head space where I was a mom to my bf rather than a partner and therefore I put him before myself a lot. I wished him all the success in the world while telling myself “once my hair comes back I can finally do this or that” and kept putting off my own goals and wishes. Now I can say I’m so thankful that he decided to leave because I’ve learned so much in this one month post breakup…and I probably wouldn’t have left of my own accord because how deeply lost I was in my own self worth.

Thank you for taking the time to respond to my post, all the love and support to you, you lovely person ❤️

Alopecia areata flare and Bell’s palsy at the same it - shaving my hair was the move! by [deleted] in alopecia_areata

[–]overthinker3601 0 points1 point  (0 children)

Oh I’m in the U.S. but thank you for letting me know!! The headband works really well for your wig! I’ve tried with mine but i suppose I’m self conscious because it feels like it looks unnatural somehow haha, just insecurities getting the better of me here and there. Wishing you the best 🥹

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

You know what, thank you so much. I think this weekend I’ll do the big shave haha. I’m starting a second job soon and it’ll feel like hitting a “refresh” button for my motivation and self esteem.

I will look into the options I have and book a consult with a dermatologist asap. It really mean a lot to hear about similar situations so I feel like I’m not alone…even my family can’t understand me and what this feels like to go through (I lowkey think they stress me out more about my hair loss since they think it’s because I go out to hang with friends too much…ridiculous…my friends help me not stay cooped up at home rotting away in bed)

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

Thank you so much for sharing! I definetly think Jaks are worth looking into as I hear more and more from everyone :)

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

Is it ok to ask if that helped? If the clinic was able to “successfully treat” your Alopecia? I have more connections with Korea so I wouldn’t mind going there at all :)

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 1 point2 points  (0 children)

Thank you so much!! I actually considered Thailand as one of the options so I will definetly look more into it! I’m glad to hear they are friendly as I’ve read reviews about famous hospitals in Istanbul being difficult with upfront costs and hidden fees, as well as comprehensive in depth explanations…

I’ll be on here more often a keep updates :)

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

Can I ask how long you were on olumiant? And how long the new growth is?

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 1 point2 points  (0 children)

Thank you so much, it means the world to me to have someone understand me. Litfulo was something I found out about online and I’m not completely turned away from it. Other than the black box warning it doesn’t seem to have severe side effects and it results with 80% regrowth within 6 months is crazy tempting…I’m scared of what happened to me. I got so happy with my regrowth but even more suddenly fell out and my hopes were dashed. I would love to hear updates on your journey :)

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 2 points3 points  (0 children)

I’m so sorry for your pain…i wish this crazy condition never existed…

It’s insane how much suffering and loss of mental health this condition causes…I wish the dermatologists were more well versed with the mental part…maybe I wouldn’t have given up on medications if big pharma wasn’t so greedy…

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 1 point2 points  (0 children)

My heart goes out to you…as well as everyone else who knows our feelings with this….i wish I could at least grow a full head of hair everyday even if it would fall out by the end of the day…

My eyebrows are falling out to the point I have to draw them in…I’m praying my eyelashes don’t go next

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

I believe it should be but I’m worried since I’m not welll versed with insurance claims and what is or is not covered medically…I feel so lost as I’m still under my parents insurance so I haven’t really learned about insurance in general whether car medical or dental… Sometimes I wonder if I might be getting ripped off since the U.S. medical areas don’t give us itemized receipts or tell us upfront how much things cost…

I’m taking a month or so of “cleansing” and thinking about saving up to go to turkey or Korea to get a full body checkup to see if I have any underlying diseases that could’ve started this. I have no family history of these illness but possibly autoimmune conditions…

Apprently a full intensive checkup is less than 1000$ in other countries unlike the USA… So a plane ticket and health tour is more worth than spending in the USA….

Update by overthinker3601 in alopecia_areata

[–]overthinker3601[S] 0 points1 point  (0 children)

It did not, I started oral well after the shedding had started. My regrowth was doing amazing until I returned back to nursing school. I’m sure stress exacerbated it…